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Bev,

I wish you a safe trip and pray that is on the road to recovery

very soon.

(Australia)

BEV OUT OF TOWN. ERIN IS IN HOSPITAL

For those wishing to contact me, I will be out of town in N.C. ERIN

isn't

doing well & is being moved to the CF Center at Duke.She will go via

ambulance in the morning ,I will be leaving FL to go up & help at home

with

her sisters. She has been in local hospital for last over 2

weeks...........has had 2 surgeries & still no improvement. It all

started

with her appendix bursting . now ...still ---her bowels are " asleep' ..

If anyone has questions or requests from me------the pharmacy (about

orders,

refills, enrollment.PLEASE use the following email addy's.(since I

normally

do all of them & transfer, Please use these.below.....It will be easier

for

you & more direct:):)

OR call toll free 1- enrollment

1- pharmacy

PHARMACY.......phillipsh@... Spanish)/English too:):) and

davidh@... or

hooverd@...

(

ENROLLMENT...pearsonc@...

any other questions at all.... .ladams@...

I will keep you posted AND thank you for your prayers ...........

LOVE & HUGS,

GrandmomBEV

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  • 1 month later...

THAT is too funny..Noises like that do the same thing to one of my

daughters. When we camped so much when they were all younger , Patti used to

always want to sleep with one of her sisters .she said the crickets,

whatever were going to come into our trailer. Your saying that brought back

a whole lot of fun (for the rest of us) memories. She is still kidded about

that to day, even by her 3 sons (14, 18, 19yrs old).....But she loved all

else in camping .hahahehe

have a great week with that precious family!!

LOVE & HUGS, GRDMBEV

HP & Chamber of Secrets

Well, this post is completely un-CF related, but what the hey!

I'm after some input from people who've seen " Chamber of Secrets " . I

have

given Sian a provisional - " You can go see the movie after you finish

reading the book " . At the ripe old age of 6, she's half way through

chapter

seven. (She reads it when she's doing her nebs). Anyway, any opinions

on

whether it's too dark for a highly imaginative six year old?

Much love,

-

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia-

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THAT is too funny..Noises like that do the same thing to one of my

daughters. When we camped so much when they were all younger , Patti used to

always want to sleep with one of her sisters .she said the crickets,

whatever were going to come into our trailer. Your saying that brought back

a whole lot of fun (for the rest of us) memories. She is still kidded about

that to day, even by her 3 sons (14, 18, 19yrs old).....But she loved all

else in camping .hahahehe

have a great week with that precious family!!

LOVE & HUGS, GRDMBEV

HP & Chamber of Secrets

Well, this post is completely un-CF related, but what the hey!

I'm after some input from people who've seen " Chamber of Secrets " . I

have

given Sian a provisional - " You can go see the movie after you finish

reading the book " . At the ripe old age of 6, she's half way through

chapter

seven. (She reads it when she's doing her nebs). Anyway, any opinions

on

whether it's too dark for a highly imaginative six year old?

Much love,

-

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia-

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THAT is too funny..Noises like that do the same thing to one of my

daughters. When we camped so much when they were all younger , Patti used to

always want to sleep with one of her sisters .she said the crickets,

whatever were going to come into our trailer. Your saying that brought back

a whole lot of fun (for the rest of us) memories. She is still kidded about

that to day, even by her 3 sons (14, 18, 19yrs old).....But she loved all

else in camping .hahahehe

have a great week with that precious family!!

LOVE & HUGS, GRDMBEV

HP & Chamber of Secrets

Well, this post is completely un-CF related, but what the hey!

I'm after some input from people who've seen " Chamber of Secrets " . I

have

given Sian a provisional - " You can go see the movie after you finish

reading the book " . At the ripe old age of 6, she's half way through

chapter

seven. (She reads it when she's doing her nebs). Anyway, any opinions

on

whether it's too dark for a highly imaginative six year old?

Much love,

-

Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD?

Canberra Australia-

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  • 3 weeks later...

