Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Nanci, I would question your doctor about this " testing doctor " that he's trying to get an appointment with. 1) Where is this doctor located? 2) What is his specialty -- pulmonary, allergy, internist? 3) Is the doctor on staff/faculty of an approved CF Center? 4) If Philip does have CF, will this doctor be the one to follow Philip's care even though the doctor is no longer accepting new patients? As I said in an earlier post, there are doctors out there who have sweat testing equipment in their offices, BUT they don't use them often enough to become expert at performing or reading the tests! If your doctor is *not* sending Philip to a CFF approved center, then you run the risk of getting a skewed test result. Why not do this right the first time? Go to www.cff.org and look up the CFF chapter in your state, then call them to find out the approved testing centers. You don't need your doctor to do this, call yourself, then tell your doctor where *you* want the testing done. Best wishes, Kim Mom to (23 with asthma and cf) and (20 asthma no cf) > Hello, > I just thought I would keep you updated.... > The Doctor is finally sending me to someone to evaluate and test for CF. The testing doctors office said they were not accepting new patience, but my Dr. is trying to get me in to see them. > Someone is finally listening! > At the Doctors appointment we had yesterday the Doc said that Philips lungs do sound worse than the last time.....AARRGG. But it was because they are worse that he decided to have tings checked out. He finally realized that Philip has had fluid in his lungs everytime we saw him for the last 7 months, and he is only 10 months old...... > Nanci > Nanci > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Nanci, I would question your doctor about this " testing doctor " that he's trying to get an appointment with. 1) Where is this doctor located? 2) What is his specialty -- pulmonary, allergy, internist? 3) Is the doctor on staff/faculty of an approved CF Center? 4) If Philip does have CF, will this doctor be the one to follow Philip's care even though the doctor is no longer accepting new patients? As I said in an earlier post, there are doctors out there who have sweat testing equipment in their offices, BUT they don't use them often enough to become expert at performing or reading the tests! If your doctor is *not* sending Philip to a CFF approved center, then you run the risk of getting a skewed test result. Why not do this right the first time? Go to www.cff.org and look up the CFF chapter in your state, then call them to find out the approved testing centers. You don't need your doctor to do this, call yourself, then tell your doctor where *you* want the testing done. Best wishes, Kim Mom to (23 with asthma and cf) and (20 asthma no cf) > Hello, > I just thought I would keep you updated.... > The Doctor is finally sending me to someone to evaluate and test for CF. The testing doctors office said they were not accepting new patience, but my Dr. is trying to get me in to see them. > Someone is finally listening! > At the Doctors appointment we had yesterday the Doc said that Philips lungs do sound worse than the last time.....AARRGG. But it was because they are worse that he decided to have tings checked out. He finally realized that Philip has had fluid in his lungs everytime we saw him for the last 7 months, and he is only 10 months old...... > Nanci > Nanci > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Nanci, I would question your doctor about this " testing doctor " that he's trying to get an appointment with. 1) Where is this doctor located? 2) What is his specialty -- pulmonary, allergy, internist? 3) Is the doctor on staff/faculty of an approved CF Center? 4) If Philip does have CF, will this doctor be the one to follow Philip's care even though the doctor is no longer accepting new patients? As I said in an earlier post, there are doctors out there who have sweat testing equipment in their offices, BUT they don't use them often enough to become expert at performing or reading the tests! If your doctor is *not* sending Philip to a CFF approved center, then you run the risk of getting a skewed test result. Why not do this right the first time? Go to www.cff.org and look up the CFF chapter in your state, then call them to find out the approved testing centers. You don't need your doctor to do this, call yourself, then tell your doctor where *you* want the testing done. Best wishes, Kim Mom to (23 with asthma and cf) and (20 asthma no cf) > Hello, > I just thought I would keep you updated.... > The Doctor is finally sending me to someone to evaluate and test for CF. The testing doctors office said they were not accepting new patience, but my Dr. is trying to get me in to see them. > Someone is finally listening! > At the Doctors appointment we had yesterday the Doc said that Philips lungs do sound worse than the last time.....AARRGG. But it was because they are worse that he decided to have tings checked out. He finally realized that Philip has had fluid in his lungs everytime we saw him for the last 7 months, and he is only 10 months old...... > Nanci > Nanci > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2002 Report Share Posted December 4, 2002 Dear . I am soooooo glad that they are finally going to get that checked. really , so many parents on these lists are more intuned to what signs to look for then the " TRAINED " doc.Golleeeeeeeeeeee.But , it will happen now & then maybe proper care/ meds/ treatments will begin .That wee guy needs to be feeling better NOW!!! LOVE & HUGS, GrandmomBEV Philip Hello, I just thought I would keep you updated.... The Doctor is finally sending me to someone to evaluate and test for CF. The testing doctors office said they were not accepting new patience, but my Dr. is trying to get me in to see them. Someone is finally listening! At the Doctors appointment we had yesterday the Doc said that Philips lungs do sound worse than the last time.....AARRGG. But it was because they are worse that he decided to have tings checked out. He finally realized that Philip has had fluid in his lungs everytime we saw him for the last 7 months, and he is only 10 months old...... Nanci Nanci Quote Link to comment Share on other sites More sharing options...
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