Re: Nervous about moving and B Cepacia

[Guest guest]

Were you dealing with the CF Care Center when you were in LA before?

If not, you should see a big difference. The CF Care Center here in

Ohio do a lot of preventative testing. It must be hard to leave

Hawaii, but Californina is beautiful too.

Take care,

Gale

> Hello,

> I'm very glad I found this chat bc I've never before heard of B

> Cepacia. Wy goes to CF Clinic sometime in the next couple of weeks

> and I definately have questions for his doc. Thing is, we are

> military (US Navy Seabees)and are leaving Hawaii to go back to

> California Dec 2nd. In Cali we have to go to LA Children's

Hospital.

> I loved my Dr there before and the nurses and dietician. They were

> great. Problem, Wyatt had this awful cough (he rarely ever coughs).

> He'd cough all night long and none of us ever stop. Initially we

> tried regular antibiotics for a cold and it helped. Two weeks after

> we were done the cough would return. Then they said it was his

> sinuses and allergies. We came here and I told my Dr we had a CT

scan

> done on his sinuses and we found out a week before leaving Cali he

> was allergic to Cat Dander so we gave our cat away before moving.

He

> still had this cough. First thing out of my Doc's mouth was has he

> been tested for PA. NO! I never heard the words! So he tested him

and

> what do you know he has it! After months of trying to get rid of it

> we called it a day and he is colonized w/ it now. So now I'm

nervous

> about going back to the same place that TOTALLY missed this

> diagnosis! I have no other choice of where to go, plus, it's

> considereed one of the best. So should I talk w/ someone at the LA

> Clinic and tell them what happened and my concerns? Should I ask

for

> a new doctor if his old one is still there? I don't know..

> Oh, and as far as the overeating thing... I hear you loud and

> clear. My husband and I both have gained weight and I'm currently

on

> Weight Watchers to lose it. So I have two versions of everthing in

> the house!

> Christy mom of Wyatt 7wcf and Hunter 2wocf

[Guest guest]

Yes, we were at the CF Center at LA Children's Hospital. Like I said

I trusted them and liked them before. That's why it was SOOOO

devastating to realize they completely blew it w/ the diagnosis of

the PA. I notice a lot of people from Ohio on the sites. I was born

in Findlay and 99% of my maternal family still live in Ohio. Some in

Findlay, Westerville and Colombus.

HA HA HA NO!!! It's not hard to leave Hawaii at all except for

Wyatt's doctor. I'll say this...it's a beautiful place to visit but

not to live!! It hasn't been a nice 3 years. I firmly believe the

only reason we ended up here is because God wanted Wyatt to have

these doctors. But hey, I try to be an optimist so I won't complain

anymore Christy

> > Hello,

> > I'm very glad I found this chat bc I've never before heard of B

> > Cepacia. Wy goes to CF Clinic sometime in the next couple of

weeks

> > and I definately have questions for his doc. Thing is, we are

> > military (US Navy Seabees)and are leaving Hawaii to go back to

> > California Dec 2nd. In Cali we have to go to LA Children's

> Hospital.

> > I loved my Dr there before and the nurses and dietician. They

were

> > great. Problem, Wyatt had this awful cough (he rarely ever

coughs).

> > He'd cough all night long and none of us ever stop. Initially we

> > tried regular antibiotics for a cold and it helped. Two weeks

after

> > we were done the cough would return. Then they said it was his

> > sinuses and allergies. We came here and I told my Dr we had a CT

> scan

> > done on his sinuses and we found out a week before leaving Cali

he

> > was allergic to Cat Dander so we gave our cat away before moving.

> He

> > still had this cough. First thing out of my Doc's mouth was has

he

> > been tested for PA. NO! I never heard the words! So he tested him

> and

> > what do you know he has it! After months of trying to get rid of

it

> > we called it a day and he is colonized w/ it now. So now I'm

> nervous

> > about going back to the same place that TOTALLY missed this

> > diagnosis! I have no other choice of where to go, plus, it's

> > considereed one of the best. So should I talk w/ someone at the

LA

> > Clinic and tell them what happened and my concerns? Should I ask

> for

> > a new doctor if his old one is still there? I don't know..

> > Oh, and as far as the overeating thing... I hear you loud and

> > clear. My husband and I both have gained weight and I'm currently

> on

> > Weight Watchers to lose it. So I have two versions of everthing

in

> > the house!

> > Christy mom of Wyatt 7wcf and Hunter 2wocf

[Guest guest]

Yes, we were at the CF Center at LA Children's Hospital. Like I said

I trusted them and liked them before. That's why it was SOOOO

devastating to realize they completely blew it w/ the diagnosis of

the PA. I notice a lot of people from Ohio on the sites. I was born

in Findlay and 99% of my maternal family still live in Ohio. Some in

Findlay, Westerville and Colombus.

