my usual diatribe on age of cf patients

[Guest guest]

Those of us in our 60's fifties, and even forties are seldom counted in

any census of us; we are " invisible, " in the words of a 58-year-old frien

d who has cf; there are many with cf in their seventies as well, including

the founder of one of the cystic fibrosis lists, one in North Carolina lis

ted in Beverley Donelson's journal, The Informer, under the Pen Pal

Section; she is now about 78, no longer uses the phone nor e-mails,

but enjoys letters sent to her. She was diagnosed at 52, had two child

ren who are still living and her husband is still living (nocf), and she has\

many grandchildren. She was ill all her life, as most who are eventually

diuagnosed have been. I myself have known two adult males with cf who died

at age 82, having been diagnosed at about age 44, after ma

ny years of illness. I cannot count those I know who are in their sixties,

as am I, and in their early seventies. There is indeed hope for children

borth with cystic fibrosis in the modern era.

n Rojas