Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 Good Morning Everyone, I hope this finds everyone as pain free as possible for the day. Iwas awakened at 3:30 am by thunderstorms and (I can't remember who called it this but) " Pain from the sky. " I guess I tooted my own horn too loudly yesterday and didn't knock on wood when I said I was feeling better... Darn silly me! Why is it just when we can finally tell everyone " Oh, I feel Much better today. " This crap always manages to come back in spades? Maybe its just the Monday/Tuesday blahs? I don't know but I am sure beginning to hate anticipating the next wave. I have been talking to my sister in law about the surgery (she had it too) and she and I have come up with a plan of action. We are going to go to support group together and we are going to exercise together too, I hate going to the gym by myself and so does she, and she lives out in the country so we can walk out there (can't do it here, might get mugged or worse) I'm glad my brother found her... Shes going to be good for him I think. She is still cheating on her diet, but is still losing pounds so I guess she is ok. The doc told me I wouldn't be able to cheat much between the surgery and the CP. (Probably a good thing, even though I don't cheat too often now.) I did find something though that I can tolerate that is in a candy bar form, its the Body Smarts ccandy bars. They kind of taste funny but they curb the sugar pang and they have vitamins and protien in them, something I know I don't get enough of. They don't have a lot of fat in them, but they do have some, not enough to make me sick though, I had one on Saturday and another on Sunday... and I didn't even get pain after eating them. Surprise!! (I like those little surprises everyonce in a while, lol.) Well, I took my pain meds, and got the boys off to school, so I think I am going to go lay back down for a little while. Hopefully things will start feeling better soon. {{{HUGZ}}} PS... , I take Creon and have never had any weird side effects or anything with it... comes in a capsule form though and I don't open them. {{{HUGZ}}} D --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , Sorry to hear you're not doing so well again. It is so very frustrating to feel better only to get worse again! I am at work today but I really do not feel like being here. I'm really pretty worthless. My brain does not function well when I am in pain. All weekend long I kept thinking " if it just gets a little better each day, I should be fine by Tuesday " . Well, Tuesday is here and it really didn't get a little better each day and I really am not fine today. I almost feel like just giving up. I was approved for a disability retirement in Apr 2001. I had applied in Dec 2000 and it took that long to get the paperwork through. By the time it was approved, my health had improved drastically so I turned it down. I am wishing now that I had just gone on and taken the disability retirement. I am sure the stress of worrying about my paycheck and whether or not I'll be able to make it through the week at work is not helping matters any. I just feel like crying and having a big pity party! I took half a pain pill but so far it's not helping. I'm afraid to take more than that because I live 30 miles from work. This all just really sucks! ----- I forgot to knock on wood > Good Morning Everyone, > > I hope this finds everyone as pain free as possible for the day. > Iwas awakened at 3:30 am by thunderstorms and (I can't remember who > called it this but) " Pain from the sky. " I guess I tooted my own horn > too loudly yesterday and didn't knock on wood when I said I was > feeling better... Darn silly me! > > Why is it just when we can finally tell everyone " Oh, I feel Much > better today. " This crap always manages to come back in spades? Maybe > its just the Monday/Tuesday blahs? I don't know but I am sure > beginning to hate anticipating the next wave. > > I have been talking to my sister in law about the surgery (she had it > too) and she and I have come up with a plan of action. We are going > to go to support group together and we are going to exercise together > too, I hate going to the gym by myself and so does she, and she lives > out in the country so we can walk out there (can't do it here, might > get mugged or worse) I'm glad my brother found her... Shes going to > be good for him I think. She is still cheating on her diet, but is > still losing pounds so I guess she is ok. The doc told me I wouldn't > be able to cheat much between the surgery and the CP. (Probably a > good thing, even though I don't cheat too often now.) > > I did find something though that I can tolerate that is in a candy > bar form, its the Body Smarts ccandy bars. They kind of taste funny > but they curb the sugar pang and they have vitamins and protien in > them, something I know I don't get enough of. They don't have a lot > of fat in them, but they do have some, not enough to make me sick > though, I had one on Saturday and another on Sunday... and