Regression

[Guest guest]

We are now at the end of the 4th week of the diet. I think I may have

seen 1 day where there seemed to be a glimmer of hope. Apart from that

we have seen only regression. Today she was sick and is watching a

video she hasn't seen in nearly 2 years, acting in the way she did 2

years ago.

She is eating fruit and vegetables, meats, no fish, nut butters and

flours and honey. She has also had lentils and split peas.I try to get

a balance between carbs protein and fat but I'm finding it very

difficult to know when something is an issue, as her behaviour has

always been erratic. It doesn't seem to be improving at all.

We've had 1 infraction (not our fault).

This diet was recommended to me by a dietician, who said, since she

was autistic and GFCFSF yeast free and sugar free, we should not do

the intro part to the diet.I started at stage 1.

Any suggestions? Is such a long regression normal? Am I doing

something wrong? My husband and I are tearing our hair out. We seem to

have lost our little girl again, who was doing so well on the previous

diet.

[Guest guest]

Nut butters, nut flour, split peas and especially lentils can be

difficult to digest.

Lentils and beans are not recommended until 6 months into the diet.

Starting with the intro diet and slowly adding foods allows for

observations on behavior and stools.

If you start with a broad range of foods, it is difficult for anyone

to figure out what the problem might be.

What was she eating before SCD?

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

>

> Nut butters, nut flour, split peas and especially lentils can be

> difficult to digest.

>

> Lentils and beans are not recommended until 6 months into the diet.

>

> Starting with the intro diet and slowly adding foods allows for

> observations on behavior and stools.

>

> If you start with a broad range of foods, it is difficult for

anyone

> to figure out what the problem might be.

>

> What was she eating before SCD?

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

She had a very similar diet; fruits veg meats fish eggs lentils

dried beans, those in the can also, rice, pasta substitutes,

potatoes and nuts.My boys have always called me a health freak when

it comes to food. We discovered at christmas that she has an

intolerance(IGG) to eggs, chicken, turkey, tomatoes, onions,

pineapple shrimp and almonds and rice. It was due to this that the

dietician suggested the SCD diet as I had no idea what to give her.

The intro diet wasn't poss due to casein,(according to the

dietician) and the chicken was out also. Lots of the recipes have

egg in them.Meat sausages just can't be found safely. I'm so nervous

of giving her something illegal.

How long do you suggest I stay at each stage for? Can you give me

some ideas as to what I should feed Amy. How can I get enough

carbohydrates into her if she can't have lentils and pulses? She

will only drink the juices if they are not diluted. We have

constipation problems so I know she needs liquids also. She will

drink water but in limited quantities(not enough). Nuts come way

back on the stages, so can only give her limited proteins. With the

intolerance limitations and now a concern(due to Pecanbread

discussion) to give her fish(autistic) i don't know how to vary her

diet. She also has a huge appetite(like a stick in size) and eats

very well. She did not like pureed friut and would not eat it.She is

used to variety and tasty food. What can I give her for breakfast?

I've tried the muffins with veg and meat, but she won't eat those

(can take up to 30mins in the morning- we don't hve time when she

needs to take supplements as well). We are following the DAN

programme and she is being chelated. What kind of things can I give

her for dessert? She does so well in accepting that she can't have

things, and when she sees others, doesn't even try to get things, so

I try to give her substitutes as and when. That's why I've been

giving her the nuts and butters, so she can heve desserts like her

brothers.

I really don't know what to feed her. Is it really a matter of

pureed veg alongside meat for the next 3 months? (I do lots of

casseroles with pureed veg and meatloaves with veg). I know she's

bored even by that. Snacks? Lunch bag fillers?

She already is used to us saying that all the supplements,

injections, doctor's appointments, inability to eat out ith us in

restaurants, to even have pizza substitutes etc......is going to

make her better, that somehow, weaning her from the beginning seems

cruel.

I know you're probably thinking that we have to be cruel to be kind,

and I will do it, I'm just asking that the food be nice! I always

try to eat the same as her at home so she doesn't feel totally left

out. (I have 10 and 12 yr old boys who would cause me so much grief

if I insisted they did the diet totally- they compromise by eating

her food every other day). All the recipes in the book seem to be a

issue with her due to her intolerances(above). So I can't seem to

think of any interesting ways to serve her food. Alongside that, I

also need to send her a lunch bag to school, and her school and

teacher are not supportive at all of what I send in.

Please help.

[Guest guest]

>

> Nut butters, nut flour, split peas and especially lentils can be

> difficult to digest.

>

> Lentils and beans are not recommended until 6 months into the diet.

>

> Starting with the intro diet and slowly adding foods allows for

> observations on behavior and stools.