Bev,

I laughed to when the vet told me. I gave him his antibiotics and

steroids this morning, inside a piece of chocolate so he took it well.

Its x-mas eve here now. The kids are still asleep, but will have to get

up soon as they go to my parents when I work. This is the first year in

13 x-mases that I'm not doing x-mas here, its at my sisters. I am so

looking forward to not having to do much. I've made all the kiddie type

food (sausage rolls, chocolate crackles, honey crackles etc.) Maybe

this year I'll have time to brush my hairLoL.

Have a lovely x-mas eve

BACK FROM HOLIDAYS

Hi everyone,

Were back from our week at the beach. We picked the perfect time to go.

Our state had a heat wave of more than 35c/100f for the time we were

away, Where we were it was mild weather. We had a lovely time. I'd

like to say relaxing, but I would need to leave the kids at home for

that to happen LoL. We swan, made sand castles, went horse riding etc.

There was carols by the sea on the last night we were there, so that was

nice. It is lovely to be home again though. I'm back at work tomorrow

and then the big fella is here. I can't wait till x-mas. I know I've

been a good girl so I better get something good!!!

took Eilish to the local casualty dept. (every holiday she ends up

in one. Were going to write a book about casualty depts. of Australia).

He lymph nodes on her right side of her groin were hard and swollen.

You could see them when she was standing naked. First thing I think of

is Cancer. They checked her feet and said she had a few scraps on them

so the infection is coming from there. Then today I had to take the dog

to the vet. He was limping and the padding of his right foot and on top

near his nails were raw. The vet said he had a small cut, and yep. his

lymph nodes were enlarged. He got a needle and Augmentin. Talk about a

pigeon pair!

Goodnight

(Australia)

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Bev,

I laughed to when the vet told me. I gave him his antibiotics and

steroids this morning, inside a piece of chocolate so he took it well.

Its x-mas eve here now. The kids are still asleep, but will have to get

up soon as they go to my parents when I work. This is the first year in

13 x-mases that I'm not doing x-mas here, its at my sisters. I am so

looking forward to not having to do much. I've made all the kiddie type

food (sausage rolls, chocolate crackles, honey crackles etc.) Maybe

this year I'll have time to brush my hairLoL.

Have a lovely x-mas eve

BACK FROM HOLIDAYS

Hi everyone,

Were back from our week at the beach. We picked the perfect time to go.

Our state had a heat wave of more than 35c/100f for the time we were

away, Where we were it was mild weather. We had a lovely time. I'd

like to say relaxing, but I would need to leave the kids at home for

that to happen LoL. We swan, made sand castles, went horse riding etc.

There was carols by the sea on the last night we were there, so that was

nice. It is lovely to be home again though. I'm back at work tomorrow

and then the big fella is here. I can't wait till x-mas. I know I've

been a good girl so I better get something good!!!

took Eilish to the local casualty dept. (every holiday she ends up

in one. Were going to write a book about casualty depts. of Australia).

He lymph nodes on her right side of her groin were hard and swollen.

You could see them when she was standing naked. First thing I think of

is Cancer. They checked her feet and said she had a few scraps on them

so the infection is coming from there. Then today I had to take the dog

to the vet. He was limping and the padding of his right foot and on top

near his nails were raw. The vet said he had a small cut, and yep. his

lymph nodes were enlarged. He got a needle and Augmentin. Talk about a

pigeon pair!

Goodnight

(Australia)

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I AM GLAD YOUR GETTING YOUR TURN AT " ATTENDING " THE CELEBRATION AS

OPPOSED TO " DOING " THE CELEBRATION. It is nice to attend. I did that

after I became the 10 times grandmom. & even now they come here to mine

on Christmas eve,,,,,,,,,,

You have a wonderfultime.You seem to always make the goodie stuff too. I

would really be soo fat near you.Such good things to eat Have a

BLAST!!!!

LOVE & HUGS,

Grandmombev

BACK FROM HOLIDAYS

Hi everyone,

Were back from our week at the beach. We picked the perfect time to go.

