Re: Exercise and breathing problems

[Guest guest]

Hi Barbara,

has Kristy been tested for allergies? It's spring and I think my

hayfever problems began when I was 12 or 13. Hope Kristy will do

better soon, that must have been devastating for her to come off

stage.

Peace

Torsten

> Kristy saw the Specialist on 23rd September and attained the best

> lung function ever! The previous night she had to come of stage at

> a concert because of breathing problems.

>

> She is currently on Pulmozyme, Singulair, Ventolin - before

exercise

> and when needed and Atrovent. She has recently been taken off

> Seretide because they felt it was contributing to her lung

problems.

> Kristy is now clear of any lung infection.

>

> For the past couple of months she has been experiencing episodes of

> not being able to get enough air into her lungs whilst exerting

> herself, especially outside. This has also occured during a choir

> concert and rehearsal, ventolin does relieve the problem along with

> sitting calmly. These episodes are causing problems with her PE

> teacher, whom Kristy feels doesn't really believe her and yes we've

> met with the teacher and she says she understands.

>

> She has been diagnosed with exercise induced asthma in the past but

> the specialist doesn't seem to think asthma is a real problem. I

> have now started her on Qvar because her peak flows dropped a

little

> in the last week and the Specialist gave me the prescription just

in

> case.

>

> Does anyone else have a child that experiences this kind of thing?

>

> Barbara

> Mum to Kristy 12 with " mild " CF

[Guest guest]

Hi Barbara,

has Kristy been tested for allergies? It's spring and I think my

hayfever problems began when I was 12 or 13. Hope Kristy will do

better soon, that must have been devastating for her to come off

stage.

Peace

Torsten

> Kristy saw the Specialist on 23rd September and attained the best

> lung function ever! The previous night she had to come of stage at

> a concert because of breathing problems.

>

> She is currently on Pulmozyme, Singulair, Ventolin - before

exercise

> and when needed and Atrovent. She has recently been taken off

> Seretide because they felt it was contributing to her lung

problems.

> Kristy is now clear of any lung infection.

>

> For the past couple of months she has been experiencing episodes of

> not being able to get enough air into her lungs whilst exerting

> herself, especially outside. This has also occured during a choir

> concert and rehearsal, ventolin does relieve the problem along with

> sitting calmly. These episodes are causing problems with her PE

> teacher, whom Kristy feels doesn't really believe her and yes we've

> met with the teacher and she says she understands.

>

> She has been diagnosed with exercise induced asthma in the past but

> the specialist doesn't seem to think asthma is a real problem. I

> have now started her on Qvar because her peak flows dropped a

little

> in the last week and the Specialist gave me the prescription just

in

> case.

>

> Does anyone else have a child that experiences this kind of thing?

>

> Barbara

> Mum to Kristy 12 with " mild " CF

[Guest guest]

Hi Barbara,

has Kristy been tested for allergies? It's spring and I think my

hayfever problems began when I was 12 or 13. Hope Kristy will do

better soon, that must have been devastating for her to come off

stage.

Peace

Torsten

> Kristy saw the Specialist on 23rd September and attained the best

> lung function ever! The previous night she had to come of stage at

> a concert because of breathing problems.

>

> She is currently on Pulmozyme, Singulair, Ventolin - before

exercise

> and when needed and Atrovent. She has recently been taken off

> Seretide because they felt it was contributing to her lung

problems.

> Kristy is now clear of any lung infection.

>

> For the past couple of months she has been experiencing episodes of

> not being able to get enough air into her lungs whilst exerting

> herself, especially outside. This has also occured during a choir

> concert and rehearsal, ventolin does relieve the problem along with

> sitting calmly. These episodes are causing problems with her PE

> teacher, whom Kristy feels doesn't really believe her and yes we've

> met with the teacher and she says she understands.

>

> She has been diagnosed with exercise induced asthma in the past but

> the specialist doesn't seem to think asthma is a real problem. I

> have now started her on Qvar because her peak flows dropped a

little

> in the last week and the Specialist gave me the prescription just

in

> case.

>

> Does anyone else have a child that experiences this kind of thing?

>

> Barbara

> Mum to Kristy 12 with " mild " CF

[Guest guest]

I don't have any answers or ideas, but hope that you will keep us

posted. This must be scary for both you and Kristy. I hope she

improves quickly.

Gale

> Kristy saw the Specialist on 23rd September and attained the best

> lung function ever! The previous night she had to come of stage at

> a concert because of breathing problems.

>

> She is currently on Pulmozyme, Singulair, Ventolin - before

exercise

> and when needed and Atrovent. She has recently been taken off

> Seretide because they felt it was contributing to her lung

problems.

> Kristy is now clear of any lung infection.