>

> If you start with a broad range of foods, it is difficult for

anyone

> to figure out what the problem might be.

>

> What was she eating before SCD?

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

She had a very similar diet; fruits veg meats fish eggs lentils

dried beans, those in the can also, rice, pasta substitutes,

potatoes and nuts.My boys have always called me a health freak when

it comes to food. We discovered at christmas that she has an

intolerance(IGG) to eggs, chicken, turkey, tomatoes, onions,

pineapple shrimp and almonds and rice. It was due to this that the

dietician suggested the SCD diet as I had no idea what to give her.

The intro diet wasn't poss due to casein,(according to the

dietician) and the chicken was out also. Lots of the recipes have

egg in them.Meat sausages just can't be found safely. I'm so nervous

of giving her something illegal.

How long do you suggest I stay at each stage for? Can you give me

some ideas as to what I should feed Amy. How can I get enough

carbohydrates into her if she can't have lentils and pulses? She

will only drink the juices if they are not diluted. We have

constipation problems so I know she needs liquids also. She will

drink water but in limited quantities(not enough). Nuts come way

back on the stages, so can only give her limited proteins. With the

intolerance limitations and now a concern(due to Pecanbread

discussion) to give her fish(autistic) i don't know how to vary her

diet. She also has a huge appetite(like a stick in size) and eats

very well. She did not like pureed friut and would not eat it.She is

used to variety and tasty food. What can I give her for breakfast?

I've tried the muffins with veg and meat, but she won't eat those

(can take up to 30mins in the morning- we don't hve time when she

needs to take supplements as well). We are following the DAN

programme and she is being chelated. What kind of things can I give

her for dessert? She does so well in accepting that she can't have

things, and when she sees others, doesn't even try to get things, so

I try to give her substitutes as and when. That's why I've been

giving her the nuts and butters, so she can heve desserts like her

brothers.

I really don't know what to feed her. Is it really a matter of

pureed veg alongside meat for the next 3 months? (I do lots of

casseroles with pureed veg and meatloaves with veg). I know she's

bored even by that. Snacks? Lunch bag fillers?

She already is used to us saying that all the supplements,

injections, doctor's appointments, inability to eat out ith us in

restaurants, to even have pizza substitutes etc......is going to

make her better, that somehow, weaning her from the beginning seems

cruel.

I know you're probably thinking that we have to be cruel to be kind,

and I will do it, I'm just asking that the food be nice! I always

try to eat the same as her at home so she doesn't feel totally left

out. (I have 10 and 12 yr old boys who would cause me so much grief

if I insisted they did the diet totally- they compromise by eating

her food every other day). All the recipes in the book seem to be a

issue with her due to her intolerances(above). So I can't seem to

think of any interesting ways to serve her food. Alongside that, I

also need to send her a lunch bag to school, and her school and

teacher are not supportive at all of what I send in.

Please help.

[Guest guest]

>

> Nut butters, nut flour, split peas and especially lentils can be

> difficult to digest.

>

> Lentils and beans are not recommended until 6 months into the diet.

>

> Starting with the intro diet and slowly adding foods allows for

> observations on behavior and stools.

>

> If you start with a broad range of foods, it is difficult for

anyone

> to figure out what the problem might be.

>

> What was she eating before SCD?

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

She had a very similar diet; fruits veg meats fish eggs lentils

dried beans, those in the can also, rice, pasta substitutes,

potatoes and nuts.My boys have always called me a health freak when

it comes to food. We discovered at christmas that she has an

intolerance(IGG) to eggs, chicken, turkey, tomatoes, onions,

pineapple shrimp and almonds and rice. It was due to this that the

dietician suggested the SCD diet as I had no idea what to give her.

The intro diet wasn't poss due to casein,(according to the

dietician) and the chicken was out also. Lots of the recipes have

egg in them.Meat sausages just can't be found safely. I'm so nervous

of giving her something illegal.

How long do you suggest I stay at each stage for? Can you give me

some ideas as to what I should feed Amy. How can I get enough

carbohydrates into her if she can't have lentils and pulses? She

will only drink the juices if they are not diluted. We have

constipation problems so I know she needs liquids also. She will

drink water but in limited quantities(not enough). Nuts come way

back on the stages, so can only give her limited proteins. With the

intolerance limitations and now a concern(due to Pecanbread

discussion) to give her fish(autistic) i don't know how to vary her

diet. She also has a huge appetite(like a stick in size) and eats

very well. She did not like pureed friut and would not eat it.She is

used to variety and tasty food. What can I give her for breakfast?

