Re: People's Know it all Attitude

[Guest guest]

meant for the group.

This is a forwarded message

To: rosacea-support-owner

Date: Sunday, April 28, 2002, 1:14:44 PM

Subject: People's Know it all Attitude

===8<==============Original message text===============

I don't think there is anything necessarily wrong with " getting the

third degree. " That's what science and research is all about:

asking questions, getting answers, asking more questions, then

getting more answers then coming to conclusions based on those

answers. If anything, I am rather impressed by the treatment of

Mike's claims because it clearly shows that we have a group of

critical thinking people on this group like Dr. Marjory and double-

oh who are actually actively curious about the affects and

ingredients of Gold Bond.

I really don't think anyone is showing or has shown ill-will towards

Mike based on his suggestion of using Gold Bond -- on the contrary

many of us are thankful to him. Naturally, I am also happy that he

has found something that has helped his condition and that he can

finally lead a more normal life. But I think Mike kind of over-

reacts and becomes defensive when some people show a bit of

skepticism based on Gold Bond's ingredients (it contains menthol,

which has been known to irritate rosacea skin, and petrolatum, which

is widely thought to be comedogenic). Mike is somewhat " thin-

skinned " (excuse the pun) and it _seems_ like we are jumping down is

throat. But we're really not, we are just very cautious, curious,

and might I say -- excited?

Ann, you know as well as I that our condition is not akin to a boil

on the buttocks, where we can just apply different topicals willy-

nilly, cross our fingers and hope it works. It's on the sensitive

skin of our faces out where everyone can see and I don't know about

you, but I have been " burned " (literally) more than once after

haphazardly putting something on my face that was a tad too

disagreeable. So after ruining my face a few times, I now tend to

show a great degree of caution and curiousity. Plus with a product

like Gold Bond which contains somewhat precarious ingredients, I

sprinkle in a dose of skepticism about how effective it will be for

me, because like I've said: I've been burned before.

You said it yourself Ann, we are all different and what may be a

miracle for one person, might be a curse for others, so many of us

have learned (the hard way) that we need to research and be wary

about the things we put on our faces.

With all that said, I gotta say, after reading the successes of some

of the people on this group, I am considering trying it out on a

test area to see what happens. I hope it turns out ok

> It has become ridiculous the way people are behaving in this

group.

> Why can't someone just post with what has helped them without

getting

> the third degree? People are just trying to help others. What is

the

> crime in that? If you notice, we have lost so many people recently

> and I know it is because of this. A few years ago, people used to

say

> all the time what was helping them and others would say " Thank

you. "

>

> We are all different and some will have better results than

others.

> The point is that people are just letting people know what has

worked

> for them. They are doing this out of the goodness of their hearts.

> Stop treating them as if they are deliberately trying to hurt you.

>

> I can't understand how anyone still comes on and says what has

worked

> for them. They have to prepare for the ambush.

>

> I have had incredible success over the last month with something

> suggested on here. I am getting back my eyelashes for the first

time

> in 6 years. I SO appreciate learning about it here. Same with

> photoderm. I had never even heard of it until Dr. Nase told us

about

> it here. I, for one, don't want people to stop posting their ideas.

>

> If Gold Bond has worked for even one person, then that's great. I

> have never seen such an attack on a person as has been going on

for

> months over Gold Bond. I'm sure Mike could never have imagined the

> day he posted that this worked for him that he would be defending

> himself months later. Utterly ridiculous.

>

> I thank all of you for all of your ideas over the years.

>

> Ann

===8<===========End of original message text===========

[Guest guest]

meant for the group.

This is a forwarded message

To: rosacea-support-owner

Date: Sunday, April 28, 2002, 1:14:44 PM

Subject: People's Know it all Attitude

===8<==============Original message text===============

I don't think there is anything necessarily wrong with " getting the

third degree. " That's what science and research is all about:

asking questions, getting answers, asking more questions, then

getting more answers then coming to conclusions based on those

answers. If anything, I am rather impressed by the treatment of

Mike's claims because it clearly shows that we have a group of

critical thinking people on this group like Dr. Marjory and double-

oh who are actually actively curious about the affects and

ingredients of Gold Bond.

