Re: Ireland Calling Once Again !!

[Guest guest]

Hi Ella,

I hope Aoife will be up to par soon. I have never heard about drug

addiction in pwcf. What meds do you think Aoife was missing so badly?

Didn't your clinic mention that Aoife's risk of becoming dehydrated

and running out of electrolytes is much higher than that of normal

children? Fortunately Fiona hasn't vomitted (apart from small " eating

accidents) for almost three years, but I remember that we had to make

sure that she drinks Gatorade or something like that to keep the

amount of minerals in the body high enough.

Peace

Torsten

>

> Hello Again Everyone,

>

> Thanks so much for emailing back. It was really great to hear

> from so many of you.

>

> I'm only getting a chance to write back now because I was out of

> work all of last week. Everyone in the house got, what we're

> calling in Ireland this year, the Winter Vomitting Bug. The 8

> and 5 year olds are fine but of course poor auld Aoife got an

> awful dose of it. She is still far from well. She has stopped

> vomitting etc. but she is so pale and is only eating a few bites

> here and there. It's really hard to have patience sometimes !

>

> Anyway, I don't know whether or not your hospitals and Clinics

> would advise differently but I thought I just had to inform you

> of what happened to us last week.

>

> I rang the hosp. the first day Aoife got the bug. They said,

> treat her as I would the other girls with small drinks of water

> etc. etc. no food until her stomach settled down and that I was

> to leave her off her antibiotics for two days. I did all of

> this. In the middle of everyone else in the house not being

> well with their stomach, I had Aoife, who is 10 yrs old, almost

> climbing the walls with nightmares. Of course I didn't realise

> until afterwards what was going on. The first night off the

> meds, she had nightmares all night, I slept with her to try and

> comfort her, the next day, she was getting them even during the

> day and that night again, until 4 am in the morning. I thought

> my child was going mad ! My partner finally suggested the fact

> that it might be she had no meds for almost two days and it was

> like she needed " A Hit " , she was getting withdrawals from the

> drugs and that was giving her the nightmares!! I knew the

> minute he said it that he was right.

>

> This may appear very obvious to lots of you but I was so busy

> trying to mind Aoife and the other two girls, Maeve and Shauna,

> that I never thought of it. It was a rotten experience and I

> feel somewhat unnecessary for her to have experienced. At least

> all is well again, well kind of, for now.

>

> Thanks again for being in touch. A special Hello to Barbara,

> and . My one and only sister lives in Australia with

> her hubby and 4 children, I miss her dreadfully, so it was

> especially great to hear from you three. I visited Australia

> once, years ago. We stayed in Sydney and travelled to Melbourne

> for a week and also Canberra for a long weekend. Amazing place.

>

> , my little niece in Australia, is also called Eilish and is

> fair and blondie too.

>

> Barbara, that thing with Kristy and the breathing. Aoife very

> much suffered like that and still does really, especially with PE

> in school and stuff. We use the ventolin before PE and then sit

> some of it out if she's just not up to it.

>

> , hope Sian is doing ok. Pity we didn't live nearer to

> either other, we could join WW again!! or do a Pilates class or

> something !!!!!

>

> C., it can't be easy with the twins?? and I complain.

>

> Christy, mom of Wyatt. Aoife and I also have those conversations

> about her just hating the fact that she has CF. It's really

> difficult as you try to explain yet again and your heart is

> breaking inside.

>

> Also lovely to hear from Sheila, n, , , Torsten

> and Shrikant. Hope I'm not forgetting anyone. Thanks so much to

> all of you for your kinds words of encouragement.

>

> Ella.

>

>

>

> For more information on the C&C Group visit

http://www.candcgroupplc.com

>

>

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