I've tried the muffins with veg and meat, but she won't eat those

(can take up to 30mins in the morning- we don't hve time when she

needs to take supplements as well). We are following the DAN

programme and she is being chelated. What kind of things can I give

her for dessert? She does so well in accepting that she can't have

things, and when she sees others, doesn't even try to get things, so

I try to give her substitutes as and when. That's why I've been

giving her the nuts and butters, so she can heve desserts like her

brothers.

I really don't know what to feed her. Is it really a matter of

pureed veg alongside meat for the next 3 months? (I do lots of

casseroles with pureed veg and meatloaves with veg). I know she's

bored even by that. Snacks? Lunch bag fillers?

She already is used to us saying that all the supplements,

injections, doctor's appointments, inability to eat out ith us in

restaurants, to even have pizza substitutes etc......is going to

make her better, that somehow, weaning her from the beginning seems

cruel.

I know you're probably thinking that we have to be cruel to be kind,

and I will do it, I'm just asking that the food be nice! I always

try to eat the same as her at home so she doesn't feel totally left

out. (I have 10 and 12 yr old boys who would cause me so much grief

if I insisted they did the diet totally- they compromise by eating

her food every other day). All the recipes in the book seem to be a

issue with her due to her intolerances(above). So I can't seem to

think of any interesting ways to serve her food. Alongside that, I

also need to send her a lunch bag to school, and her school and

teacher are not supportive at all of what I send in.

Please help.

[Guest guest]

Food does not need to be pureed. I'm unsure where you got the idea

that they do.

At the beginning of the diet, food needs to be peeled (as needed),

deseeded (as needed) and cooked. The only exceptions are ripe bananas

and avocados.

As for what you can feed her, squash (butternut, yellow, and the other

varieties), zucchini, green beans, avocado, banana, cooked fruits, etc.

On the issue of dessert, perhaps you could just elminate it except on

the weekends to start with, then just one day a week. We make things

special when they aren't eaten every day. That will cut down on the

need for you to make something similar for Amy all the time.

I would also tell your older boys that you are not making two dinners.

They can eat their fruits and veggies raw (if they want), but you are

not a short order cook and they can eat whatever they normally do for

lunch, but for dinner there will be one meal served, take it or leave

it. I know that sounds mean, but you need some sanity. They are old

enough to understand.

This is where I would employ the " tough love " . No one needs dessert

every meal and your boys are old enough to eat what is served. I'm

not sure when it became customary to cater to children's food whims,

but our entire culture seems to do it now as evidenced by all of the

" kid food " that is sold in grocery stores. What did all of us eat

before marketing departments realized that they had an untapped market

(child consumers)? We ate what we were served or we went hungry. The

first couple of days will be hard, but they will learn quickly I'm

sure, just as the rest of us did. No one likes going to bed hungry.

What does Amy like? Does she like soup? You mentioned casseroles,

does she like those? Go buy some nice Thermos brand stainless steel

Thermoses and send some soup or a casserole for her lunch. The

thermoses cost about $15 and keep cold foods cold for about 10 hours

and hot foods hot for about 5-6 hours.

You have a lot of variables going on. How long have you been

chelating? Have you changed any of her supplements lately?

Jody

mom to -7 and -9

SCD 1/03

[Guest guest]

>

> Food does not need to be pureed. I'm unsure where you got the idea

> that they do.

>

> At the beginning of the diet, food needs to be peeled (as needed),

> deseeded (as needed) and cooked. The only exceptions are ripe

bananas

> and avocados.

>

> As for what you can feed her, squash (butternut, yellow, and the

other

> varieties), zucchini, green beans, avocado, banana, cooked fruits,

etc.

>

> On the issue of dessert, perhaps you could just elminate it except

on

> the weekends to start with, then just one day a week. We make

things

> special when they aren't eaten every day. That will cut down on

the

> need for you to make something similar for Amy all the time.

>

> I would also tell your older boys that you are not making two

dinners.

> They can eat their fruits and veggies raw (if they want), but you

are

> not a short order cook and they can eat whatever they normally do

for

> lunch, but for dinner there will be one meal served, take it or

leave

> it. I know that sounds mean, but you need some sanity. They are

old

> enough to understand.

>

> This is where I would employ the " tough love " . No one needs

dessert

> every meal and your boys are old enough to eat what is served. I'm

> not sure when it became customary to cater to children's food

whims,

> but our entire culture seems to do it now as evidenced by all of

the

> " kid food " that is sold in grocery stores. What did all of us eat

> before marketing departments realized that they had an untapped

market

> (child consumers)? We ate what we were served or we went hungry.

The

> first couple of days will be hard, but they will learn quickly I'm

> sure, just as the rest of us did. No one likes going to bed

hungry.

