Re: PLease help! More photoderm or accutane?

[Guest guest]

i just have a simple question, does most people with rosacea not have

disabling pain? is rosacea that causes extreme pain the norm, or is it

more rare. i use vicodin for my extreme flare-ups. i have the kind of

flare-ups that drive me to the Emergency room. the pain is severe and

crippling. during my last huge flare-up i was crying so bad in the ER and

trying to hide my face and eyes from the lights. i felt like the lights

were burning me. my face gets bright, fire red and purple and swells and

weeps. they gave me the vicodin which takes the edge off the pain, and

also seems to really help the bad swelling i get. i've been using the

vicodin for months now when i flare-up badly.

does anyone else have severe pain and what do you do for it. i'm getting

ready for a 3rd photoderm treatment in a week. i'm thinking of asking a

doctor for something called " clonodine " does anyone have experience with

it?????

i'm now also trying " rosacure " a cream i ordered from Canada. i just got

it though and have only used it for a couple days.

i've been tested for lupus, which came back negative. the doctor said he

thought it was a really extreme case of rosacea, especially for my age

(25). i also experience severe migraines during flare-ups, and in turn my

tremors also get worse. FYI i have a neurologic disease called

generalized dystonia (related to parkinson's) which causes twisting and

tremors.

i'm going to be sent to pain management at my HMO for my other problems

(dystonia, kyphoscoliosis, hip dysplasia and arthritis) but i'm wondering

what they do in the pain management programs and if it would help my

rosacea (or would they take me seriously about my facial pain).

majorie you said you work in a hospital, do you know?

thank you to everyone...

Angie

<

http://dl.www.juno.com/get/web/.

[Guest guest]

i just have a simple question, does most people with rosacea not have

disabling pain? is rosacea that causes extreme pain the norm, or is it

more rare. i use vicodin for my extreme flare-ups. i have the kind of

flare-ups that drive me to the Emergency room. the pain is severe and

crippling. during my last huge flare-up i was crying so bad in the ER and

trying to hide my face and eyes from the lights. i felt like the lights

were burning me. my face gets bright, fire red and purple and swells and

weeps. they gave me the vicodin which takes the edge off the pain, and

also seems to really help the bad swelling i get. i've been using the

vicodin for months now when i flare-up badly.

does anyone else have severe pain and what do you do for it. i'm getting

ready for a 3rd photoderm treatment in a week. i'm thinking of asking a

doctor for something called " clonodine " does anyone have experience with

it?????

i'm now also trying " rosacure " a cream i ordered from Canada. i just got

it though and have only used it for a couple days.

i've been tested for lupus, which came back negative. the doctor said he

thought it was a really extreme case of rosacea, especially for my age

(25). i also experience severe migraines during flare-ups, and in turn my

tremors also get worse. FYI i have a neurologic disease called

generalized dystonia (related to parkinson's) which causes twisting and

tremors.

i'm going to be sent to pain management at my HMO for my other problems

(dystonia, kyphoscoliosis, hip dysplasia and arthritis) but i'm wondering

what they do in the pain management programs and if it would help my

rosacea (or would they take me seriously about my facial pain).

majorie you said you work in a hospital, do you know?

thank you to everyone...

Angie

<

http://dl.www.juno.com/get/web/.

[Guest guest]

Angie, I'm an emergency physician who has rosacea. As others have

shared with you, most rosaceans do not suffer from disabling pain but

it's not unheard of. Pain control clinics have been a godsend for

many, many patients suffering with chronic pain. The doctors and

nurses specialize in pain control, that's all they do, and chronic

facial pain associated with a number of conditions is not so

uncommon. It's a wonderful new specialty, although of course I can't

speak specifically to the facilities at your HMO.

Good luck.

Marjorie

Marjorie Lazoff, MD

> i just have a simple question, does most people with rosacea not

have

> disabling pain? is rosacea that causes extreme pain the norm, or is

it

> more rare. i use vicodin for my extreme flare-ups. i have the kind

of

> flare-ups that drive me to the Emergency room. the pain is severe

and

> crippling. during my last huge flare-up i was crying so bad in the

ER and

> trying to hide my face and eyes from the lights. i felt like the

lights

> were burning me. my face gets bright, fire red and purple and

swells and

> weeps. they gave me the vicodin which takes the edge off the pain,

and

> also seems to really help the bad swelling i get. i've been using

the

> vicodin for months now when i flare-up badly.

>

> does anyone else have severe pain and what do you do for it. i'm

getting

> ready for a 3rd photoderm treatment in a week. i'm thinking of

asking a

> doctor for something called " clonodine " does anyone have experience

with

> it?????

>

> i'm now also trying " rosacure " a cream i ordered from Canada. i

just got

> it though and have only used it for a couple days.

>

> i've been tested for lupus, which came back negative. the doctor

said he

> thought it was a really extreme case of rosacea, especially for my

age

> (25). i also experience severe migraines during flare-ups, and in

turn my

> tremors also get worse. FYI i have a neurologic disease called

> generalized dystonia (related to parkinson's) which causes twisting

and

> tremors.

>

> i'm going to be sent to pain management at my HMO for my other

problems

> (dystonia, kyphoscoliosis, hip dysplasia and arthritis) but i'm

wondering

> what they do in the pain management programs and if it would help my

> rosacea (or would they take me seriously about my facial pain).

>

> majorie you said you work in a hospital, do you know?

>

> thank you to everyone...

