Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 > We thought SCD was all we needed to kill the pathogenic bacteria, so > we didn't try anything else. That hasn't been my experience. I've been on SCD for over 7 years. I actually started SCD because a stool test showed high levels of citrobacter freundii and klebsiella pneumoniae and I understood that klebsiella was a bacteria that could be starved out. In the last 7 years I've done both natural products and antibiotics. I hadn't repeated the stool test until recently, though. ( I moved and changed doctors.) I retested about a month ago and was very discouraged to see that I still have high levels of citrobacter freundii and in addition have picked up staph aureus and aeromonas hydrophilia. I also have 3 in the " imbalances " column (enterobacter cloacae, gamma strep, and escherichia hermanii.) It's quite discouraging. On the other hand, I did manage to get rid of the klebsiella. I find it interesting that your son got rid of citrobacter frundii, but picked up klebsiella pneumoniae while I had the opposite situation. This probably isn't what you wanted to hear, but it's my experience. My current doctor thinks low stomach acid may be contributing to my ongoing problems with bacteria, so I've recently started taking Betaine HcL with every meal. -Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 > We thought SCD was all we needed to kill the pathogenic bacteria, so > we didn't try anything else. That hasn't been my experience. I've been on SCD for over 7 years. I actually started SCD because a stool test showed high levels of citrobacter freundii and klebsiella pneumoniae and I understood that klebsiella was a bacteria that could be starved out. In the last 7 years I've done both natural products and antibiotics. I hadn't repeated the stool test until recently, though. ( I moved and changed doctors.) I retested about a month ago and was very discouraged to see that I still have high levels of citrobacter freundii and in addition have picked up staph aureus and aeromonas hydrophilia. I also have 3 in the " imbalances " column (enterobacter cloacae, gamma strep, and escherichia hermanii.) It's quite discouraging. On the other hand, I did manage to get rid of the klebsiella. I find it interesting that your son got rid of citrobacter frundii, but picked up klebsiella pneumoniae while I had the opposite situation. This probably isn't what you wanted to hear, but it's my experience. My current doctor thinks low stomach acid may be contributing to my ongoing problems with bacteria, so I've recently started taking Betaine HcL with every meal. -Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Dear Flor, We have a 2 year old boy, Eddie, who has been totally SCD (and organic) for about 4.5 months. We had a stool and OAT test immediately before he was SCD and have just done another. We have observed impressive improvements with SCD. We are treating ourselves also and are almost SCD legal. We test out everything before Eddie tries it and take equivalent supplements. Eddie (and ourselves) take Kirkman's Inulin Free and also Kirkman's S. Boulardii. At first he couldn't tolerate probiotics, we actually got started with Boulardii. The 2nd stool test - like yours - showed up more bacteria 2 4+ one being Klebsiella which was there before (we were very disappointed) however there were improvements in many of the OAT results. We think we have actually resolved or at least massively improved his yeast problem and this accounts for the improvements we've seen(though we had a 3 month regression that seemd to last a good 3 weeks). The OAT showed that his clostridia infection was worse than before. So really disppointing results. We have decided to try metronidazole (Flagyl). I'm 3 days in to a course (again treating ourselves/ being Eddie's guinea pigs). It's a very difficult decision whether to try herbs. We've decided to give the antibiotic a go - especially as we seem to be OK with it. Eddie had an anaphylactic reaction to wheat/gluten when he was 6 months old - he has a strong RAST to egg also. You can imagine that we have to be really careful how we feed/treat him. Incidentally, Eddie ate only purees until he was about 20 months old. For us it was the enzymes that started him touching a spoon and then accepting textures. It happened so quickly, one day touching the spoon a few days later putting it to his mouth and in a couple of weeks feeding himself with confidence. Then he started chewing and now even touches food with fingers and puts it in his mouth. Just wanted to mention it - because we were having a really rough time pureeing things and could see no end. Then suddenly - the right treatment and a little miracle. I hope the same thing will happen for you. I nearly forgot to mention. Eddie has just started on a tiny bit of the homemade goat's yogurt and we think he is OK with it. Eddie is also now taking a low dose of caprylic acid which we plan to increase after the antibiotic. He's only been taking it a few days but we were delighted that he has been so fine. He's taking 1/4 Solgar Caprylic acid per day spread out in his 3 meals. we