Guest guest Posted October 20, 2002 Report Share Posted October 20, 2002 Ella, I know what you mean about the first year also, it is like a dream, so much to learn, things you dont want to learn, dna, deltaWHAT,??? and all the other bizarre things they throw at us. Then here I am 12 years later wondering where did those years go, they went by so fast, I wish i had them back. He is growing up getting ready for college and still the unknown. Enjoy, Love and never forget to Laugh, Laugh Laugh, I wish you well with your daughters . Keep Your Spirits Up and remember CF stands for Cure Found. Re: Hello from Ireland In a message dated 10/18/2002 7:45:45 AM Central Daylight Time, ella.rafter@... writes: > Hello Everybody, > > A friend of mine in work sought out this website, cfparents, for > me so I only just signed on yesterday. > > I have been reading some of your stories and they are all so > interesting and some very funny about the eating or over eating > should I say!! > > I have three beautiful girls, 10, 8 and 5. > > My eldest girl always suffered with asthma and chest infections > and was always really weak and I was always coaxing her to eat > etc. etc. Last year after years of bringing her to our local > doctors, I finally got to see an asthma specialist, well the rest > is history. At 9 years of age, he told me she had what was > called Cystic Fibrosis. Needless to say my world just fell apart > and is slowly coming back on line. It's been a year of learning > and trying to understand the illness and all that goes with it. > > At least I know now what's been wrong with her all these years. > With the right antiobiotics and enzymes she looks better than she > ever looked in her life. > > My other two girls were tested and are fine. > > It's great to be talking to other parents. I feel so isolated > sometimes, like I'm the only CF parent in Ireland and I've so > much I want to talk about. > > I'll go for now. Hope you all have a nice weekend. > > > Ella. > Ella, I have 3 girls also 10,8, and 5. My oldest and youngest has CF and my middle one is fine. They were diagnosed when my oldest was 6 years old. I know what you mean about the roller coaster ride you go thought the first year. It just seems like yesterday when we were diagnosed. This is a great support group and I know you will meet a lot of neat people. I am in Iowa. Deb A Quote Link to comment Share on other sites More sharing options...
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