ELLA

October 22, 2002

Hello Ella,

Welcome to this wonderful list. I was born in Nth Ireland, Belfast in

fact. I came to Australia when I was 4 so I don't remember anything

from Ireland. My family all still live there except my immediate family

of course. I have two children with Irish names , Liam & Eilish. My

grandmother nearly died when she heard their names as apparently they

are Catholic names and were prod's. But I know nothing about all that

so I just loved the names. Eilish is the one with Cf she is 5. She is

very Irish with her pale skin like me.

My husband is ish so what a mixture we have.

Welcome again

(Australia)

mummy to Liam 8 wocf & Eilish 5 wcf

October 29, 2002

Ella,

Sounds like you've all been through the mill. I hope it turns around

for your family now. I've only ever heard the name Eilish about those

co joined twins in sthn. Ireland about 8 years ago. That's when we

decided if we ever had a girl that would be here name. Her middle name

is Molly, which is also Irish for , which is my mums name. Has your

niece for a middle name?

Speak with you soon.

(Australia)

mummy to Liam 8 wocf & Eilish 5 wcf

Ireland Calling Once Again !!

Hello Again Everyone,

Thanks so much for emailing back. It was really great to hear

from so many of you.

I'm only getting a chance to write back now because I was out of

work all of last week. Everyone in the house got, what we're

calling in Ireland this year, the Winter Vomitting Bug. The 8

and 5 year olds are fine but of course poor auld Aoife got an

awful dose of it. She is still far from well. She has stopped

vomitting etc. but she is so pale and is only eating a few bites

here and there. It's really hard to have patience sometimes !

Anyway, I don't know whether or not your hospitals and Clinics

would advise differently but I thought I just had to inform you

of what happened to us last week.

I rang the hosp. the first day Aoife got the bug. They said,

treat her as I would the other girls with small drinks of water

etc. etc. no food until her stomach settled down and that I was

to leave her off her antibiotics for two days. I did all of

this. In the middle of everyone else in the house not being

well with their stomach, I had Aoife, who is 10 yrs old, almost

climbing the walls with nightmares. Of course I didn't realise

until afterwards what was going on. The first night off the

meds, she had nightmares all night, I slept with her to try and

comfort her, the next day, she was getting them even during the

day and that night again, until 4 am in the morning. I thought

my child was going mad ! My partner finally suggested the fact

that it might be she had no meds for almost two days and it was

like she needed " A Hit " , she was getting withdrawals from the

drugs and that was giving her the nightmares!! I knew the

minute he said it that he was right.

This may appear very obvious to lots of you but I was so busy

trying to mind Aoife and the other two girls, Maeve and Shauna,

that I never thought of it. It was a rotten experience and I

feel somewhat unnecessary for her to have experienced. At least

all is well again, well kind of, for now.

Thanks again for being in touch. A special Hello to Barbara,

and . My one and only sister lives in Australia with

her hubby and 4 children, I miss her dreadfully, so it was

especially great to hear from you three. I visited Australia

once, years ago. We stayed in Sydney and travelled to Melbourne

for a week and also Canberra for a long weekend. Amazing place.

, my little niece in Australia, is also called Eilish and is

fair and blondie too.

Barbara, that thing with Kristy and the breathing. Aoife very

much suffered like that and still does really, especially with PE

in school and stuff. We use the ventolin before PE and then sit

some of it out if she's just not up to it.

, hope Sian is doing ok. Pity we didn't live nearer to

either other, we could join WW again!! or do a Pilates class or

something !!!!!

C., it can't be easy with the twins?? and I complain.

Christy, mom of Wyatt. Aoife and I also have those conversations

about her just hating the fact that she has CF. It's really

difficult as you try to explain yet again and your heart is

breaking inside.

Also lovely to hear from Sheila, n, , , Torsten

and Shrikant. Hope I'm not forgetting anyone. Thanks so much to

all of you for your kinds words of encouragement.

Ella.

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October 29, 2002