Our state had a heat wave of more than 35c/100f for the time we were

away, Where we were it was mild weather. We had a lovely time. I'd

like to say relaxing, but I would need to leave the kids at home for

that to happen LoL. We swan, made sand castles, went horse riding etc.

There was carols by the sea on the last night we were there, so that was

nice. It is lovely to be home again though. I'm back at work tomorrow

and then the big fella is here. I can't wait till x-mas. I know I've

been a good girl so I better get something good!!!

took Eilish to the local casualty dept. (every holiday she ends up

in one. Were going to write a book about casualty depts. of Australia).

He lymph nodes on her right side of her groin were hard and swollen. You

could see them when she was standing naked. First thing I think of is

Cancer. They checked her feet and said she had a few scraps on them so

the infection is coming from there. Then today I had to take the dog to

the vet. He was limping and the padding of his right foot and on top

near his nails were raw. The vet said he had a small cut, and yep. his

lymph nodes were enlarged. He got a needle and Augmentin. Talk about a

pigeon pair!

Goodnight

(Australia)

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I AM GLAD YOUR GETTING YOUR TURN AT " ATTENDING " THE CELEBRATION AS

OPPOSED TO " DOING " THE CELEBRATION. It is nice to attend. I did that

after I became the 10 times grandmom. & even now they come here to mine

on Christmas eve,,,,,,,,,,

You have a wonderfultime.You seem to always make the goodie stuff too. I

would really be soo fat near you.Such good things to eat Have a

BLAST!!!!

LOVE & HUGS,

Grandmombev

BACK FROM HOLIDAYS

Hi everyone,

Were back from our week at the beach. We picked the perfect time to go.

Our state had a heat wave of more than 35c/100f for the time we were

away, Where we were it was mild weather. We had a lovely time. I'd

like to say relaxing, but I would need to leave the kids at home for

that to happen LoL. We swan, made sand castles, went horse riding etc.

There was carols by the sea on the last night we were there, so that was

nice. It is lovely to be home again though. I'm back at work tomorrow

and then the big fella is here. I can't wait till x-mas. I know I've

been a good girl so I better get something good!!!

took Eilish to the local casualty dept. (every holiday she ends up

in one. Were going to write a book about casualty depts. of Australia).

He lymph nodes on her right side of her groin were hard and swollen. You

could see them when she was standing naked. First thing I think of is

Cancer. They checked her feet and said she had a few scraps on them so

the infection is coming from there. Then today I had to take the dog to

the vet. He was limping and the padding of his right foot and on top

near his nails were raw. The vet said he had a small cut, and yep. his

lymph nodes were enlarged. He got a needle and Augmentin. Talk about a

pigeon pair!

Goodnight

(Australia)

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I AM GLAD YOUR GETTING YOUR TURN AT " ATTENDING " THE CELEBRATION AS

OPPOSED TO " DOING " THE CELEBRATION. It is nice to attend. I did that

after I became the 10 times grandmom. & even now they come here to mine

on Christmas eve,,,,,,,,,,

You have a wonderfultime.You seem to always make the goodie stuff too. I

would really be soo fat near you.Such good things to eat Have a

BLAST!!!!

LOVE & HUGS,

Grandmombev

BACK FROM HOLIDAYS

Hi everyone,

Were back from our week at the beach. We picked the perfect time to go.

Our state had a heat wave of more than 35c/100f for the time we were

away, Where we were it was mild weather. We had a lovely time. I'd

like to say relaxing, but I would need to leave the kids at home for

that to happen LoL. We swan, made sand castles, went horse riding etc.

There was carols by the sea on the last night we were there, so that was

nice. It is lovely to be home again though. I'm back at work tomorrow

and then the big fella is here. I can't wait till x-mas. I know I've

been a good girl so I better get something good!!!

took Eilish to the local casualty dept. (every holiday she ends up

in one. Were going to write a book about casualty depts. of Australia).