crush the tablet into a powder. It's a caprylate form that is supposed to be absorbed better (I'm new to a lot of this so please do check the info yourself). But it might be of interest? Hope this is useful. Good luck. Sandy > > Hello group, > > We just received stool test results from GPL for our 2 > yo ASD boy. He's been on SCD 100% for about 4 months > and we did a stool test before starting SCD. > His inflammation markers (lactoferrin and lysozyme) > are down from 1300 to 700 for lysozyme and from 97 to > 25 for lactoferrin. They are still higher than normal > limits, which are 600 and 7.3 respectively. That is > good news and proof the diet is working. > However, I am concerned with the bacterial culture > results. Before SCD he had two types of bad bacteria > at 4+ levels, now he has three types at 4+ levels. The > beneficial flora is better though, because he had low > levels of some good bacteria and now they are all 4+. > I wanted to know if anyone has been following up > progress with stool tests. I am wondering if the test > is accurate enough to show how numbers of bad bacteria > decrease as this is supposed to be happening. Or, is > it too early to show anything significant? How long > does it usually take to see it on the stool test? > Any info or related experience would be helpful. > Thanks in advance, > > Flor > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Dear Flor, We have a 2 year old boy, Eddie, who has been totally SCD (and organic) for about 4.5 months. We had a stool and OAT test immediately before he was SCD and have just done another. We have observed impressive improvements with SCD. We are treating ourselves also and are almost SCD legal. We test out everything before Eddie tries it and take equivalent supplements. Eddie (and ourselves) take Kirkman's Inulin Free and also Kirkman's S. Boulardii. At first he couldn't tolerate probiotics, we actually got started with Boulardii. The 2nd stool test - like yours - showed up more bacteria 2 4+ one being Klebsiella which was there before (we were very disappointed) however there were improvements in many of the OAT results. We think we have actually resolved or at least massively improved his yeast problem and this accounts for the improvements we've seen(though we had a 3 month regression that seemd to last a good 3 weeks). The OAT showed that his clostridia infection was worse than before. So really disppointing results. We have decided to try metronidazole (Flagyl). I'm 3 days in to a course (again treating ourselves/ being Eddie's guinea pigs). It's a very difficult decision whether to try herbs. We've decided to give the antibiotic a go - especially as we seem to be OK with it. Eddie had an anaphylactic reaction to wheat/gluten when he was 6 months old - he has a strong RAST to egg also. You can imagine that we have to be really careful how we feed/treat him. Incidentally, Eddie ate only purees until he was about 20 months old. For us it was the enzymes that started him touching a spoon and then accepting textures. It happened so quickly, one day touching the spoon a few days later putting it to his mouth and in a couple of weeks feeding himself with confidence. Then he started chewing and now even touches food with fingers and puts it in his mouth. Just wanted to mention it - because we were having a really rough time pureeing things and could see no end. Then suddenly - the right treatment and a little miracle. I hope the same thing will happen for you. I nearly forgot to mention. Eddie has just started on a tiny bit of the homemade goat's yogurt and we think he is OK with it. Eddie is also now taking a low dose of caprylic acid which we plan to increase after the antibiotic. He's only been taking it a few days but we were delighted that he has been so fine. He's taking 1/4 Solgar Caprylic acid per day spread out in his 3 meals. we crush the tablet into a powder. It's a caprylate form that is supposed to be absorbed better (I'm new to a lot of this so please do check the info yourself). But it might be of interest? Hope this is useful. Good luck. Sandy > > Hello group, > > We just received stool test results from GPL for our 2 > yo ASD boy. He's been on SCD 100% for about 4 months > and we did a stool test before starting SCD. > His inflammation markers (lactoferrin and lysozyme) > are down from 1300 to 700 for lysozyme and from 97 to > 25 for lactoferrin. They are still higher than normal > limits, which are 600 and 7.3 respectively. That is > good news and proof the diet is working. > However, I am concerned with the bacterial culture > results. Before SCD he had two types of bad bacteria > at 4+ levels, now he has three types at 4+ levels. The > beneficial flora is better though, because he had low > levels of some good bacteria and now they are all 4+. > I wanted to know if anyone has been following up > progress with stool tests. I am wondering if the test > is accurate enough to show how numbers of bad bacteria > decrease as this is supposed to be happening. Or, is > it too early to show anything significant? How long > does it usually take to see it on the stool test? > Any info or related