HA HA HA NO!!! It's not hard to leave Hawaii at all except for

Wyatt's doctor. I'll say this...it's a beautiful place to visit but

not to live!! It hasn't been a nice 3 years. I firmly believe the

only reason we ended up here is because God wanted Wyatt to have

these doctors. But hey, I try to be an optimist so I won't complain

anymore Christy

> > Hello,

> > I'm very glad I found this chat bc I've never before heard of B

> > Cepacia. Wy goes to CF Clinic sometime in the next couple of

weeks

> > and I definately have questions for his doc. Thing is, we are

> > military (US Navy Seabees)and are leaving Hawaii to go back to

> > California Dec 2nd. In Cali we have to go to LA Children's

> Hospital.

> > I loved my Dr there before and the nurses and dietician. They

were

> > great. Problem, Wyatt had this awful cough (he rarely ever

coughs).

> > He'd cough all night long and none of us ever stop. Initially we

> > tried regular antibiotics for a cold and it helped. Two weeks

after

> > we were done the cough would return. Then they said it was his

> > sinuses and allergies. We came here and I told my Dr we had a CT

> scan

> > done on his sinuses and we found out a week before leaving Cali

he

> > was allergic to Cat Dander so we gave our cat away before moving.

> He

> > still had this cough. First thing out of my Doc's mouth was has

he

> > been tested for PA. NO! I never heard the words! So he tested him

> and

> > what do you know he has it! After months of trying to get rid of

it

> > we called it a day and he is colonized w/ it now. So now I'm

> nervous

> > about going back to the same place that TOTALLY missed this

> > diagnosis! I have no other choice of where to go, plus, it's

> > considereed one of the best. So should I talk w/ someone at the

LA

> > Clinic and tell them what happened and my concerns? Should I ask

> for

> > a new doctor if his old one is still there? I don't know..

> > Oh, and as far as the overeating thing... I hear you loud and

> > clear. My husband and I both have gained weight and I'm currently

> on

> > Weight Watchers to lose it. So I have two versions of everthing

in

> > the house!

> > Christy mom of Wyatt 7wcf and Hunter 2wocf

[Guest guest]

Yes, we were at the CF Center at LA Children's Hospital. Like I said

I trusted them and liked them before. That's why it was SOOOO

devastating to realize they completely blew it w/ the diagnosis of

the PA. I notice a lot of people from Ohio on the sites. I was born

in Findlay and 99% of my maternal family still live in Ohio. Some in

Findlay, Westerville and Colombus.

HA HA HA NO!!! It's not hard to leave Hawaii at all except for

Wyatt's doctor. I'll say this...it's a beautiful place to visit but

not to live!! It hasn't been a nice 3 years. I firmly believe the

only reason we ended up here is because God wanted Wyatt to have

these doctors. But hey, I try to be an optimist so I won't complain

anymore Christy

> > Hello,

> > I'm very glad I found this chat bc I've never before heard of B

> > Cepacia. Wy goes to CF Clinic sometime in the next couple of

weeks

> > and I definately have questions for his doc. Thing is, we are

> > military (US Navy Seabees)and are leaving Hawaii to go back to

> > California Dec 2nd. In Cali we have to go to LA Children's

> Hospital.

> > I loved my Dr there before and the nurses and dietician. They

were

> > great. Problem, Wyatt had this awful cough (he rarely ever

coughs).

> > He'd cough all night long and none of us ever stop. Initially we

> > tried regular antibiotics for a cold and it helped. Two weeks

after

> > we were done the cough would return. Then they said it was his

> > sinuses and allergies. We came here and I told my Dr we had a CT

> scan

> > done on his sinuses and we found out a week before leaving Cali

he

> > was allergic to Cat Dander so we gave our cat away before moving.

> He

> > still had this cough. First thing out of my Doc's mouth was has

he

> > been tested for PA. NO! I never heard the words! So he tested him

> and

> > what do you know he has it! After months of trying to get rid of

it

> > we called it a day and he is colonized w/ it now. So now I'm

> nervous

> > about going back to the same place that TOTALLY missed this

> > diagnosis! I have no other choice of where to go, plus, it's

> > considereed one of the best. So should I talk w/ someone at the

LA

> > Clinic and tell them what happened and my concerns? Should I ask

> for

> > a new doctor if his old one is still there? I don't know..

> > Oh, and as far as the overeating thing... I hear you loud and

> > clear. My husband and I both have gained weight and I'm currently

> on

> > Weight Watchers to lose it. So I have two versions of everthing

in

> > the house!

> > Christy mom of Wyatt 7wcf and Hunter 2wocf