He lymph nodes on her right side of her groin were hard and swollen. You

could see them when she was standing naked. First thing I think of is

Cancer. They checked her feet and said she had a few scraps on them so

the infection is coming from there. Then today I had to take the dog to

the vet. He was limping and the padding of his right foot and on top

near his nails were raw. The vet said he had a small cut, and yep. his

lymph nodes were enlarged. He got a needle and Augmentin. Talk about a

pigeon pair!

Goodnight

(Australia)

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  • 2 weeks later...

Thank you so much for sending the info out about schooling and CF to me, much

appreiciated.

from New Zealand mum to one cute boy who is wrapping mummy and daddy

around his finger!!!

LIAM REFLUX CURE!!!

Well I have found out what the problem was. I stoped the micell A and E and

we now have no more silent reflux. I did this for 3 weeks and his feeding

gradually improved. Yesterday I reintroduced the micell Vit E and O MY GOD

I had one hell of a night.

12:00 at night in the car friving around to get Liam asleep

1:00 am asleep

2:00 am awake wants a feed, starts screaming again, had to try to feed him

back to sleep, moved him back to bed, screaming again

3:00 am in bed

4:30 am crying again, wants a feed. Started screaming again, had to try to

feed back to sleep

5:45 am in bed again. SOOOOOOOO tired

8:30 am woke again and as the day went on he improved

man o man we were shattered and so was Liam, what a night

NEVER AGAIN!! no more of that terrible micell Vitamin E I think he is

totally allergic to it, it causes major stomach trouble, maybe its heartburn

We dont need to use the Zantac anymore either because he dosent even have

reflux it was all the vitamins fault!!!!!

So now I will have to give Liam noraml vitamin E and A and not the water

soluble ones, we will see how that goes.

I may be game enough to try another brand of these micell Vitamins but I

certinally cannot handle more nights like that terrible night.

To make thinkgs worse it was my birthday the day after and we were ment to

go out for dinner, like that was gonna happen!!! We went to bed instead.

Anyway hope everyone had a great christmas and new year.

We stayed at home for new years, first time ever, much changes when you have

a baby dosent it??!!!!

Life is never the same

mum to Liam 4 1/2 months wcf and wife to a wonderful hubby

PS. I passed my exams 82.5%!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I WAS VERY HAPPY

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Thank you so much for sending the info out about schooling and CF to me, much

appreiciated.

from New Zealand mum to one cute boy who is wrapping mummy and daddy

around his finger!!!

LIAM REFLUX CURE!!!

Well I have found out what the problem was. I stoped the micell A and E and

we now have no more silent reflux. I did this for 3 weeks and his feeding

gradually improved. Yesterday I reintroduced the micell Vit E and O MY GOD

I had one hell of a night.

12:00 at night in the car friving around to get Liam asleep

1:00 am asleep

2:00 am awake wants a feed, starts screaming again, had to try to feed him

back to sleep, moved him back to bed, screaming again

3:00 am in bed

4:30 am crying again, wants a feed. Started screaming again, had to try to

feed back to sleep

5:45 am in bed again. SOOOOOOOO tired

8:30 am woke again and as the day went on he improved

man o man we were shattered and so was Liam, what a night

NEVER AGAIN!! no more of that terrible micell Vitamin E I think he is

totally allergic to it, it causes major stomach trouble, maybe its heartburn

We dont need to use the Zantac anymore either because he dosent even have

reflux it was all the vitamins fault!!!!!

So now I will have to give Liam noraml vitamin E and A and not the water

soluble ones, we will see how that goes.

I may be game enough to try another brand of these micell Vitamins but I

certinally cannot handle more nights like that terrible night.

To make thinkgs worse it was my birthday the day after and we were ment to

go out for dinner, like that was gonna happen!!! We went to bed instead.

Anyway hope everyone had a great christmas and new year.

We stayed at home for new years, first time ever, much changes when you have

a baby dosent it??!!!!

Life is never the same

mum to Liam 4 1/2 months wcf and wife to a wonderful hubby

PS. I passed my exams 82.5%!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I WAS VERY HAPPY

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Share on other sites

Thank you so much for sending the info out about schooling and CF to me, much

appreiciated.

from New Zealand mum to one cute boy who is wrapping mummy and daddy

around his finger!!!

