Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Ella, I know what you mean about the first year also, it is like a dream, so much to learn, things you dont want to learn, dna, deltaWHAT,??? and all the other bizarre things they throw at us. Then here I am 12 years later wondering where did those years go, they went by so fast, I wish i had them back. He is growing up getting ready for college and still the unknown. Enjoy, Love and never forget to Laugh, Laugh Laugh, I wish you well with your daughters . Keep Your Spirits Up and remember CF stands for Cure Found. Re: Hello from Ireland In a message dated 10/18/2002 7:45:45 AM Central Daylight Time, ella.rafter@... writes: > Hello Everybody, > > A friend of mine in work sought out this website, cfparents, for > me so I only just signed on yesterday. > > I have been reading some of your stories and they are all so > interesting and some very funny about the eating or over eating > should I say!! > > I have three beautiful girls, 10, 8 and 5. > > My eldest girl always suffered with asthma and chest infections > and was always really weak and I was always coaxing her to eat > etc. etc. Last year after years of bringing her to our local > doctors, I finally got to see an asthma specialist, well the rest > is history. At 9 years of age, he told me she had what was > called Cystic Fibrosis. Needless to say my world just fell apart > and is slowly coming back on line. It's been a year of learning > and trying to understand the illness and all that goes with it. > > At least I know now what's been wrong with her all these years. > With the right antiobiotics and enzymes she looks better than she > ever looked in her life. > > My other two girls were tested and are fine. > > It's great to be talking to other parents. I feel so isolated > sometimes, like I'm the only CF parent in Ireland and I've so > much I want to talk about. > > I'll go for now. Hope you all have a nice weekend. > > > Ella. > Ella, I have 3 girls also 10,8, and 5. My oldest and youngest has CF and my middle one is fine. They were diagnosed when my oldest was 6 years old. I know what you mean about the roller coaster ride you go thought the first year. It just seems like yesterday when we were diagnosed. This is a great support group and I know you will meet a lot of neat people. I am in Iowa. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Ella, You have certainly come to the right place, my son was just diagnosed last year at 9 1/2 as your child was treated for asthma. This group was one of the best things that could have happened for us as a family, seemed like we were all alone until then. what part of Ireland are you from? I lived in Northern Ireland for almost 6 years and I don't think there is a castle there or in Ireland we didn't visit! Ask all the questions you would like to because here you can get the answers, not to mention there are nothing but great people here on this list. Tina Mom to Christian 10 (soon to be 11!) yowcf and 19 yowocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Ella, You have certainly come to the right place, my son was just diagnosed last year at 9 1/2 as your child was treated for asthma. This group was one of the best things that could have happened for us as a family, seemed like we were all alone until then. what part of Ireland are you from? I lived in Northern Ireland for almost 6 years and I don't think there is a castle there or in Ireland we didn't visit! Ask all the questions you would like to because here you can get the answers, not to mention there are nothing but great people here on this list. Tina Mom to Christian 10 (soon to be 11!) yowcf and 19 yowocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Ella, You have certainly come to the right place, my son was just diagnosed last year at 9 1/2 as your child was treated for asthma. This group was one of the best things that could have happened for us as a family, seemed like we were all alone until then. what part of Ireland are you from? I lived in Northern Ireland for almost 6 years and I don't think there is a castle there or in Ireland we didn't visit! Ask all the questions you would like to because here you can get the answers, not to mention there are nothing but great people here on this list. Tina Mom to Christian 10 (soon to be 11!) yowcf and 19 yowocf Quote Link to comment Share on other sites More sharing options...
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