I really don't think anyone is showing or has shown ill-will towards

Mike based on his suggestion of using Gold Bond -- on the contrary

many of us are thankful to him. Naturally, I am also happy that he

has found something that has helped his condition and that he can

finally lead a more normal life. But I think Mike kind of over-

reacts and becomes defensive when some people show a bit of

skepticism based on Gold Bond's ingredients (it contains menthol,

which has been known to irritate rosacea skin, and petrolatum, which

is widely thought to be comedogenic). Mike is somewhat " thin-

skinned " (excuse the pun) and it _seems_ like we are jumping down is

throat. But we're really not, we are just very cautious, curious,

and might I say -- excited?

Ann, you know as well as I that our condition is not akin to a boil

on the buttocks, where we can just apply different topicals willy-

nilly, cross our fingers and hope it works. It's on the sensitive

skin of our faces out where everyone can see and I don't know about

you, but I have been " burned " (literally) more than once after

haphazardly putting something on my face that was a tad too

disagreeable. So after ruining my face a few times, I now tend to

show a great degree of caution and curiousity. Plus with a product

like Gold Bond which contains somewhat precarious ingredients, I

sprinkle in a dose of skepticism about how effective it will be for

me, because like I've said: I've been burned before.

You said it yourself Ann, we are all different and what may be a

miracle for one person, might be a curse for others, so many of us

have learned (the hard way) that we need to research and be wary

about the things we put on our faces.

With all that said, I gotta say, after reading the successes of some

of the people on this group, I am considering trying it out on a

test area to see what happens. I hope it turns out ok

> It has become ridiculous the way people are behaving in this

group.

> Why can't someone just post with what has helped them without

getting

> the third degree? People are just trying to help others. What is

the

> crime in that? If you notice, we have lost so many people recently

> and I know it is because of this. A few years ago, people used to

say

> all the time what was helping them and others would say " Thank

you. "

>

> We are all different and some will have better results than

others.

> The point is that people are just letting people know what has

worked

> for them. They are doing this out of the goodness of their hearts.

> Stop treating them as if they are deliberately trying to hurt you.

>

> I can't understand how anyone still comes on and says what has

worked

> for them. They have to prepare for the ambush.

>

> I have had incredible success over the last month with something

> suggested on here. I am getting back my eyelashes for the first

time

> in 6 years. I SO appreciate learning about it here. Same with

> photoderm. I had never even heard of it until Dr. Nase told us

about

> it here. I, for one, don't want people to stop posting their ideas.

>

> If Gold Bond has worked for even one person, then that's great. I

> have never seen such an attack on a person as has been going on

for

> months over Gold Bond. I'm sure Mike could never have imagined the

> day he posted that this worked for him that he would be defending

> himself months later. Utterly ridiculous.

>

> I thank all of you for all of your ideas over the years.

>

> Ann

===8<===========End of original message text===========

[Guest guest]

I am in total agreement that people should be able to state what has helped

them without being attacked. For example, Accutane has undergone many

" attacks " , but it is the best treatment that I have undergone so far! I have

talked to others on here too that it has helped immensely. It may work for

some and not for others. We are all different...just like many other

remedies that have been tried. I LOVE to hear ALL ideas about what has

worked for people!!! Keep them coming in--no matter what some may say. We

are ALL still looking for a cure and for some relief; otherwise, we wouldn't

be on here!

Speaking of Accutane---quick question---what is the difference between

Roaccutane and Accutane? I have seen both names on here, and I was wondering

if they are the same product. Thanks...to everyone!!!!

[Guest guest]

TurtleDiary2@... writes:

< < It has become ridiculous the way people are behaving in this group. Why

can't someone just post with what has helped them without getting the third

degree? People are just trying to help others. What is the crime in that? If

you notice, we have lost so many people recently and I know it is because of

this. A few years ago, people used to say all the time what was helping them

and others would say " Thank you. "

We are all different and some will have better results than others. The point

is that people are just letting people know what has worked for them. They

are doing this out of the goodness of their hearts. Stop treating them as if

they are deliberately trying to hurt you.