I didn't > even get pain after eating them. Surprise!! (I like those little > surprises everyonce in a while, lol.) > > Well, I took my pain meds, and got the boys off to school, so I think > I am going to go lay back down for a little while. Hopefully things > will start feeling better soon. > > {{{HUGZ}}} > > > > PS... , I take Creon and have never had any weird side effects > or anything with it... comes in a capsule form though and I don't open > them. {{{HUGZ}}} D > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , Sorry to hear you're not doing so well again. It is so very frustrating to feel better only to get worse again! I am at work today but I really do not feel like being here. I'm really pretty worthless. My brain does not function well when I am in pain. All weekend long I kept thinking " if it just gets a little better each day, I should be fine by Tuesday " . Well, Tuesday is here and it really didn't get a little better each day and I really am not fine today. I almost feel like just giving up. I was approved for a disability retirement in Apr 2001. I had applied in Dec 2000 and it took that long to get the paperwork through. By the time it was approved, my health had improved drastically so I turned it down. I am wishing now that I had just gone on and taken the disability retirement. I am sure the stress of worrying about my paycheck and whether or not I'll be able to make it through the week at work is not helping matters any. I just feel like crying and having a big pity party! I took half a pain pill but so far it's not helping. I'm afraid to take more than that because I live 30 miles from work. This all just really sucks! ----- I forgot to knock on wood > Good Morning Everyone, > > I hope this finds everyone as pain free as possible for the day. > Iwas awakened at 3:30 am by thunderstorms and (I can't remember who > called it this but) " Pain from the sky. " I guess I tooted my own horn > too loudly yesterday and didn't knock on wood when I said I was > feeling better... Darn silly me! > > Why is it just when we can finally tell everyone " Oh, I feel Much > better today. " This crap always manages to come back in spades? Maybe > its just the Monday/Tuesday blahs? I don't know but I am sure > beginning to hate anticipating the next wave. > > I have been talking to my sister in law about the surgery (she had it > too) and she and I have come up with a plan of action. We are going > to go to support group together and we are going to exercise together > too, I hate going to the gym by myself and so does she, and she lives > out in the country so we can walk out there (can't do it here, might > get mugged or worse) I'm glad my brother found her... Shes going to > be good for him I think. She is still cheating on her diet, but is > still losing pounds so I guess she is ok. The doc told me I wouldn't > be able to cheat much between the surgery and the CP. (Probably a > good thing, even though I don't cheat too often now.) > > I did find something though that I can tolerate that is in a candy > bar form, its the Body Smarts ccandy bars. They kind of taste funny > but they curb the sugar pang and they have vitamins and protien in > them, something I know I don't get enough of. They don't have a lot > of fat in them, but they do have some, not enough to make me sick > though, I had one on Saturday and another on Sunday... and I didn't > even get pain after eating them. Surprise!! (I like those little > surprises everyonce in a while, lol.) > > Well, I took my pain meds, and got the boys off to school, so I think > I am going to go lay back down for a little while. Hopefully things > will start feeling better soon. > > {{{HUGZ}}} > > > > PS... , I take Creon and have never had any weird side effects > or anything with it... comes in a capsule form though and I don't open > them. {{{HUGZ}}} D > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , Sorry to hear you're not doing so well again. It is so very frustrating to feel better only to get worse again! I am at work today but I really do not feel like being here. I'm really pretty worthless. My brain does not function well when I am in pain. All weekend long I kept thinking " if it just gets a little better each day, I should be fine by Tuesday " . Well, Tuesday is here and it really didn't get a little better each day and I really am not fine today. I almost feel like just giving up. I was approved for a disability retirement in Apr 2001. I had applied in Dec 2000 and it took that long to get the paperwork through. By the time it was approved, my health had improved drastically so I turned it down. I am wishing now that I had just gone on and taken the disability retirement. I am sure the stress of worrying about my paycheck and whether or not I'll be able to make it through the week at work is not helping matters any. I just feel like crying and having a big pity party! I took half a pain pill but so far it's not helping. I'm afraid to take more than that because I live 30 miles from work. This all