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Re: Sinuses (for Deb)

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In a message dated 12/3/2002 8:02:10 PM Central Standard Time,

brmorey@... writes:

> Deb.

> Yes has cultured pseudomonas in her sinuses. But the worst thing

> she cultured up there was probably aspergillus, her doc called it Allergic

> Fungal Sinusitis, It's pretty hard to get rid of,and she did also have it

> in her lungs. The docs put her on prednisone and Soprano for about 6

> months. She has needed IV antibiotics for the pseudo in her sinuses

> because it was resistant to Capri.

> I hope this helps,

> Love,

>

,

Right now that is what we have been fight for the last year. She is culturing

psudomonas in her nose and throat. We don't think it is in her lungs because

she is not coughing or acting like it is. So we think it is just draining

from her nose. So we have done lots of thinks to try to get rid of it out of

her nose and nothing has worked so far. They were taking about putting tubes

in her nose so the antibiotics could reach the area. But it sound like we are

going to wait on it because the ENT doctor did not make the meeting last week

and her CF doctor does not want to wait any longer. I guess what I really

want to know is what worked for you daughter so I can pass it on to our

doctor. I think we are going to try doing nose irrigation's and then try the

sinuneb. I am waiting to hear what they have decided to do. I HATE WAITING!!

Thanks for your help Deb A

PS what is soprano?

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