>

> For the past couple of months she has been experiencing episodes of

> not being able to get enough air into her lungs whilst exerting

> herself, especially outside. This has also occured during a choir

> concert and rehearsal, ventolin does relieve the problem along with

> sitting calmly. These episodes are causing problems with her PE

> teacher, whom Kristy feels doesn't really believe her and yes we've

> met with the teacher and she says she understands.

>

> She has been diagnosed with exercise induced asthma in the past but

> the specialist doesn't seem to think asthma is a real problem. I

> have now started her on Qvar because her peak flows dropped a

little

> in the last week and the Specialist gave me the prescription just

in

> case.

>

> Does anyone else have a child that experiences this kind of thing?

>

> Barbara

> Mum to Kristy 12 with " mild " CF

[Guest guest]

Hi Torsten,

I forgot to mention that Kristy has had allergy probs all her life

and on top of the medicines I already mentioned she also takes

Zyrtec and uses a Nasonex Nasal Spray for hayfever/sinus. The

asthma clinic mentioned allergy tests at one stage for my older

daughter maybe it's time I ask Kristy's Specialist or our Local GP

about it! Can't hurt. Yes Spring has hit here with a vengance

I was feeling quite cocky because I seem to have avoided hayfever

then it hit full blast this week!

Thanks again,

Barbara

Mum to Kristy 12 with " mild cf " - South Australia

-- In cfparents@y..., " torstenkrafft " wrote:

> Hi Barbara,

>

> has Kristy been tested for allergies? It's spring and I think my

> hayfever problems began when I was 12 or 13. Hope Kristy will do

> better soon, that must have been devastating for her to come off

> stage.

>

> Peace

> Torsten

>

>

[Guest guest]

Hi Torsten,

I forgot to mention that Kristy has had allergy probs all her life

and on top of the medicines I already mentioned she also takes

Zyrtec and uses a Nasonex Nasal Spray for hayfever/sinus. The

asthma clinic mentioned allergy tests at one stage for my older

daughter maybe it's time I ask Kristy's Specialist or our Local GP

about it! Can't hurt. Yes Spring has hit here with a vengance

I was feeling quite cocky because I seem to have avoided hayfever

then it hit full blast this week!

Thanks again,

Barbara

Mum to Kristy 12 with " mild cf " - South Australia

-- In cfparents@y..., " torstenkrafft " wrote:

> Hi Barbara,

>

> has Kristy been tested for allergies? It's spring and I think my

> hayfever problems began when I was 12 or 13. Hope Kristy will do

> better soon, that must have been devastating for her to come off

> stage.

>

> Peace

> Torsten

>

>

[Guest guest]

Becky,

Anxiety has crossed my mind because Kristy does experience anxiety

at times and especially since most episodes occur with the very

militant like PE Teacher! Kristy doesn't experience heart racing

etc I had asked her many questions about what happens during an

episode and it's only ever " can't get enough air so can't breathe

properly " .

I'm going to take Kristy back to her Local Doctor who knows her

better than the Specialist and see what he thinks, I'm also going to

ask about allergy tests.

Thanks again!

Barbara

Mum to Kristy 12 with " mild " cf - South Australia

>

> Barbara-

> My stepdaughter has the same thing. We (as well as her doctors)

think it's anxiety. She gets it at school on occasion and most of

the time she knows she is going to the doctor. We have tried to

teach her some relaxation exercises and try to get her to think of

happy things...but in my opinion she will always have it. She feels

like her heart is beating out of her chest or skips a beat (she

can't quite describe it) as well as not feeling like she is gettting

enough air. No asthma and no heart problems, and her doc's wouldn't

change her med's anyway even if she had asthma because the med's

she's taking would help for asthma.

> Becky stepmom to Sarine 9 (in 3 weeks) w/cf

[Guest guest]

Becky,

Anxiety has crossed my mind because Kristy does experience anxiety

at times and especially since most episodes occur with the very

militant like PE Teacher! Kristy doesn't experience heart racing

etc I had asked her many questions about what happens during an

episode and it's only ever " can't get enough air so can't breathe

properly " .

I'm going to take Kristy back to her Local Doctor who knows her

better than the Specialist and see what he thinks, I'm also going to

ask about allergy tests.

Thanks again!

Barbara

Mum to Kristy 12 with " mild " cf - South Australia

>

> Barbara-

> My stepdaughter has the same thing. We (as well as her doctors)

think it's anxiety. She gets it at school on occasion and most of

the time she knows she is going to the doctor. We have tried to

teach her some relaxation exercises and try to get her to think of

happy things...but in my opinion she will always have it. She feels

like her heart is beating out of her chest or skips a beat (she

can't quite describe it) as well as not feeling like she is gettting

enough air. No asthma and no heart problems, and her doc's wouldn't

change her med's anyway even if she had asthma because the med's

she's taking would help for asthma.

> Becky stepmom to Sarine 9 (in 3 weeks) w/cf