just really sucks! ----- I forgot to knock on wood > Good Morning Everyone, > > I hope this finds everyone as pain free as possible for the day. > Iwas awakened at 3:30 am by thunderstorms and (I can't remember who > called it this but) " Pain from the sky. " I guess I tooted my own horn > too loudly yesterday and didn't knock on wood when I said I was > feeling better... Darn silly me! > > Why is it just when we can finally tell everyone " Oh, I feel Much > better today. " This crap always manages to come back in spades? Maybe > its just the Monday/Tuesday blahs? I don't know but I am sure > beginning to hate anticipating the next wave. > > I have been talking to my sister in law about the surgery (she had it > too) and she and I have come up with a plan of action. We are going > to go to support group together and we are going to exercise together > too, I hate going to the gym by myself and so does she, and she lives > out in the country so we can walk out there (can't do it here, might > get mugged or worse) I'm glad my brother found her... Shes going to > be good for him I think. She is still cheating on her diet, but is > still losing pounds so I guess she is ok. The doc told me I wouldn't > be able to cheat much between the surgery and the CP. (Probably a > good thing, even though I don't cheat too often now.) > > I did find something though that I can tolerate that is in a candy > bar form, its the Body Smarts ccandy bars. They kind of taste funny > but they curb the sugar pang and they have vitamins and protien in > them, something I know I don't get enough of. They don't have a lot > of fat in them, but they do have some, not enough to make me sick > though, I had one on Saturday and another on Sunday... and I didn't > even get pain after eating them. Surprise!! (I like those little > surprises everyonce in a while, lol.) > > Well, I took my pain meds, and got the boys off to school, so I think > I am going to go lay back down for a little while. Hopefully things > will start feeling better soon. > > {{{HUGZ}}} > > > > PS... , I take Creon and have never had any weird side effects > or anything with it... comes in a capsule form though and I don't open > them. {{{HUGZ}}} D > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , I'm sorry you are still feeling poorly too... Its just so very frustrating to be sick all the time. I am hoping that you will feel better soon. Please don't over do it at work. You don't want to end up in the middle of a major attack again. If you were approved for disability before, why don't you try again, just because... that way if you do have to take time off work you won't have the no paychek thing looming over your head. Many, many, {{{HUGZ and prayers}}} headed your way, PS Maybe we should have a pity party together!!! I could sure use some too. {{{HUGZ}}} D --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , I'm sorry you are still feeling poorly too... Its just so very frustrating to be sick all the time. I am hoping that you will feel better soon. Please don't over do it at work. You don't want to end up in the middle of a major attack again. If you were approved for disability before, why don't you try again, just because... that way if you do have to take time off work you won't have the no paychek thing looming over your head. Many, many, {{{HUGZ and prayers}}} headed your way, PS Maybe we should have a pity party together!!! I could sure use some too. {{{HUGZ}}} D --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , I'm sorry you are still feeling poorly too... Its just so very frustrating to be sick all the time. I am hoping that you will feel better soon. Please don't over do it at work. You don't want to end up in the middle of a major attack again. If you were approved for disability before, why don't you try again, just because... that way if you do have to take time off work you won't have the no paychek thing looming over your head. Many, many, {{{HUGZ and prayers}}} headed your way, PS Maybe we should have a pity party together!!! I could sure use some too. {{{HUGZ}}} D --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , I know exactly what you mean when you say for feeling better and then all of a sudden the bottom falls out. I get to place sometimes when I'm really feeling good, I almost afraid to tell anyone, because I'm almost afraid that I will jinx thinks and the bottom will fall out again. It's like ok, I feel better now, how long will it last before something else happens. I really should be more positive, but ever time I am, something else happens. So my standard answer to when someone ask me how I'm feeling, I usually say ok, and just drop it at that. This way I really don't have to explain the great days and the kind of bad days too. I know when I getting over a bad spell, I really don't like my husband asking me all the time how I'm feeling, because I really don't what to think about it. So he get the standard or generic answer that I'm ok. Does this make any sense to you? I hope you are