experience would be helpful. > Thanks in advance, > > Flor > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Dear Flor, We have a 2 year old boy, Eddie, who has been totally SCD (and organic) for about 4.5 months. We had a stool and OAT test immediately before he was SCD and have just done another. We have observed impressive improvements with SCD. We are treating ourselves also and are almost SCD legal. We test out everything before Eddie tries it and take equivalent supplements. Eddie (and ourselves) take Kirkman's Inulin Free and also Kirkman's S. Boulardii. At first he couldn't tolerate probiotics, we actually got started with Boulardii. The 2nd stool test - like yours - showed up more bacteria 2 4+ one being Klebsiella which was there before (we were very disappointed) however there were improvements in many of the OAT results. We think we have actually resolved or at least massively improved his yeast problem and this accounts for the improvements we've seen(though we had a 3 month regression that seemd to last a good 3 weeks). The OAT showed that his clostridia infection was worse than before. So really disppointing results. We have decided to try metronidazole (Flagyl). I'm 3 days in to a course (again treating ourselves/ being Eddie's guinea pigs). It's a very difficult decision whether to try herbs. We've decided to give the antibiotic a go - especially as we seem to be OK with it. Eddie had an anaphylactic reaction to wheat/gluten when he was 6 months old - he has a strong RAST to egg also. You can imagine that we have to be really careful how we feed/treat him. Incidentally, Eddie ate only purees until he was about 20 months old. For us it was the enzymes that started him touching a spoon and then accepting textures. It happened so quickly, one day touching the spoon a few days later putting it to his mouth and in a couple of weeks feeding himself with confidence. Then he started chewing and now even touches food with fingers and puts it in his mouth. Just wanted to mention it - because we were having a really rough time pureeing things and could see no end. Then suddenly - the right treatment and a little miracle. I hope the same thing will happen for you. I nearly forgot to mention. Eddie has just started on a tiny bit of the homemade goat's yogurt and we think he is OK with it. Eddie is also now taking a low dose of caprylic acid which we plan to increase after the antibiotic. He's only been taking it a few days but we were delighted that he has been so fine. He's taking 1/4 Solgar Caprylic acid per day spread out in his 3 meals. we crush the tablet into a powder. It's a caprylate form that is supposed to be absorbed better (I'm new to a lot of this so please do check the info yourself). But it might be of interest? Hope this is useful. Good luck. Sandy > > Hello group, > > We just received stool test results from GPL for our 2 > yo ASD boy. He's been on SCD 100% for about 4 months > and we did a stool test before starting SCD. > His inflammation markers (lactoferrin and lysozyme) > are down from 1300 to 700 for lysozyme and from 97 to > 25 for lactoferrin. They are still higher than normal > limits, which are 600 and 7.3 respectively. That is > good news and proof the diet is working. > However, I am concerned with the bacterial culture > results. Before SCD he had two types of bad bacteria > at 4+ levels, now he has three types at 4+ levels. The > beneficial flora is better though, because he had low > levels of some good bacteria and now they are all 4+. > I wanted to know if anyone has been following up > progress with stool tests. I am wondering if the test > is accurate enough to show how numbers of bad bacteria > decrease as this is supposed to be happening. Or, is > it too early to show anything significant? How long > does it usually take to see it on the stool test? > Any info or related experience would be helpful. > Thanks in advance, > > Flor > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 > That is very interesting. I imagine some of your symptoms improved > and that's why you stuck to the diet for so long, is that the case? Yes, basically. I have MCS (Multiple Chemical Sensitivity) and fibromyalgia along with extensive food allergies. My diet was already extremely limited before starting SCD, so the only things I had to give up to follow SCD were rice and oats. I can't say that SCD has directly helped my MCS or fibromyalgia, but it does help keep my stomach flat for the most part (I used to get really bloated sometimes.) Mostly I've stuck with the SCD just because the theory makes sense to me. > How did it go with the antibiotics? At first I tried Cipro, which my test said my bugs were sensitive to and it was a horrible, horrible experience. Every cell in my body hurt. I honestly think that may have been the worst I've ever felt. I only took it for a few days. Later I tried a round of compounded Neomycin and felt great while I was on it. > Did the numbers at least went down? I wasn't re-tested immediately after the antibiotics. As I said, I moved and it took a while to find a good doctor. I did find a good one (who gave me the Neomycin), but he