LIAM REFLUX CURE!!!

Well I have found out what the problem was. I stoped the micell A and E and

we now have no more silent reflux. I did this for 3 weeks and his feeding

gradually improved. Yesterday I reintroduced the micell Vit E and O MY GOD

I had one hell of a night.

12:00 at night in the car friving around to get Liam asleep

1:00 am asleep

2:00 am awake wants a feed, starts screaming again, had to try to feed him

back to sleep, moved him back to bed, screaming again

3:00 am in bed

4:30 am crying again, wants a feed. Started screaming again, had to try to

feed back to sleep

5:45 am in bed again. SOOOOOOOO tired

8:30 am woke again and as the day went on he improved

man o man we were shattered and so was Liam, what a night

NEVER AGAIN!! no more of that terrible micell Vitamin E I think he is

totally allergic to it, it causes major stomach trouble, maybe its heartburn

We dont need to use the Zantac anymore either because he dosent even have

reflux it was all the vitamins fault!!!!!

So now I will have to give Liam noraml vitamin E and A and not the water

soluble ones, we will see how that goes.

I may be game enough to try another brand of these micell Vitamins but I

certinally cannot handle more nights like that terrible night.

To make thinkgs worse it was my birthday the day after and we were ment to

go out for dinner, like that was gonna happen!!! We went to bed instead.

Anyway hope everyone had a great christmas and new year.

We stayed at home for new years, first time ever, much changes when you have

a baby dosent it??!!!!

Life is never the same

mum to Liam 4 1/2 months wcf and wife to a wonderful hubby

PS. I passed my exams 82.5%!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I WAS VERY HAPPY

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glad you got it .enjoy. Best wishes for 2003

love & hugs,

grandmombev

Re: BEV

Thank you so much for sending the info out about schooling and CF to me,

much appreiciated.

from New Zealand mum to one cute boy who is wrapping mummy and daddy

around his finger!!!

LIAM REFLUX CURE!!!

Well I have found out what the problem was. I stoped the micell A and E

and

we now have no more silent reflux. I did this for 3 weeks and his feeding

gradually improved. Yesterday I reintroduced the micell Vit E and O MY

GOD

I had one hell of a night.

12:00 at night in the car friving around to get Liam asleep

1:00 am asleep

2:00 am awake wants a feed, starts screaming again, had to try to feed him

back to sleep, moved him back to bed, screaming again

3:00 am in bed

4:30 am crying again, wants a feed. Started screaming again, had to try

to

feed back to sleep

5:45 am in bed again. SOOOOOOOO tired

8:30 am woke again and as the day went on he improved

man o man we were shattered and so was Liam, what a night

NEVER AGAIN!! no more of that terrible micell Vitamin E I think he is

totally allergic to it, it causes major stomach trouble, maybe its

heartburn

We dont need to use the Zantac anymore either because he dosent even have

reflux it was all the vitamins fault!!!!!

So now I will have to give Liam noraml vitamin E and A and not the water

soluble ones, we will see how that goes.

I may be game enough to try another brand of these micell Vitamins but I

certinally cannot handle more nights like that terrible night.

To make thinkgs worse it was my birthday the day after and we were ment to

go out for dinner, like that was gonna happen!!! We went to bed instead.

Anyway hope everyone had a great christmas and new year.

We stayed at home for new years, first time ever, much changes when you

have

a baby dosent it??!!!!

Life is never the same

mum to Liam 4 1/2 months wcf and wife to a wonderful hubby

PS. I passed my exams 82.5%!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I WAS VERY HAPPY

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Share on other sites

glad you got it .enjoy. Best wishes for 2003

love & hugs,

grandmombev

Re: BEV

Thank you so much for sending the info out about schooling and CF to me,

much appreiciated.

from New Zealand mum to one cute boy who is wrapping mummy and daddy

around his finger!!!

LIAM REFLUX CURE!!!