feeling better now and it was just a passing bad night of pain, and nothing more serious. I'm up tonight, as I can't sleep. The pain isn't really that bad, more or less annoying more than anything else. I just don't feel quite right, I just think you could say I feel icky, if you know what I mean. Take Care, Louie in WV I forgot to knock on wood Good Morning Everyone, I hope this finds everyone as pain free as possible for the day. Iwas awakened at 3:30 am by thunderstorms and (I can't remember who called it this but) " Pain from the sky. " I guess I tooted my own horn too loudly yesterday and didn't knock on wood when I said I was feeling better... Darn silly me! Why is it just when we can finally tell everyone " Oh, I feel Much better today. " This crap always manages to come back in spades? Maybe its just the Monday/Tuesday blahs? I don't know but I am sure beginning to hate anticipating the next wave. I have been talking to my sister in law about the surgery (she had it too) and she and I have come up with a plan of action. We are going to go to support group together and we are going to exercise together too, I hate going to the gym by myself and so does she, and she lives out in the country so we can walk out there (can't do it here, might get mugged or worse) I'm glad my brother found her... Shes going to be good for him I think. She is still cheating on her diet, but is still losing pounds so I guess she is ok. The doc told me I wouldn't be able to cheat much between the surgery and the CP. (Probably a good thing, even though I don't cheat too often now.) I did find something though that I can tolerate that is in a candy bar form, its the Body Smarts ccandy bars. They kind of taste funny but they curb the sugar pang and they have vitamins and protien in them, something I know I don't get enough of. They don't have a lot of fat in them, but they do have some, not enough to make me sick though, I had one on Saturday and another on Sunday... and I didn't even get pain after eating them. Surprise!! (I like those little surprises everyonce in a while, lol.) Well, I took my pain meds, and got the boys off to school, so I think I am going to go lay back down for a little while. Hopefully things will start feeling better soon. {{{HUGZ}}} PS... , I take Creon and have never had any weird side effects or anything with it... comes in a capsule form though and I don't open them. {{{HUGZ}}} D --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2002 Report Share Posted September 3, 2002 , I know exactly what you mean when you say for feeling better and then all of a sudden the bottom falls out. I get to place sometimes when I'm really feeling good, I almost afraid to tell anyone, because I'm almost afraid that I will jinx thinks and the bottom will fall out again. It's like ok, I feel better now, how long will it last before something else happens. I really should be more positive, but ever time I am, something else happens. So my standard answer to when someone ask me how I'm feeling, I usually say ok, and just drop it at that. This way I really don't have to explain the great days and the kind of bad days too. I know when I getting over a bad spell, I really don't like my husband asking me all the time how I'm feeling, because I really don't what to think about it. So he get the standard or generic answer that I'm ok. Does this make any sense to you? I hope you are feeling better now and it was just a passing bad night of pain, and nothing more serious. I'm up tonight, as I can't sleep. The pain isn't really that bad, more or less annoying more than anything else. I just don't feel quite right, I just think you could say I feel icky, if you know what I mean. Take Care, Louie in WV I forgot to knock on wood Good Morning Everyone, I hope this finds everyone as pain free as possible for the day. Iwas awakened at 3:30 am by thunderstorms and (I can't remember who called it this but) " Pain from the sky. " I guess I tooted my own horn too loudly yesterday and didn't knock on wood when I said I was feeling better... Darn silly me! Why is it just when we can finally tell everyone " Oh, I feel Much better today. " This crap always manages to come back in spades? Maybe its just the Monday/Tuesday blahs? I don't know but I am sure beginning to hate anticipating the next wave. I have been talking to my sister in law about the surgery (she had it too) and she and I have come up with a plan of action. We are going to go to support group together and we are going to exercise together too, I hate going to the gym by myself and so does she, and she lives out in the country so we can walk out there (can't do it here, might get mugged or worse) I'm glad my brother found her... Shes going to be good for him I think. She is still cheating on her diet, but is still losing pounds so I guess she is ok. The doc told me I wouldn't be able to cheat much between the surgery and the CP. (Probably a good thing, even though I don't cheat too often now.) I did find something though that I can tolerate that is