unexpectedly retired not long after that for his own health reasons. My MCS makes it very difficult for me to tolerate most doctor's offices, so finding someone good with an office I can be inside is a long, difficult process. I do have a very good doctor now, and he's actually a DAN doc. I decided to go that route after another doctor (the one who retired) told me that my heavy metals profile looked like an autism profile. That's also about the time I joined this list and I've learned a lot from all of you who are dealing with autistic kids. > Did they cause other imbalances (yeast, etc).? Evidently not. There were no yeast or parasites found on either my first test or this most recent one. > Do you mean certain types of bacteria can be starved and others not? That's my understanding. I'm certainly no expert, though. I do know that klebsiella pneumoniae is the bacteria associated with Ankylosing Spondylitis and that the dietary treatment for that is a low starch diet. I'm very curious as to how you managed to get rid of the citrobacter freundii in 4 months when I haven't managed to do it in 7 years. It does give me some hope that it can be done. -Martha > Thanks for sharing, Flor > > > > > > > We thought SCD was all we needed to kill the pathogenic > bacteria, so > > > we didn't try anything else. > > > > That hasn't been my experience. I've been on SCD for over 7 > years. > > I actually started SCD because a stool test showed high levels of > > citrobacter freundii and klebsiella pneumoniae and I understood > that > > klebsiella was a bacteria that could be starved out. In the last > 7 years > > I've done both natural products and antibiotics. I hadn't > repeated the > > stool test until recently, though. ( I moved and changed > doctors.) I > > retested about a month ago and was very discouraged to see that I > > still have high levels of citrobacter freundii and in addition > have picked > > up staph aureus and aeromonas hydrophilia. I also have 3 in the > > " imbalances " column (enterobacter cloacae, gamma strep, and > > escherichia hermanii.) It's quite discouraging. On the other > hand, I > > did manage to get rid of the klebsiella. I find it interesting > that your > > son got rid of citrobacter frundii, but picked up klebsiella > pneumoniae > > while I had the opposite situation. > > > > This probably isn't what you wanted to hear, but it's my > experience. > > My current doctor thinks low stomach acid may be contributing to > my > > ongoing problems with bacteria, so I've recently started taking > > Betaine HcL with every meal. > > > > -Martha > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 > That is very interesting. I imagine some of your symptoms improved > and that's why you stuck to the diet for so long, is that the case? Yes, basically. I have MCS (Multiple Chemical Sensitivity) and fibromyalgia along with extensive food allergies. My diet was already extremely limited before starting SCD, so the only things I had to give up to follow SCD were rice and oats. I can't say that SCD has directly helped my MCS or fibromyalgia, but it does help keep my stomach flat for the most part (I used to get really bloated sometimes.) Mostly I've stuck with the SCD just because the theory makes sense to me. > How did it go with the antibiotics? At first I tried Cipro, which my test said my bugs were sensitive to and it was a horrible, horrible experience. Every cell in my body hurt. I honestly think that may have been the worst I've ever felt. I only took it for a few days. Later I tried a round of compounded Neomycin and felt great while I was on it. > Did the numbers at least went down? I wasn't re-tested immediately after the antibiotics. As I said, I moved and it took a while to find a good doctor. I did find a good one (who gave me the Neomycin), but he unexpectedly retired not long after that for his own health reasons. My MCS makes it very difficult for me to tolerate most doctor's offices, so finding someone good with an office I can be inside is a long, difficult process. I do have a very good doctor now, and he's actually a DAN doc. I decided to go that route after another doctor (the one who retired) told me that my heavy metals profile looked like an autism profile. That's also about the time I joined this list and I've learned a lot from all of you who are dealing with autistic kids. > Did they cause other imbalances (yeast, etc).? Evidently not. There were no yeast or parasites found on either my first test or this most recent one. > Do you mean certain types of bacteria can be starved and others not? That's my understanding. I'm certainly no expert, though. I do know that klebsiella pneumoniae is the bacteria associated with Ankylosing Spondylitis and that the dietary treatment for that is a low starch diet. I'm very curious as to how you managed to get rid of the citrobacter freundii in 4 months when I haven't managed to do it in 7 years. It does give me some hope that it can be done. -Martha > Thanks for sharing, Flor > > > > > > > We thought SCD was all we needed to kill the pathogenic > bacteria, so > > > we didn't try anything else. > > > > That hasn't been