Re: Stopping By and an Update

[Guest guest]

I'll certainly agree with you about the number of people affected

with cea. I see it around here too. But I believe most of the

medical industry and the pharmaceutical companies feel that the

majority of patients are finding effective relief from Metrogel and

similar products. And from Antibiotics in more severe cases.

Did you hear the radio commercials about it some months back? They

were on the air often here in Los Angeles on the news stations. They

talked about how it was more common than people realized, but that it

was very easy to treat. " Just see your doctor for the prescription " .

They made it sound like there was really nothing to it.

I don't know, maybe the majority of patients out there really are

finding Metrogel to be effective. But obviously not the people here

in this Yahoo group. Until that perception changes, I doubt we'll see

much progress. They have to come to the realization that those

products are just not cutting it for people.

> One more thing...I would not give up hope for greater research for

> this condition leading to more effective treatments or even

possibly

> a cure. Sure, rosacea is not a life threatening condition, but it

> drastically impacts the quality of life for many of the 13 million

> sufferers in the US alone.

>

> I know there are many here who only consider this condition a minor

> nuisance, and these people should consider themselves blessed. They

> should also realize that the picture can change for them literally

> overnight, as it did for me and so many others.

>

> The instance of rosacea appears to be on the rise and already

affects

> many prominent people. (I can only tell you that, working in an

> office of only about 25 people, I've seen 6 others develop rosacea

in

> just the last year and a half.) This may well be due to

environmental

> changes, technological advances as well as all the garbage they put

> in the foods we buy. I would not be surprised to see the numbers

> grow dramatically and actually hope to see more prominent people

> impacted so they can lobby for change as they do for other causes.

I

> just wish people like Bill Clinton and Cameron would lend

their

> names to the cause.

>

> Anyway, I have to think that, just by virtue of the number of

> sufferers, the pharmaceutical companies would be looking for a

cure.

> Any company that develops a truly effective product will have

landed

> a true cash cow.

[Guest guest]

, Cameron has rosacea? Her skin looks great!

My opinion: I think there are two areas for real hope regarding

rosacea within the next 5-10 years: safe, effective, topical non-

steroidal anti-inflammatory agents for those with inflammatory

signs/symptoms, and safe, effective photoderm for those with

primarily vascular signs/symptoms. Both advancements will probably be

for maintenance care rather than cure, but the improved safety and

efficacy profiles should make a big difference.

I think of a cure like winning the lottery -- it's a miracle hope --

whereas improved anti-inflammatory and photoderm treatments are more

like interest from a mutual fund, something we can pretty much count

on, assuming no major surprises with the economy (research).

Sorry for the financial analogy, but it's tax time.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

, Cameron has rosacea? Her skin looks great!

My opinion: I think there are two areas for real hope regarding

rosacea within the next 5-10 years: safe, effective, topical non-

steroidal anti-inflammatory agents for those with inflammatory

signs/symptoms, and safe, effective photoderm for those with

primarily vascular signs/symptoms. Both advancements will probably be

for maintenance care rather than cure, but the improved safety and

efficacy profiles should make a big difference.

I think of a cure like winning the lottery -- it's a miracle hope --

whereas improved anti-inflammatory and photoderm treatments are more

like interest from a mutual fund, something we can pretty much count

on, assuming no major surprises with the economy (research).

Sorry for the financial analogy, but it's tax time.

Marjorie

Marjorie Lazoff, MD

[Guest guest]

, Cameron has rosacea? Her skin looks great!

My opinion: I think there are two areas for real hope regarding

rosacea within the next 5-10 years: safe, effective, topical non-

steroidal anti-inflammatory agents for those with inflammatory

signs/symptoms, and safe, effective photoderm for those with

primarily vascular signs/symptoms. Both advancements will probably be

for maintenance care rather than cure, but the improved safety and

efficacy profiles should make a big difference.

I think of a cure like winning the lottery -- it's a miracle hope --

whereas improved anti-inflammatory and photoderm treatments are more

like interest from a mutual fund, something we can pretty much count

on, assuming no major surprises with the economy (research).

Sorry for the financial analogy, but it's tax time.

Marjorie

Marjorie Lazoff, MD