in a candy bar form, its the Body Smarts ccandy bars. They kind of taste funny but they curb the sugar pang and they have vitamins and protien in them, something I know I don't get enough of. They don't have a lot of fat in them, but they do have some, not enough to make me sick though, I had one on Saturday and another on Sunday... and I didn't even get pain after eating them. Surprise!! (I like those little surprises everyonce in a while, lol.) Well, I took my pain meds, and got the boys off to school, so I think I am going to go lay back down for a little while. Hopefully things will start feeling better soon. {{{HUGZ}}} PS... , I take Creon and have never had any weird side effects or anything with it... comes in a capsule form though and I don't open them. {{{HUGZ}}} D --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 Hey folks, I can say many dittos to that. My pain has seemed to morph itself in so many ways. Isn't it just the most God awful feeling to suddenly notice that you feel good and then like being hit with a bolt of lightning with the pain and nausea that no one can explain. I got my most recent CT scan and blood test results, not long ago, and my doctor says that my chart looks excellent copared to where I was a a year ago, yet I don't feel any better. In fact, many times I feel worse. I thank God I have a doctor that goes beyond what the chart says and realizes that my pain is real even though he can't explain it from a medical stand point. I do my best to take good care of myself and my blood work shows it; will my body ever damn well get itself in line with my chart. I'm seeing a GI specialist next Tuesday. I'm not going to ask him for any scripts, I'll let my Internest do that. I do however want him to order an MCRP. There's something missing here, a concrete cause for my pain. I haven't posted much lately because it all gets so overwhelming at times; it's all I can do to get through day-to-day. I hope most of you are having a fairly painless day. Your Friend, Mark --- edhall ehall@...> wrote: > , > I know exactly what you mean when you say for > feeling better and then all of a sudden the bottom > falls out. I get to place sometimes when I'm really > feeling good, I almost afraid to tell anyone, > because I'm almost afraid that I will jinx thinks > and the bottom will fall out again. It's like ok, > I feel better now, how long will it last before > something else happens. I really should be more > positive, but ever time I am, something else > happens. So my standard answer to when someone ask > me how I'm feeling, I usually say ok, and just drop > it at that. This way I really don't have to explain > the great days and the kind of bad days too. I know > when I getting over a bad spell, I really don't like > my husband asking me all the time how I'm feeling, > because I really don't what to think about it. So > he get the standard or generic answer that I'm ok. > Does this make any sense to you? I hope you are > feeling better now and it was just a passing bad > night of pain, and nothing more serious. I'm up > tonight, as I can't sleep. The pain isn't really > that bad, more or less annoying more than anything > else. I just don't feel quite right, I just think > you could say I feel icky, if you know what I mean. > Take Care, > Louie in WV I forgot to knock on wood > > > > Good Morning Everyone, > > I hope this finds everyone as pain free as > possible for the day. Iwas awakened at 3:30 am by > thunderstorms and (I can't remember who called it > this but) " Pain from the sky. " I guess I tooted my > own horn too loudly yesterday and didn't knock on > wood when I said I was feeling better... Darn silly > me! > > Why is it just when we can finally tell everyone > " Oh, I feel Much better today. " This crap always > manages to come back in spades? Maybe its just the > Monday/Tuesday blahs? I don't know but I am sure > beginning to hate anticipating the next wave. > > I have been talking to my sister in law about the > surgery (she had it too) and she and I have come up > with a plan of action. We are going to go to > support group together and we are going to exercise > together too, I hate going to the gym by myself and > so does she, and she lives out in the country so we > can walk out there (can't do it here, might get > mugged or worse) I'm glad my brother found her... > Shes going to be good for him I think. She is still > cheating on her diet, but is still losing pounds so > I guess she is ok. The doc told me I wouldn't be > able to cheat much between the surgery and the CP. > (Probably a good thing, even though I don't cheat > too often now.) > > I did find something though that I can tolerate > that is in a candy bar form, its the Body Smarts > ccandy bars. They kind of taste funny but they curb > the sugar pang and they have vitamins and protien in > them, something I know I don't get enough of. They > don't have a lot of fat in them, but they do have > some, not enough to make me sick though, I had one > on Saturday and another on