my experience. I've been on SCD for over 7 > years. > > I actually started SCD because a stool test showed high levels of > > citrobacter freundii and klebsiella pneumoniae and I understood > that > > klebsiella was a bacteria that could be starved out. In the last > 7 years > > I've done both natural products and antibiotics. I hadn't > repeated the > > stool test until recently, though. ( I moved and changed > doctors.) I > > retested about a month ago and was very discouraged to see that I > > still have high levels of citrobacter freundii and in addition > have picked > > up staph aureus and aeromonas hydrophilia. I also have 3 in the > > " imbalances " column (enterobacter cloacae, gamma strep, and > > escherichia hermanii.) It's quite discouraging. On the other > hand, I > > did manage to get rid of the klebsiella. I find it interesting > that your > > son got rid of citrobacter frundii, but picked up klebsiella > pneumoniae > > while I had the opposite situation. > > > > This probably isn't what you wanted to hear, but it's my > experience. > > My current doctor thinks low stomach acid may be contributing to > my > > ongoing problems with bacteria, so I've recently started taking > > Betaine HcL with every meal. > > > > -Martha > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 > That is very interesting. I imagine some of your symptoms improved > and that's why you stuck to the diet for so long, is that the case? Yes, basically. I have MCS (Multiple Chemical Sensitivity) and fibromyalgia along with extensive food allergies. My diet was already extremely limited before starting SCD, so the only things I had to give up to follow SCD were rice and oats. I can't say that SCD has directly helped my MCS or fibromyalgia, but it does help keep my stomach flat for the most part (I used to get really bloated sometimes.) Mostly I've stuck with the SCD just because the theory makes sense to me. > How did it go with the antibiotics? At first I tried Cipro, which my test said my bugs were sensitive to and it was a horrible, horrible experience. Every cell in my body hurt. I honestly think that may have been the worst I've ever felt. I only took it for a few days. Later I tried a round of compounded Neomycin and felt great while I was on it. > Did the numbers at least went down? I wasn't re-tested immediately after the antibiotics. As I said, I moved and it took a while to find a good doctor. I did find a good one (who gave me the Neomycin), but he unexpectedly retired not long after that for his own health reasons. My MCS makes it very difficult for me to tolerate most doctor's offices, so finding someone good with an office I can be inside is a long, difficult process. I do have a very good doctor now, and he's actually a DAN doc. I decided to go that route after another doctor (the one who retired) told me that my heavy metals profile looked like an autism profile. That's also about the time I joined this list and I've learned a lot from all of you who are dealing with autistic kids. > Did they cause other imbalances (yeast, etc).? Evidently not. There were no yeast or parasites found on either my first test or this most recent one. > Do you mean certain types of bacteria can be starved and others not? That's my understanding. I'm certainly no expert, though. I do know that klebsiella pneumoniae is the bacteria associated with Ankylosing Spondylitis and that the dietary treatment for that is a low starch diet. I'm very curious as to how you managed to get rid of the citrobacter freundii in 4 months when I haven't managed to do it in 7 years. It does give me some hope that it can be done. -Martha > Thanks for sharing, Flor > > > > > > > We thought SCD was all we needed to kill the pathogenic > bacteria, so > > > we didn't try anything else. > > > > That hasn't been my experience. I've been on SCD for over 7 > years. > > I actually started SCD because a stool test showed high levels of > > citrobacter freundii and klebsiella pneumoniae and I understood > that > > klebsiella was a bacteria that could be starved out. In the last > 7 years > > I've done both natural products and antibiotics. I hadn't > repeated the > > stool test until recently, though. ( I moved and changed > doctors.) I > > retested about a month ago and was very discouraged to see that I > > still have high levels of citrobacter freundii and in addition > have picked > > up staph aureus and aeromonas hydrophilia. I also have 3 in the > > " imbalances " column (enterobacter cloacae, gamma strep, and > > escherichia hermanii.) It's quite discouraging. On the other > hand, I > > did manage to get rid of the klebsiella. I find it interesting > that your > > son got rid of citrobacter frundii, but picked up klebsiella > pneumoniae > > while I had the opposite situation. > > > > This probably isn't what you wanted to hear, but it's my > experience. > > My current doctor thinks low stomach acid may be contributing to > my > > ongoing problems with bacteria, so I've recently started taking > > Betaine HcL with every meal. > > > > -Martha > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Sandy, Sorry for taking so long. I