I can't understand how anyone still comes on and says what has worked for

them. They have to prepare for the ambush. > >

I miss the good old days, too - thanks for putting that into words! So much

I have gotten from this group in the last 3 years or so has worked for me

that I am usually " clear " these days. Not everything mentioned that I tried

was appropriate for my use, but that was OK - I was happy to have input and

at least some measure of control over my situation. Mostly, I was happy that

someone was giving me hope. That is what this group gave me that made the

biggest difference in my life. So, I thank everybody for their help and ideas

over the years, too. Jackie

[Guest guest]

TurtleDiary2@... writes:

< < It has become ridiculous the way people are behaving in this group. Why

can't someone just post with what has helped them without getting the third

degree? People are just trying to help others. What is the crime in that? If

you notice, we have lost so many people recently and I know it is because of

this. A few years ago, people used to say all the time what was helping them

and others would say " Thank you. "

We are all different and some will have better results than others. The point

is that people are just letting people know what has worked for them. They

are doing this out of the goodness of their hearts. Stop treating them as if

they are deliberately trying to hurt you.

I can't understand how anyone still comes on and says what has worked for

them. They have to prepare for the ambush. > >

I miss the good old days, too - thanks for putting that into words! So much

I have gotten from this group in the last 3 years or so has worked for me

that I am usually " clear " these days. Not everything mentioned that I tried

was appropriate for my use, but that was OK - I was happy to have input and

at least some measure of control over my situation. Mostly, I was happy that

someone was giving me hope. That is what this group gave me that made the

biggest difference in my life. So, I thank everybody for their help and ideas

over the years, too. Jackie

[Guest guest]

TurtleDiary2@... writes:

< < It has become ridiculous the way people are behaving in this group. Why

can't someone just post with what has helped them without getting the third

degree? People are just trying to help others. What is the crime in that? If

you notice, we have lost so many people recently and I know it is because of

this. A few years ago, people used to say all the time what was helping them

and others would say " Thank you. "

We are all different and some will have better results than others. The point

is that people are just letting people know what has worked for them. They

are doing this out of the goodness of their hearts. Stop treating them as if

they are deliberately trying to hurt you.

I can't understand how anyone still comes on and says what has worked for

them. They have to prepare for the ambush. > >

I miss the good old days, too - thanks for putting that into words! So much

I have gotten from this group in the last 3 years or so has worked for me

that I am usually " clear " these days. Not everything mentioned that I tried

was appropriate for my use, but that was OK - I was happy to have input and

at least some measure of control over my situation. Mostly, I was happy that

someone was giving me hope. That is what this group gave me that made the

biggest difference in my life. So, I thank everybody for their help and ideas

over the years, too. Jackie

[Guest guest]

> Speaking of Accutane---quick question---what is the difference

between

> Roaccutane and Accutane? I have seen both names on here, and I was

wondering

> if they are the same product. Thanks...to everyone!!!!

, the active ingredient is the same -- isotretinoin, but the

inactive ingredients (vehicles) and other features typically differ

from product to product. Roaccutane is one of many formulations

distributed and used in other countries, but not from what I know

here in the US.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

> Speaking of Accutane---quick question---what is the difference

between

> Roaccutane and Accutane? I have seen both names on here, and I was

wondering

> if they are the same product. Thanks...to everyone!!!!

, the active ingredient is the same -- isotretinoin, but the

inactive ingredients (vehicles) and other features typically differ

from product to product. Roaccutane is one of many formulations

distributed and used in other countries, but not from what I know

here in the US.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

> Speaking of Accutane---quick question---what is the difference

between

> Roaccutane and Accutane? I have seen both names on here, and I was

wondering

> if they are the same product. Thanks...to everyone!!!!

, the active ingredient is the same -- isotretinoin, but the

inactive ingredients (vehicles) and other features typically differ

from product to product. Roaccutane is one of many formulations

distributed and used in other countries, but not from what I know

here in the US.

Marjorie

Marjorie Lazoff, MD