Re: PLease help! More photoderm or accutane?

[Guest guest]

Marjorie - Can you explain why it is that some people

with rosacea suffer such pain? Is it connected to

other medical problems?

Thanks - Moya

--- emarjency emarjency@...> wrote:

> Angie, I'm an emergency physician who has rosacea.

> As others have

> shared with you, most rosaceans do not suffer from

> disabling pain but

> it's not unheard of. Pain control clinics have been

> a godsend for

> many, many patients suffering with chronic pain. The

> doctors and

> nurses specialize in pain control, that's all they

> do, and chronic

> facial pain associated with a number of conditions

> is not so

> uncommon. It's a wonderful new specialty, although

> of course I can't

> speak specifically to the facilities at your HMO.

>

> Good luck.

>

> Marjorie

>

> Marjorie Lazoff, MD

>

>

>

>

>

> > i just have a simple question, does most people

> with rosacea not

> have

> > disabling pain? is rosacea that causes extreme

> pain the norm, or is

> it

> > more rare. i use vicodin for my extreme flare-ups.

> i have the kind

> of

> > flare-ups that drive me to the Emergency room. the

> pain is severe

> and

> > crippling. during my last huge flare-up i was

> crying so bad in the

> ER and

> > trying to hide my face and eyes from the lights. i

> felt like the

> lights

> > were burning me. my face gets bright, fire red and

> purple and

> swells and

> > weeps. they gave me the vicodin which takes the

> edge off the pain,

> and

> > also seems to really help the bad swelling i get.

> i've been using

> the

> > vicodin for months now when i flare-up badly.

> >

> > does anyone else have severe pain and what do you

> do for it. i'm

> getting

> > ready for a 3rd photoderm treatment in a week. i'm

> thinking of

> asking a

> > doctor for something called " clonodine " does

> anyone have experience

> with

> > it?????

> >

> > i'm now also trying " rosacure " a cream i ordered

> from Canada. i

> just got

> > it though and have only used it for a couple days.

> >

> > i've been tested for lupus, which came back

> negative. the doctor

> said he

> > thought it was a really extreme case of rosacea,

> especially for my

> age

> > (25). i also experience severe migraines during

> flare-ups, and in

> turn my

> > tremors also get worse. FYI i have a neurologic

> disease called

> > generalized dystonia (related to parkinson's)

> which causes twisting

> and

> > tremors.

> >

> > i'm going to be sent to pain management at my HMO

> for my other

> problems

> > (dystonia, kyphoscoliosis, hip dysplasia and

> arthritis) but i'm

> wondering

> > what they do in the pain management programs and

> if it would help my

> > rosacea (or would they take me seriously about my

> facial pain).

> >

> > majorie you said you work in a hospital, do you

> know?

> >

> > thank you to everyone...

> >

> >

> > Angie

> >

> >

> >

> >

> > <

to the extent

> > that you have to take Vicodin.

> >

> >

>

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