Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Thanks Kimber, I will give her that hug. She is still feeling bad. The nurse practioner called from the new pediatric GI, and said that her blood looks fine, amylase were 16 and her lipase were 28, do these seem low to you?. I am wondering if the burn out process is almost here and they just say well the bloodwork looks good, everything is normal. Her xrays and everything looks fine. I asked if their radiologist read what the radiologist said about the pancreas being atrophied and she didn't see the paper down in the bottom of the xray envelope and she would go look for it. In which I told the doc and this nurse practioner about this...they wrote it down but didn't bother checking into it. Everything is always " normal " with tests...then they go in with ERCP and find closed ducts, small ducts and a damaged pancreas. She also said her doc would talk to Dr. Cotton when he gets back from Australia at the beginning of Nov. So anyways, I guess I am frustrated, here I have to deal with everything being " normal " and she is hurting bad lately. I guess normal is good but I am thinking they just don't see something. I don't know. I will wait until they talk with Dr. Cotton and see how that goes. At that point who knows, maybe I should just contact Dr. Sutherland. Thanks for your support, > , > I'm sorry Jackie is having a bad day. Give her a hug from > me. Hope it makes her feel some better.. > Kimber > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 , the problem with those " normals " is that you can have normal Amylase and Lipase levels and have bad attacks. They shouldn't just be relying on those tests. Have you looked at the Hopkin's gi website? If not, take a look and then print them out and shove them in the GI's face about the normal A & L levels. Here's the website if you don't already have it. http://hopkins-gi.org/ Do a search on chronic pancreatitis. It makes me want to growl whenever doctors use that as the end all test for pancreatitis, especially when it's a child who has this. If Jackie is having bad pain, things are not " normal " . Grrr. I know, you feel the same way. Maybe you should talk to Dr. Cotton and make sure he tells the new pedi GI this so that Jackie gets the care she needs. I had to have my normal GI call the one who treated me for my last case because she didn't want to believe this either. You've probably already been down this road, but I'm just trying to think of ideas to help you and Jackie so that she's not hurting so much. Again, give Jackie another Get well hug.And a hug for you too. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 , the problem with those " normals " is that you can have normal Amylase and Lipase levels and have bad attacks. They shouldn't just be relying on those tests. Have you looked at the Hopkin's gi website? If not, take a look and then print them out and shove them in the GI's face about the normal A & L levels. Here's the website if you don't already have it. http://hopkins-gi.org/ Do a search on chronic pancreatitis. It makes me want to growl whenever doctors use that as the end all test for pancreatitis, especially when it's a child who has this. If Jackie is having bad pain, things are not " normal " . Grrr. I know, you feel the same way. Maybe you should talk to Dr. Cotton and make sure he tells the new pedi GI this so that Jackie gets the care she needs. I had to have my normal GI call the one who treated me for my last case because she didn't want to believe this either. You've probably already been down this road, but I'm just trying to think of ideas to help you and Jackie so that she's not hurting so much. Again, give Jackie another Get well hug.And a hug for you too. Kimber -- Kimber Vallejo, CA hominid2@... Southwest and California Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
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