Sunday... and I didn't > even get pain after eating them. Surprise!! (I > like those little surprises everyonce in a while, > lol.) > > Well, I took my pain meds, and got the boys off to > school, so I think I am going to go lay back down > for a little while. Hopefully things will start > feeling better soon. > > {{{HUGZ}}} > > > > PS... , I take Creon and have never had any > weird side effects or anything with it... comes in a > capsule form though and I don't open them. > {{{HUGZ}}} D > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 Hey folks, I can say many dittos to that. My pain has seemed to morph itself in so many ways. Isn't it just the most God awful feeling to suddenly notice that you feel good and then like being hit with a bolt of lightning with the pain and nausea that no one can explain. I got my most recent CT scan and blood test results, not long ago, and my doctor says that my chart looks excellent copared to where I was a a year ago, yet I don't feel any better. In fact, many times I feel worse. I thank God I have a doctor that goes beyond what the chart says and realizes that my pain is real even though he can't explain it from a medical stand point. I do my best to take good care of myself and my blood work shows it; will my body ever damn well get itself in line with my chart. I'm seeing a GI specialist next Tuesday. I'm not going to ask him for any scripts, I'll let my Internest do that. I do however want him to order an MCRP. There's something missing here, a concrete cause for my pain. I haven't posted much lately because it all gets so overwhelming at times; it's all I can do to get through day-to-day. I hope most of you are having a fairly painless day. Your Friend, Mark --- edhall ehall@...> wrote: > , > I know exactly what you mean when you say for > feeling better and then all of a sudden the bottom > falls out. I get to place sometimes when I'm really > feeling good, I almost afraid to tell anyone, > because I'm almost afraid that I will jinx thinks > and the bottom will fall out again. It's like ok, > I feel better now, how long will it last before > something else happens. I really should be more > positive, but ever time I am, something else > happens. So my standard answer to when someone ask > me how I'm feeling, I usually say ok, and just drop > it at that. This way I really don't have to explain > the great days and the kind of bad days too. I know > when I getting over a bad spell, I really don't like > my husband asking me all the time how I'm feeling, > because I really don't what to think about it. So > he get the standard or generic answer that I'm ok. > Does this make any sense to you? I hope you are > feeling better now and it was just a passing bad > night of pain, and nothing more serious. I'm up > tonight, as I can't sleep. The pain isn't really > that bad, more or less annoying more than anything > else. I just don't feel quite right, I just think > you could say I feel icky, if you know what I mean. > Take Care, > Louie in WV I forgot to knock on wood > > > > Good Morning Everyone, > > I hope this finds everyone as pain free as > possible for the day. Iwas awakened at 3:30 am by > thunderstorms and (I can't remember who called it > this but) " Pain from the sky. " I guess I tooted my > own horn too loudly yesterday and didn't knock on > wood when I said I was feeling better... Darn silly > me! > > Why is it just when we can finally tell everyone > " Oh, I feel Much better today. " This crap always > manages to come back in spades? Maybe its just the > Monday/Tuesday blahs? I don't know but I am sure > beginning to hate anticipating the next wave. > > I have been talking to my sister in law about the > surgery (she had it too) and she and I have come up > with a plan of action. We are going to go to > support group together and we are going to exercise > together too, I hate going to the gym by myself and > so does she, and she lives out in the country so we > can walk out there (can't do it here, might get > mugged or worse) I'm glad my brother found her... > Shes going to be good for him I think. She is still > cheating on her diet, but is still losing pounds so > I guess she is ok. The doc told me I wouldn't be > able to cheat much between the surgery and the CP. > (Probably a good thing, even though I don't cheat > too often now.) > > I did find something though that I can tolerate > that is in a candy bar form, its the Body Smarts > ccandy bars. They kind of taste funny but they curb > the sugar pang and they have vitamins and protien in > them, something I know I don't get enough of. They > don't have a lot of fat in them, but they do have > some, not enough to make me sick though, I had one > on Saturday and another on Sunday... and I didn't > even get pain after eating them. Surprise!! (I > like those little surprises everyonce in a while, > lol.) > > Well, I took my pain meds, and got the boys off to > school, so I think I am going to go lay back down > for a little while. Hopefully things will start > feeling better