Re: never done this before

December 31, 2002

In a message dated 12/31/2002 4:20:24 AM Central Standard Time,

mritchie2@... writes:

> HI there,

> My name is Margaret and I have 2 boys. Jake is 8 and Earl is 10 and 1/2.

> Earl has n1303k (cf) and Jake is not even a carrier. My husband and I

> found this out 8 and 1/2 years ago and thought that we could handle it.

> The roller coaster ride has made me want to throw up at times and feel

> stronger for lasting the latest ride. But, I am getting tired. My son is

> a loving child that doesn't want to take his 14 meds.

> My big thing that I need support with is the financial part. Because of

> a sickness that my husband has had. We have maxed our credit cards on

> medicines and the agencies say that we make too much money. What a

> terrible amount and they have also hinted that I would benefit if I was

> divorced. I have to take 7 meds a day because of a seizure disorder and

> because of my nerves. My husband has great insurance at work, but the out

> of pockets for just my son are costing $420 a month. this is when he is

> healthy and without his nutritional extras. I have gotten a part-time job

> to try to pick up some of the costs. but, my family is suffering. Mom is

> not around to take care of them. We have no family within 850 miles!!

> I know that someone out there has been in the same boat. Please ... if

> you know of any thing that I should be doing. please.please. let me know.

> margaret -mritchie2@...

I don't know where you live but in the US there are programs to help kids

with medical expenses. The program we got in does not go by our income it

goes by our kids which at 10 and 8 there is none. So asked your social worker

at the hospital our call you local state health department to see if their

are any programs that you would qualify for. Never give up because some time

you just have to keep asking until you talk to the right person. Hope this

helps. Deb A

January 1, 2003

Hi Margaret. I know alot of people have been in or are in the same boat with

you. I haven't worked in eight years and we have only had my husbands

income. We just had a house built and our car decided it needed to be sick.

If only they made health insurance for cars. I am definitely not in the boat

with you, but we make too much with just one income, my hubby is a police

officer and makes 3066 monthly after all the junk they take out he brings

home 2400-2500 a month, to qualify for squat. But this is all we have ever

known and it would be almost detrimental for me to get a job right now. What

with more taxes and how in the world do you explain to your employer that

you need to be as flexible as a rubber band? My husband is also on the SWAT

team, he has a drug dog, he does overtime as a guard at the local airport.

And on top of just him, our son. He thankfully hasn't been sick recently,

but he has been. On top of this, my hubby gets an increase in pay this

month, but the insurance, which is an HMO, has decided to raise their rates.

We thought they would be wonderful, but they are turning into a nightmare.

Get approval for this and get approval for that, we might cover this but

probbaly not. GRRRRRRRRRRRRRRRRRRRRRR

Anyway, off the soap box.

I hope everyone had a safe, fun, and quiet Christmas and New Year. As I

promised I will now tell you my best Christmas I remember when I was just

eight, flying from England to Oregon to see my grandparents. I never was

really close to them, being a military family. But I remember that Christmas

and walking on the sand dunes with my grandfather and just learning all I

could from him. He and I would just walk, never really talked then, but just

enjoyed the company of eachother. In 2001 my grandmother passed away just

after mother's day and my grandfather passed away this past year. Almost a

full year after my grandmother. Even though I didn't know them as well as I

would have liked, I remember the phone calls every year and the small gifts

they would send.

I wish my husband and kids would have met them. My grandfather and husband

would have gotten along great.

This Christmas was ok, other than the fact that the car decided to leak

antifreeze starting christmas eve. Then my husbands cop car had a flat tire

on christmas day. How much luckier can we get.

By The Way, Margaret, my son also has n1303K. The other mutation is

unidentified as of two years ago.

Keslar mom to 3wcf and Brenna 7wocf

>

>Reply-To: cfparents

>To: cfparents >

>Subject: never done this before

>Date: Mon, 30 Dec 2002 23:37:42 -0500

>

>HI there,

>My name is Margaret and I have 2 boys. Jake is 8 and Earl is 10 and 1/2.

>Earl has n1303k (cf) and Jake is not even a carrier. My husband and I

>found this out 8 and 1/2 years ago and thought that we could handle it.

> The roller coaster ride has made me want to throw up at times and feel

>stronger for lasting the latest ride. But, I am getting tired. My son is

>a loving child that doesn't want to take his 14 meds.

> My big thing that I need support with is the financial part. Because

>of a sickness that my husband has had. We have maxed our credit cards on

>medicines and the agencies say that we make too much money. What a

>terrible amount and they have also hinted that I would benefit if I was

>divorced. I have to take 7 meds a day because of a seizure disorder and

>because of my nerves. My husband has great insurance at work, but the out

>of pockets for just my son are costing $420 a month. this is when he is

>healthy and without his nutritional extras. I have gotten a part-time job

>to try to pick up some of the costs. but, my family is suffering. Mom is

>not around to take care of them. We have no family within 850 miles!!

> I know that someone out there has been in the same boat. Please ... if

>you know of any thing that I should be doing. please.please. let me know.

>margaret -mritchie2@...

>

January 1, 2003