am very glad your son is doing well and I hope he keeps improving. I am very glad to find someone with a boy the same age as mine and we starded SCD almost at the same time. We are also doing a lot of other things and seeing good improvements. Every time I start writing this email my son wakes up from his nap and wants my attention. Now again. I would like to ask a few quick questions. Simon is still eating purees only. We have been using Houston's Peptizyde and Zyme-Prime (1/8 tsp each at each meal) for the last six months. What enzymes do you use? We also did the yogurt (1/2 oz/day) but we stopped as his peptides went above normal. How is the taste of that Caprylic acid? may be something worth trying. Thank you very much for sharing, Flor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Sandy, Sorry for taking so long. I am very glad your son is doing well and I hope he keeps improving. I am very glad to find someone with a boy the same age as mine and we starded SCD almost at the same time. We are also doing a lot of other things and seeing good improvements. Every time I start writing this email my son wakes up from his nap and wants my attention. Now again. I would like to ask a few quick questions. Simon is still eating purees only. We have been using Houston's Peptizyde and Zyme-Prime (1/8 tsp each at each meal) for the last six months. What enzymes do you use? We also did the yogurt (1/2 oz/day) but we stopped as his peptides went above normal. How is the taste of that Caprylic acid? may be something worth trying. Thank you very much for sharing, Flor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Sandy, Sorry for taking so long. I am very glad your son is doing well and I hope he keeps improving. I am very glad to find someone with a boy the same age as mine and we starded SCD almost at the same time. We are also doing a lot of other things and seeing good improvements. Every time I start writing this email my son wakes up from his nap and wants my attention. Now again. I would like to ask a few quick questions. Simon is still eating purees only. We have been using Houston's Peptizyde and Zyme-Prime (1/8 tsp each at each meal) for the last six months. What enzymes do you use? We also did the yogurt (1/2 oz/day) but we stopped as his peptides went above normal. How is the taste of that Caprylic acid? may be something worth trying. Thank you very much for sharing, Flor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2006 Report Share Posted January 16, 2006 Martha, I guess the citrobacter freundii went away with the diet. We didn't do anything else specifically to kill it, but we did other interventions that may have helped his immune system: b-12 shots, homeopathy, cranio-sacral therapy, enzymes, probiotics. Hope this helps, Flor > > > > > > > We thought SCD was all we needed to kill the pathogenic > > bacteria, so > > > > we didn't try anything else. > > > > > > That hasn't been my experience. I've been on SCD for over 7 > > years. > > > I actually started SCD because a stool test showed high levels of > > > citrobacter freundii and klebsiella pneumoniae and I understood > > that > > > klebsiella was a bacteria that could be starved out. In the last > > 7 years > > > I've done both natural products and antibiotics. I hadn't > > repeated the > > > stool test until recently, though. ( I moved and changed > > doctors.) I > > > retested about a month ago and was very discouraged to see that I > > > still have high levels of citrobacter freundii and in addition > > have picked > > > up staph aureus and aeromonas hydrophilia. I also have 3 in the > > > " imbalances " column (enterobacter cloacae, gamma strep, and > > > escherichia hermanii.) It's quite discouraging. On the other > > hand, I > > > did manage to get rid of the klebsiella. I find it interesting > > that your > > > son got rid of citrobacter frundii, but picked up klebsiella > > pneumoniae > > > while I had the opposite situation. > > > > > > This probably isn't what you wanted to hear, but it's my > > experience. > > > My current doctor thinks low stomach acid may be contributing to > > my > > > ongoing problems with bacteria, so I've recently started taking > > > Betaine HcL with every meal. > > > > > > -Martha > > > > > > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2006 Report Share Posted January 16, 2006 Martha, I guess the citrobacter freundii went away with the diet. We didn't do anything else specifically to kill it, but we did other interventions that may have helped his immune system: b-12 shots, homeopathy, cranio-sacral therapy, enzymes, probiotics. Hope this helps, Flor > > > > > > > We thought SCD was all we needed to kill the pathogenic > > bacteria, so > > > > we didn't try anything else. > > > > > > That hasn't been my experience. I've been on SCD for over 7 > > years. > > > I actually started SCD because a stool test showed high levels of > > > citrobacter freundii and klebsiella pneumoniae and I understood > > that > > > klebsiella was a bacteria that could be starved out. In the last > > 7 years > > > I've done both natural products and antibiotics. I hadn't > > repeated the > > > stool test until recently, though. ( I moved and changed > > doctors.) I > > > retested about a month ago and was very discouraged to see that I > > > still have high levels of citrobacter freundii and in addition > > have picked > > > up staph aureus and aeromonas hydrophilia. I also have 3 in the > > > " imbalances " column (enterobacter cloacae, gamma strep, and > > > escherichia hermanii.) It's quite discouraging. On the other > > hand, I > > > did manage to get rid of the klebsiella. I find it interesting > > that your > > > son got rid of citrobacter frundii, but picked up klebsiella > > pneumoniae > > > while I had the opposite situation. > > > > > > This probably isn't what you wanted to hear, but it's my > > experience. > > > My current doctor thinks low stomach acid may be contributing to > > my > > > ongoing problems with bacteria, so I've recently started taking > > > Betaine HcL with every meal. > > > > > > -Martha > > > > > > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2006 Report Share Posted January 16, 2006 Martha, I guess the citrobacter freundii went away with the diet. We didn't do anything else specifically to kill it, but we did other interventions that may have helped his immune system: b-12 shots, homeopathy, cranio-sacral therapy, enzymes, probiotics. Hope this helps, Flor > > > > > > > We thought SCD was all we needed to kill the pathogenic > > bacteria, so > > > > we didn't try anything else. > > > > > > That hasn't been my experience. I've been on SCD for over 7 > > years. > > > I actually started SCD because a stool test showed high levels of > > > citrobacter freundii and klebsiella pneumoniae and I understood > > that > > > klebsiella was a bacteria that could be starved out. In the last > > 7 years > > > I've done both natural products and antibiotics. I hadn't > > repeated the > > > stool test until recently, though. ( I moved and changed > > doctors.) I > > > retested about a month ago and was very discouraged to see that I > > > still have high levels of citrobacter freundii and in addition > > have picked > > > up staph aureus and aeromonas hydrophilia. I also have 3 in the > > > " imbalances " column (enterobacter cloacae, gamma strep, and > > > escherichia hermanii.) It's quite discouraging. On the other > > hand, I > > > did manage to get rid of the klebsiella. I find it interesting > > that your > > > son got rid of citrobacter frundii, but picked up klebsiella > > pneumoniae > > > while I had the opposite situation. > > > > > > This probably isn't what you wanted to hear, but it's my > > experience. > > > My current doctor thinks low stomach acid may be contributing to > > my > > > ongoing problems with bacteria, so I've recently started taking > > > Betaine HcL with every meal. > > > > > > -Martha > > > > > > > > > > > > > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > > http://www.breakingtheviciouscycle.info > > and > > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 This is the first time I am writing to the group. I have been an " observer " for 6 weeks. I am a bit baffled today. Our 7 year old daughter has been on the egg free/casein free SCD diet for six weeks in hopes of helping her constipation and rages. She has other physical symptoms too; Hashimotos (autoimmune thyroid) disease, asthma, IgA deficiency. She has Igg allergies to the casein and eggs as well as a few other foods not allowed on the diet... there are observable mood and GI changes when she eats them. She had such a horrible die off period lasting a month with symtoms like nausea, fever, vomiting, lethargy that was much more severe than I could have imagined.(no one else in the family caught it so I doubt it was the flu) She also had loose, horrible smelling bright yellow stools1-2 times a day. The die off was so severe that I had a stool analysis done week 3 to see what her body was " purging. " We got the results today and all was normal (no parasites, no bacterial overgrowth and only a slightly elevated level of fungal forms and low secretory IgA) We had the test done through Diagnos Techs. Currently, her BM's are more normal color but less frequent than first weeks of the diet, but her rages continue, just as bad, but slightly less often (although she raged 3 times yesterday-ugh!) She is sure to have a rage if she has not had a BM for a day or two or if she is hungry. (she is very underweight) I was hoping a stool analysis might help us add some herbs or meds (she takes Enzmedica enzymes now) My husband thought I was a nut to start her on this diet and now that her results are normal her really thinks I'm a nut! I'm fanatical about the diet, we're all on it and we don't eat out. My question is if anyone has had a normal stool analysis in spite of extreme symptoms like hers. Should I get another done from a different lab or does it not matter? Is a slightly elevated fungal level significant? and the low secretory IgA? If it is not pathogenic what is it? Thanks! Kerri All SCD 6 weeks for 7 year old with constipation and rages Quote Link to comment Share on other sites More sharing options...
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