Re: coherence in tripwires

[Guest guest]

Maybe we should start to think of rosacea as being part of a larger

family of disorders, or perhaps even a particular manifestation of one

disorder. There are often problems in diagnosing rosacea because of

the overlap of symptoms with other conditions; and of course, there

are those of us who suffer from more than one condition

simultaneously. More than this, when I began to suffer from acne at

age 15, there was the chance that is would disappear after puberty.

There was also the chance that it would continue into my 20s, 30s,

40s,.... But was there not also the chance that it could evolve(or

trigger) into various other disorders, such as seb. derm. and rosacea.

The fact is, we have no coherent explanation for these(this)

disease(s). Are they genetic, bacterial or viral in origin? Are they

possibly a combination? Our disease ebbs and flows; we find personal

triggers which vary and change with time; we have remissions; the

disease comes back. A permanent solution is evasive.

It is extremely discouraging that we are only at the starting

line of understanding--none of us is likely to witness a

" breakthrough " in the treatments of these diseases in our

lifetimes--we aren't even discussed. Perhaps if we had some Hollywood

star champion our cause, there would be interest and money--but that

isn't going to happen--rosacea is a very unglamourous disease.

I don't want to depress anyone above what the disease depresses

us all, but the reality of rosacea is nothing but depressing,

Deryk