Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 > Marjorie,your concerns are appreciated and justified.But > we could also point these concerns at other topical immune > modulaters like Protopic and Elidel. I agree with you completely, Rory. Although I haven't taken a close at those studies -- who funded them and whether they are well designed/executed -- I would have identical concerns. > None of us know what > they may discover about these ten years down the road. True. But I draw a distinction between what we can expect from a study, and what we can expect from a product. I try not to confuse the two (which is hard, in threads like this). One would think they are related -- and usually there are, but not inevitably. > But we > are desperate people with a desperate condition Whether true or not, desperation is no reason to victimize ourselves. Do you know what I mean? > and I will > not wait that long before I feel it is safe to use these > topicals. > I dont think any company could afford to test a > product that long before releasing it.Protopic and Elidel > have a long list of possible side effects and cautions but > I am in my 30s and I am not going to wait until my 40s before > I feel it might be safe to use them. That's your choice, that's all our choices. My point is this: the more accurate information we have available to make an informed decision at any point in time, the better off we are. We're never going to have unlimited, totally accurate information -- but I don't believe that means we should just accept poor research or veiled marketing without question, or throw our hands up entirely because this stuff is intimidating or difficult to appreciate at first scan. Marjorie Marjorie Lazoff, MD Quote Link to comment Share on other sites More sharing options...
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