Guest guest Posted November 5, 2002 Report Share Posted November 5, 2002 Gidday > Thanks for the prayers and keep them coming. I'm far from out of the > woods with this. Mom is driving me batty with her insistance that I > eat when I'm nauseated and then being critical when I do eat..she had > a fit because I used tabasco sauce in my tuna salad>>> Now I would be very, very sure that if you have pancreatitis then most hot spices will attack the pancreas. I have given up them all, from chilli, cayenne pepper, curry right down to ginger as they all attack MY pancreas and are liable to put me in hosp. I can eat bulk garlic and onions OK, but none of the hot spices. If I were to have tobasco I would be rolling qround the floor in an hour and in a hosp within 2 hours! Regards Marmite! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 When we took Cassie to the Nutritionalist she had no idea what CP was. We had to wait 45 minutes for the Doctor in the Diabetis clinic to finish with a patient so he could explain it to her. She then pulled out a book, Copy write 1990, and read to us about what Cassie could and couldn't eat. I was told to limit her fat to 25%. Her GI told me no more then 20% and never todays in a row. She also told she could have one free meal a week of anything she wanted . That was my $145 nutritional consultation. My opinion of the amount of knowledge anyone who does not suffer from CP is nil. Patty in Bangor ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Yes, Bangor is in Maine (ME), Massachusetts is MA. Please don't get me wrong. I know there are people out there are knowledgeable on CP but just not here. When you chose to live in Maine you have to give up a few things. Unfortunately, one of them is access to the best and the latest medicine. Cassie has 2 GI's and her PCP that are great. Though they are not as knowledgeable as the Big City Dr.'s they don't have that God complex so may have They are more than willing to listen to the information I get once and have even tried a few things with her. It's they other people we end up dealing with along the way. That have no idea. I just love explaining to health care professionals CP in kids, what tests they should run and how to treat her pain. At times even telling them dosages. Hope that Gives you a good laugh. Try this one for a laugh, on top of all that Maine has one of the most expensive healthcare systems in the US. Patty In Bangor MAINE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 > Yes, Bangor is in Maine (ME), Massachusetts is MA. Please don't get me wrong. I know there are people out there are knowledgeable on CP but just not here. When you chose to live in Maine you have to give up a few things...Cassie's Dr.'s don't have that God complex...Patty In Bangor MAINE>>> Patty, Thanks for the clarification. You are well served by doctors without god complexes, it is important to hang onto doctors and all medical professionals who treat this a journey of partnership. With the partnership everyone has an equal voice and with respect. I have the utmost respect for a number of the doctors in my personal team, and they listen to me which means I will do anything that is decided. The best thing with my surgeon is that he gives me all the options and asks me what I want.. that is fabulous empowerment and for someone feeling less useful as a person everyday, it is the thing I need most! We all have tremendous rights in medical care, world wide, ad we are responsible for ensuring we make sure we get what we are entitled to! have a nice day in Maine, and everywhere! Marmite Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 > Yes, Bangor is in Maine (ME), Massachusetts is MA. Please don't get me wrong. I know there are people out there are knowledgeable on CP but just not here. When you chose to live in Maine you have to give up a few things...Cassie's Dr.'s don't have that God complex...Patty In Bangor MAINE>>> Patty, Thanks for the clarification. You are well served by doctors without god complexes, it is important to hang onto doctors and all medical professionals who treat this a journey of partnership. With the partnership everyone has an equal voice and with respect. I have the utmost respect for a number of the doctors in my personal team, and they listen to me which means I will do anything that is decided. The best thing with my surgeon is that he gives me all the options and asks me what I want.. that is fabulous empowerment and for someone feeling less useful as a person everyday, it is the thing I need most! We all have tremendous rights in medical care, world wide, ad we are responsible for ensuring we make sure we get what we are entitled to! have a nice day in Maine, and everywhere! Marmite Quote Link to comment Share on other sites More sharing options...
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