Well I have found out what the problem was. I stoped the micell A and E

and

we now have no more silent reflux. I did this for 3 weeks and his feeding

gradually improved. Yesterday I reintroduced the micell Vit E and O MY

GOD

I had one hell of a night.

12:00 at night in the car friving around to get Liam asleep

1:00 am asleep

2:00 am awake wants a feed, starts screaming again, had to try to feed him

back to sleep, moved him back to bed, screaming again

3:00 am in bed

4:30 am crying again, wants a feed. Started screaming again, had to try

to

feed back to sleep

5:45 am in bed again. SOOOOOOOO tired

8:30 am woke again and as the day went on he improved

man o man we were shattered and so was Liam, what a night

NEVER AGAIN!! no more of that terrible micell Vitamin E I think he is

totally allergic to it, it causes major stomach trouble, maybe its

heartburn

We dont need to use the Zantac anymore either because he dosent even have

reflux it was all the vitamins fault!!!!!

So now I will have to give Liam noraml vitamin E and A and not the water

soluble ones, we will see how that goes.

I may be game enough to try another brand of these micell Vitamins but I

certinally cannot handle more nights like that terrible night.

To make thinkgs worse it was my birthday the day after and we were ment to

go out for dinner, like that was gonna happen!!! We went to bed instead.

Anyway hope everyone had a great christmas and new year.

We stayed at home for new years, first time ever, much changes when you

have

a baby dosent it??!!!!

Life is never the same

mum to Liam 4 1/2 months wcf and wife to a wonderful hubby

PS. I passed my exams 82.5%!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I WAS VERY HAPPY

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  • 2 weeks later...

Bev,

Eilish is also so active, even in the clinic she dances and climbs etc.

I think you cant have it both ways. You either have a chubbier in

active kids or a lean bean who tires you out looking at them.

PERFECT CLINIC VISIT

EILISH HAD HER CLINIC VISIT TODAY AND IT WAS SO GOOD. AT FIRST I WAS

DREADING IT AS I CANT STAND THE AWFUL DR. THAT WE HAD TO SEE AS HER DR.

WAS ON HOLIDAY. BUT TO MY SURPRISE SHE WAS OKAY. SHE STILL WAS SOUR

BUT FOR HER SHE WASN'T BAD. EILISH HAD TO DO HER VERY FIRST PFT'S .

THEY SENT HER UP TO PULMONARY MEDICINE. AT FIRST SHE WAS SCARED WITH

THE MACHINE (SHE THOUGHT SHE WAS GOING TO SLEEP). THEY SAID WITH HER

WEIGHT AND HEIGHT AND SEEING IT IS HER VERY FIRST TIME THEY WOULD EXPECT

HER TO BLOW BETWEEN 70-90, SHE BLEW 122!!!!. I WAS SO PROUD OF HER.

THE DR. SAID THAT A NON CF CHILD WOULD BE HARD PRESSED TO BLOW THAT. SO

OBVIOUSLY HER LUNGS ARE STILL A1. THEN WE WENT TO SEE THE GASTRO. HE

SAID SHE WAS A ATHLETIC BUILD WITH GREAT MUSCLE TONE AND WELL COVERED

(why does no-one say that about meLoL). HE SAID SHE WAS TALL AND HE

FELT THAT WAS HER BUILD AND JUST TO INCREASE HER ENZYMES BY 5 PER DAY

AND ADD A FEW MORE CALORIES IN HER MILKSHAKES. SO I WAS PLEASED. AND

WE DON'T HAVE TO GO BACK TILL 14TH APRIL. OH YEAH, SHE ALSO HAS TO

INCREASE HER FIBRE INTAKE.

JUST WANTED TO LET YOU ALL KNOW. I TOLD OTHER FRIENDS (NON CF) AND THEY

COULDN'T SEE HOW IMPORTANT IT WAS TO ME FOR HER TO BLOW WELL AND FOR THE

DR. TO TELL ME HER WEIGHT WAS FINE (sick of hearing people say she was

looking skinny). BUT I KNOW YOU GUYS HAVE OR ARE DOING THIS.