>

>

> Angie

>

>

>

>

> <

that you have to take Vicodin.

>

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

[Guest guest]

Angie, I'm an emergency physician who has rosacea. As others have

shared with you, most rosaceans do not suffer from disabling pain but

it's not unheard of. Pain control clinics have been a godsend for

many, many patients suffering with chronic pain. The doctors and

nurses specialize in pain control, that's all they do, and chronic

facial pain associated with a number of conditions is not so

uncommon. It's a wonderful new specialty, although of course I can't

speak specifically to the facilities at your HMO.

Good luck.

Marjorie

Marjorie Lazoff, MD

> i just have a simple question, does most people with rosacea not

have

> disabling pain? is rosacea that causes extreme pain the norm, or is

it

> more rare. i use vicodin for my extreme flare-ups. i have the kind

of

> flare-ups that drive me to the Emergency room. the pain is severe

and

> crippling. during my last huge flare-up i was crying so bad in the

ER and

> trying to hide my face and eyes from the lights. i felt like the

lights

> were burning me. my face gets bright, fire red and purple and

swells and

> weeps. they gave me the vicodin which takes the edge off the pain,

and

> also seems to really help the bad swelling i get. i've been using

the

> vicodin for months now when i flare-up badly.

>

> does anyone else have severe pain and what do you do for it. i'm

getting

> ready for a 3rd photoderm treatment in a week. i'm thinking of

asking a

> doctor for something called " clonodine " does anyone have experience

with

> it?????

>

> i'm now also trying " rosacure " a cream i ordered from Canada. i

just got

> it though and have only used it for a couple days.

>

> i've been tested for lupus, which came back negative. the doctor

said he

> thought it was a really extreme case of rosacea, especially for my

age

> (25). i also experience severe migraines during flare-ups, and in

turn my

> tremors also get worse. FYI i have a neurologic disease called

> generalized dystonia (related to parkinson's) which causes twisting

and

> tremors.

>

> i'm going to be sent to pain management at my HMO for my other

problems

> (dystonia, kyphoscoliosis, hip dysplasia and arthritis) but i'm

wondering

> what they do in the pain management programs and if it would help my

> rosacea (or would they take me seriously about my facial pain).

>

> majorie you said you work in a hospital, do you know?

>

> thank you to everyone...

>

>

> Angie

>

>

>

>

> <

that you have to take Vicodin.

>

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

[Guest guest]

Marjorie - Can you explain why it is that some people

with rosacea suffer such pain? Is it connected to

other medical problems?

Thanks - Moya

--- emarjency emarjency@...> wrote:

> Angie, I'm an emergency physician who has rosacea.

> As others have

> shared with you, most rosaceans do not suffer from

> disabling pain but

> it's not unheard of. Pain control clinics have been

> a godsend for

> many, many patients suffering with chronic pain. The

> doctors and

> nurses specialize in pain control, that's all they

> do, and chronic

> facial pain associated with a number of conditions

> is not so

> uncommon. It's a wonderful new specialty, although

> of course I can't

> speak specifically to the facilities at your HMO.

>

> Good luck.

>

> Marjorie

>

> Marjorie Lazoff, MD

>

>

>

>

>

> > i just have a simple question, does most people

> with rosacea not

> have

> > disabling pain? is rosacea that causes extreme

> pain the norm, or is

> it

> > more rare. i use vicodin for my extreme flare-ups.

> i have the kind

> of

> > flare-ups that drive me to the Emergency room. the

> pain is severe

> and

> > crippling. during my last huge flare-up i was

> crying so bad in the

> ER and

> > trying to hide my face and eyes from the lights. i

> felt like the

> lights

> > were burning me. my face gets bright, fire red and

> purple and

> swells and

> > weeps. they gave me the vicodin which takes the

> edge off the pain,

> and

> > also seems to really help the bad swelling i get.

> i've been using

> the

> > vicodin for months now when i flare-up badly.

> >

> > does anyone else have severe pain and what do you

> do for it. i'm

> getting

> > ready for a 3rd photoderm treatment in a week. i'm

> thinking of

> asking a

> > doctor for something called " clonodine " does

> anyone have experience

> with

> > it?????

> >

> > i'm now also trying " rosacure " a cream i ordered

> from Canada. i

> just got

> > it though and have only used it for a couple days.

> >

> > i've been tested for lupus, which came back

> negative. the doctor

> said he

> > thought it was a really extreme case of rosacea,

> especially for my

> age

> > (25). i also experience severe migraines during

> flare-ups, and in

> turn my

> > tremors also get worse. FYI i have a neurologic

> disease called

> > generalized dystonia (related to parkinson's)

> which causes twisting

> and

> > tremors.

> >

> > i'm going to be sent to pain management at my HMO

> for my other

> problems

> > (dystonia, kyphoscoliosis, hip dysplasia and

> arthritis) but i'm

> wondering

> > what they do in the pain management programs and

> if it would help my

> > rosacea (or would they take me seriously about my

> facial pain).

> >

> > majorie you said you work in a hospital, do you

> know?

> >

> > thank you to everyone...

> >

> >

> > Angie

> >

> >

> >

> >

> > <

to the extent

> > that you have to take Vicodin.

> >

> >

>

________________________________________________________________

> > GET INTERNET ACCESS FROM JUNO!

> > Juno offers FREE or PREMIUM Internet access for

> less!

> > Join Juno today! For your FREE software, visit:

> > http://dl.www.juno.com/get/web/.

>

>

>

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