soon. > > {{{HUGZ}}} > > > > PS... , I take Creon and have never had any > weird side effects or anything with it... comes in a > capsule form though and I don't open them. > {{{HUGZ}}} D > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 Hey folks, I can say many dittos to that. My pain has seemed to morph itself in so many ways. Isn't it just the most God awful feeling to suddenly notice that you feel good and then like being hit with a bolt of lightning with the pain and nausea that no one can explain. I got my most recent CT scan and blood test results, not long ago, and my doctor says that my chart looks excellent copared to where I was a a year ago, yet I don't feel any better. In fact, many times I feel worse. I thank God I have a doctor that goes beyond what the chart says and realizes that my pain is real even though he can't explain it from a medical stand point. I do my best to take good care of myself and my blood work shows it; will my body ever damn well get itself in line with my chart. I'm seeing a GI specialist next Tuesday. I'm not going to ask him for any scripts, I'll let my Internest do that. I do however want him to order an MCRP. There's something missing here, a concrete cause for my pain. I haven't posted much lately because it all gets so overwhelming at times; it's all I can do to get through day-to-day. I hope most of you are having a fairly painless day. Your Friend, Mark --- edhall ehall@...> wrote: > , > I know exactly what you mean when you say for > feeling better and then all of a sudden the bottom > falls out. I get to place sometimes when I'm really > feeling good, I almost afraid to tell anyone, > because I'm almost afraid that I will jinx thinks > and the bottom will fall out again. It's like ok, > I feel better now, how long will it last before > something else happens. I really should be more > positive, but ever time I am, something else > happens. So my standard answer to when someone ask > me how I'm feeling, I usually say ok, and just drop > it at that. This way I really don't have to explain > the great days and the kind of bad days too. I know > when I getting over a bad spell, I really don't like > my husband asking me all the time how I'm feeling, > because I really don't what to think about it. So > he get the standard or generic answer that I'm ok. > Does this make any sense to you? I hope you are > feeling better now and it was just a passing bad > night of pain, and nothing more serious. I'm up > tonight, as I can't sleep. The pain isn't really > that bad, more or less annoying more than anything > else. I just don't feel quite right, I just think > you could say I feel icky, if you know what I mean. > Take Care, > Louie in WV I forgot to knock on wood > > > > Good Morning Everyone, > > I hope this finds everyone as pain free as > possible for the day. Iwas awakened at 3:30 am by > thunderstorms and (I can't remember who called it > this but) " Pain from the sky. " I guess I tooted my > own horn too loudly yesterday and didn't knock on > wood when I said I was feeling better... Darn silly > me! > > Why is it just when we can finally tell everyone > " Oh, I feel Much better today. " This crap always > manages to come back in spades? Maybe its just the > Monday/Tuesday blahs? I don't know but I am sure > beginning to hate anticipating the next wave. > > I have been talking to my sister in law about the > surgery (she had it too) and she and I have come up > with a plan of action. We are going to go to > support group together and we are going to exercise > together too, I hate going to the gym by myself and > so does she, and she lives out in the country so we > can walk out there (can't do it here, might get > mugged or worse) I'm glad my brother found her... > Shes going to be good for him I think. She is still > cheating on her diet, but is still losing pounds so > I guess she is ok. The doc told me I wouldn't be > able to cheat much between the surgery and the CP. > (Probably a good thing, even though I don't cheat > too often now.) > > I did find something though that I can tolerate > that is in a candy bar form, its the Body Smarts > ccandy bars. They kind of taste funny but they curb > the sugar pang and they have vitamins and protien in > them, something I know I don't get enough of. They > don't have a lot of fat in them, but they do have > some, not enough to make me sick though, I had one > on Saturday and another on Sunday... and I didn't > even get pain after eating them. Surprise!! (I > like those little surprises everyonce in a while, > lol.) > > Well, I took my pain meds, and got the boys off to > school, so I think I am going to go lay back down > for a little while. Hopefully things will start > feeling better soon. > > {{{HUGZ}}} > > > > PS... , I take Creon and have never had any > weird side effects or anything with it... comes in a > capsule form though and I don't open them. > {{{HUGZ}}} D > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
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