JULIE (Australia)

Liam 8 wocf & Eilish 5 wcf and the biggest wind bag.

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I think you have that right .Either way , we'll take 'em & love them

to pieces.:):).I think it is by allot what they inherit from families

too. We do have a lot of tall folks in my family...not all , but

many........I know your Elish is a doll . .

LOVE & HUGS, GRDMBEV

PERFECT CLINIC VISIT

EILISH HAD HER CLINIC VISIT TODAY AND IT WAS SO GOOD. AT FIRST I WAS

DREADING IT AS I CANT STAND THE AWFUL DR. THAT WE HAD TO SEE AS HER DR.

WAS ON HOLIDAY. BUT TO MY SURPRISE SHE WAS OKAY. SHE STILL WAS SOUR

BUT FOR HER SHE WASN'T BAD. EILISH HAD TO DO HER VERY FIRST PFT'S .

THEY SENT HER UP TO PULMONARY MEDICINE. AT FIRST SHE WAS SCARED WITH

THE MACHINE (SHE THOUGHT SHE WAS GOING TO SLEEP). THEY SAID WITH HER

WEIGHT AND HEIGHT AND SEEING IT IS HER VERY FIRST TIME THEY WOULD EXPECT

HER TO BLOW BETWEEN 70-90, SHE BLEW 122!!!!. I WAS SO PROUD OF HER. THE

DR. SAID THAT A NON CF CHILD WOULD BE HARD PRESSED TO BLOW THAT. SO

OBVIOUSLY HER LUNGS ARE STILL A1. THEN WE WENT TO SEE THE GASTRO. HE

SAID SHE WAS A ATHLETIC BUILD WITH GREAT MUSCLE TONE AND WELL COVERED

(why does no-one say that about meLoL). HE SAID SHE WAS TALL AND HE

FELT THAT WAS HER BUILD AND JUST TO INCREASE HER ENZYMES BY 5 PER DAY

AND ADD A FEW MORE CALORIES IN HER MILKSHAKES. SO I WAS PLEASED. AND

WE DON'T HAVE TO GO BACK TILL 14TH APRIL. OH YEAH, SHE ALSO HAS TO

INCREASE HER FIBRE INTAKE.

JUST WANTED TO LET YOU ALL KNOW. I TOLD OTHER FRIENDS (NON CF) AND THEY

COULDN'T SEE HOW IMPORTANT IT WAS TO ME FOR HER TO BLOW WELL AND FOR THE

DR. TO TELL ME HER WEIGHT WAS FINE (sick of hearing people say she was

looking skinny). BUT I KNOW YOU GUYS HAVE OR ARE DOING THIS.

JULIE (Australia)

Liam 8 wocf & Eilish 5 wcf and the biggest wind bag.

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I think you have that right .Either way , we'll take 'em & love them

to pieces.:):).I think it is by allot what they inherit from families

too. We do have a lot of tall folks in my family...not all , but

many........I know your Elish is a doll . .

LOVE & HUGS, GRDMBEV

PERFECT CLINIC VISIT

EILISH HAD HER CLINIC VISIT TODAY AND IT WAS SO GOOD. AT FIRST I WAS

DREADING IT AS I CANT STAND THE AWFUL DR. THAT WE HAD TO SEE AS HER DR.

WAS ON HOLIDAY. BUT TO MY SURPRISE SHE WAS OKAY. SHE STILL WAS SOUR

BUT FOR HER SHE WASN'T BAD. EILISH HAD TO DO HER VERY FIRST PFT'S .

