Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 - I know our Dept. of Health and a few states have a program for families with chronic illnesses and exorbinant medical bills. I don't know if it would help you but its worth investigating. Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 In a message dated 10/24/2002 11:08:26 PM Central Daylight Time, milanfoundation@... writes: > Hi all, > > I hope this finds everyone well today. I just thought I would update you > all on the whirlwind week we have had. > > The biggest news is that I will be working very closely with a city council > candidate here in Los Angeles. What does this have to do with CF you ask? > The wonderful contacts, news coverage and (drum roll please) a radio talk > show spot where I get 10 minutes to talk about our foundation and Cystic > Fibrosis. I will be on the front lines of the campaign making policy > decisions and helping to create literature. I will also most likely get > some event planning work which is great for the foundation because all the > money I make doing that goes right into helping establish the funds for > helping CF families. > > We are also spreading the word throughout our neighborhood and will make a > big splash on Saturday when we are working the annual Halloween Haunt. I > am the raffle lady. > > Milan is doing well and her lungs are still clear and there in no cough. I > even tried doing manual CPT after the vest just to see if anything would > happen. > > We have even joined those of you with insurance woes. We have gotten over > $1,000 of unexpected bills and according to the billing department at > Cedars will be expecing about another $300 or so soon. Well since we do > not have that kind of money and all my extra money is going into bills and > starting the foundation, I made a couple of calls and found out that the > medical center was billing the insurance incorrectly. All charges are now > going to be taken care of by the insurance company. Another big YIPEE!!!!! > > Well that is it for now. I am just so excited about getting on the radio > show and spreading the word through my work on the campaign I could burst. > > Wish me luck, pray for us or what ever you do to send good will and best > wishes. > > Good health to all. > > > Tucker > Mom of Milan 4 wcf THAT IS GREAT LISA GREAT WORK!!!!!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 In a message dated 10/24/2002 11:08:26 PM Central Daylight Time, milanfoundation@... writes: > Hi all, > > I hope this finds everyone well today. I just thought I would update you > all on the whirlwind week we have had. > > The biggest news is that I will be working very closely with a city council > candidate here in Los Angeles. What does this have to do with CF you ask? > The wonderful contacts, news coverage and (drum roll please) a radio talk > show spot where I get 10 minutes to talk about our foundation and Cystic > Fibrosis. I will be on the front lines of the campaign making policy > decisions and helping to create literature. I will also most likely get > some event planning work which is great for the foundation because all the > money I make doing that goes right into helping establish the funds for > helping CF families. > > We are also spreading the word throughout our neighborhood and will make a > big splash on Saturday when we are working the annual Halloween Haunt. I > am the raffle lady. > > Milan is doing well and her lungs are still clear and there in no cough. I > even tried doing manual CPT after the vest just to see if anything would > happen. > > We have even joined those of you with insurance woes. We have gotten over > $1,000 of unexpected bills and according to the billing department at > Cedars will be expecing about another $300 or so soon. Well since we do > not have that kind of money and all my extra money is going into bills and > starting the foundation, I made a couple of calls and found out that the > medical center was billing the insurance incorrectly. All charges are now > going to be taken care of by the insurance company. Another big YIPEE!!!!! > > Well that is it for now. I am just so excited about getting on the radio > show and spreading the word through my work on the campaign I could burst. > > Wish me luck, pray for us or what ever you do to send good will and best > wishes. > > Good health to all. > > > Tucker > Mom of Milan 4 wcf THAT IS GREAT LISA GREAT WORK!!!!!! Deb A Quote Link to comment Share on other sites More sharing options...
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