THEY SENT HER UP TO PULMONARY MEDICINE. AT FIRST SHE WAS SCARED WITH

THE MACHINE (SHE THOUGHT SHE WAS GOING TO SLEEP). THEY SAID WITH HER

WEIGHT AND HEIGHT AND SEEING IT IS HER VERY FIRST TIME THEY WOULD EXPECT

HER TO BLOW BETWEEN 70-90, SHE BLEW 122!!!!. I WAS SO PROUD OF HER. THE

DR. SAID THAT A NON CF CHILD WOULD BE HARD PRESSED TO BLOW THAT. SO

OBVIOUSLY HER LUNGS ARE STILL A1. THEN WE WENT TO SEE THE GASTRO. HE

SAID SHE WAS A ATHLETIC BUILD WITH GREAT MUSCLE TONE AND WELL COVERED

(why does no-one say that about meLoL). HE SAID SHE WAS TALL AND HE

FELT THAT WAS HER BUILD AND JUST TO INCREASE HER ENZYMES BY 5 PER DAY

AND ADD A FEW MORE CALORIES IN HER MILKSHAKES. SO I WAS PLEASED. AND

WE DON'T HAVE TO GO BACK TILL 14TH APRIL. OH YEAH, SHE ALSO HAS TO

INCREASE HER FIBRE INTAKE.

JUST WANTED TO LET YOU ALL KNOW. I TOLD OTHER FRIENDS (NON CF) AND THEY

COULDN'T SEE HOW IMPORTANT IT WAS TO ME FOR HER TO BLOW WELL AND FOR THE

DR. TO TELL ME HER WEIGHT WAS FINE (sick of hearing people say she was

looking skinny). BUT I KNOW YOU GUYS HAVE OR ARE DOING THIS.

JULIE (Australia)

Liam 8 wocf & Eilish 5 wcf and the biggest wind bag.

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I think you have that right .Either way , we'll take 'em & love them

to pieces.:):).I think it is by allot what they inherit from families

too. We do have a lot of tall folks in my family...not all , but

many........I know your Elish is a doll . .

LOVE & HUGS, GRDMBEV

PERFECT CLINIC VISIT

EILISH HAD HER CLINIC VISIT TODAY AND IT WAS SO GOOD. AT FIRST I WAS

DREADING IT AS I CANT STAND THE AWFUL DR. THAT WE HAD TO SEE AS HER DR.

WAS ON HOLIDAY. BUT TO MY SURPRISE SHE WAS OKAY. SHE STILL WAS SOUR

BUT FOR HER SHE WASN'T BAD. EILISH HAD TO DO HER VERY FIRST PFT'S .

THEY SENT HER UP TO PULMONARY MEDICINE. AT FIRST SHE WAS SCARED WITH

THE MACHINE (SHE THOUGHT SHE WAS GOING TO SLEEP). THEY SAID WITH HER

WEIGHT AND HEIGHT AND SEEING IT IS HER VERY FIRST TIME THEY WOULD EXPECT

HER TO BLOW BETWEEN 70-90, SHE BLEW 122!!!!. I WAS SO PROUD OF HER. THE

DR. SAID THAT A NON CF CHILD WOULD BE HARD PRESSED TO BLOW THAT. SO

OBVIOUSLY HER LUNGS ARE STILL A1. THEN WE WENT TO SEE THE GASTRO. HE

SAID SHE WAS A ATHLETIC BUILD WITH GREAT MUSCLE TONE AND WELL COVERED

(why does no-one say that about meLoL). HE SAID SHE WAS TALL AND HE

FELT THAT WAS HER BUILD AND JUST TO INCREASE HER ENZYMES BY 5 PER DAY

AND ADD A FEW MORE CALORIES IN HER MILKSHAKES. SO I WAS PLEASED. AND

WE DON'T HAVE TO GO BACK TILL 14TH APRIL. OH YEAH, SHE ALSO HAS TO

INCREASE HER FIBRE INTAKE.

JUST WANTED TO LET YOU ALL KNOW. I TOLD OTHER FRIENDS (NON CF) AND THEY

COULDN'T SEE HOW IMPORTANT IT WAS TO ME FOR HER TO BLOW WELL AND FOR THE

DR. TO TELL ME HER WEIGHT WAS FINE (sick of hearing people say she was

looking skinny). BUT I KNOW YOU GUYS HAVE OR ARE DOING THIS.

JULIE (Australia)

Liam 8 wocf & Eilish 5 wcf and the biggest wind bag.

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