>

> What does Amy like? Does she like soup? You mentioned casseroles,

> does she like those? Go buy some nice Thermos brand stainless

steel

> Thermoses and send some soup or a casserole for her lunch. The

> thermoses cost about $15 and keep cold foods cold for about 10

hours

> and hot foods hot for about 5-6 hours.

>

> You have a lot of variables going on. How long have you been

> chelating? Have you changed any of her supplements lately?

>

>

> Jody

> mom to -7 and -9

> SCD 1/03

>

We've been chelating since Christmas(before we started the diet). We

changed some of her supplements since starting the diet to become

SCD legal.

Is her diet going to be substantial and balanced enough with only

fruit, veg and meats?

What can I give her for breakfast?

Thanks for answering some of the above.

[Guest guest]

>

> Is her diet going to be substantial and balanced enough with only

> fruit, veg and meats?

> What can I give her for breakfast?

>

Will she drink smoothies? A diet of those can be plenty balanced.

Are you doing the yougart? That could be part of a balanced diet.

I'm assuming she can't have eggs or nuts, right? Expand your ideas of

what breakfast can mean and see if you can find something she is happy

with. My dh would happily eat ground meat w/taco seasoning for

breakfast. Seems weird to me but it works for him.

What about yougart w/fruit for breakfast?

Sorry if this isn't any help.

Patty

scd 1 week

[Guest guest]

>

> Is her diet going to be substantial and balanced enough with only

> fruit, veg and meats?

> What can I give her for breakfast?

>

Will she drink smoothies? A diet of those can be plenty balanced.

Are you doing the yougart? That could be part of a balanced diet.

I'm assuming she can't have eggs or nuts, right? Expand your ideas of

what breakfast can mean and see if you can find something she is happy

with. My dh would happily eat ground meat w/taco seasoning for

breakfast. Seems weird to me but it works for him.

What about yougart w/fruit for breakfast?

Sorry if this isn't any help.

Patty

scd 1 week

[Guest guest]

Patty,

This is a tough time and I am impressed by how committed you are to

your daughter.

My son Ben, 16, recovering--and almost there--from Asperger's,

started the SCD diet on January 1st.. He, and I (MS), are doing

terrific. But at the beginning it was really rough and we had die

off experiences. Ben had a fever of about 101 degrees F on and off

for several weeks, then 104 degrees (peak--usually about 102) for

about 2 days after we introduced kefir. Stressful.

This is a powerful diet. It was stressful to start, now we

are " keeping the course " as we have a plan and have adjusted.

This was a tough adjustment. I feel so much better, more energy and

sleeping great for the first time in years. Ben no longer has

dandruff or acne--he's happier. He, big for us, told my husband one

day that he " was ticked with me " ! LOLOL We LOVE that! Dave and I

both laughed later. It was new. First time he has verbalized

feelings of anger. He's been angry, don't get me wrong, but he said

it. And our son is, for all intents and purposes, normal. Just

some quirks left.

I pray you are experiencing die off and have wonderful news for us in

the near future.

Bless you and your family as you work to save your child.

Lorraine

>

>

> >

> > Is her diet going to be substantial and balanced enough with only

> > fruit, veg and meats?

> > What can I give her for breakfast?

> >

> Will she drink smoothies? A diet of those can be plenty balanced.

> Are you doing the yougart? That could be part of a balanced diet.

> I'm assuming she can't have eggs or nuts, right? Expand your ideas

of

> what breakfast can mean and see if you can find something she is

happy

> with. My dh would happily eat ground meat w/taco seasoning for

> breakfast. Seems weird to me but it works for him.

>

> What about yougart w/fruit for breakfast?

>

> Sorry if this isn't any help.

>

> Patty

> scd 1 week

>

[Guest guest]

Patty,

This is a tough time and I am impressed by how committed you are to

your daughter.

My son Ben, 16, recovering--and almost there--from Asperger's,

started the SCD diet on January 1st.. He, and I (MS), are doing

terrific. But at the beginning it was really rough and we had die

off experiences. Ben had a fever of about 101 degrees F on and off

for several weeks, then 104 degrees (peak--usually about 102) for

about 2 days after we introduced kefir. Stressful.

This is a powerful diet. It was stressful to start, now we

are " keeping the course " as we have a plan and have adjusted.

This was a tough adjustment. I feel so much better, more energy and

sleeping great for the first time in years. Ben no longer has

dandruff or acne--he's happier. He, big for us, told my husband one

day that he " was ticked with me " ! LOLOL We LOVE that! Dave and I

both laughed later. It was new. First time he has verbalized

feelings of anger. He's been angry, don't get me wrong, but he said

it. And our son is, for all intents and purposes, normal. Just

some quirks left.

I pray you are experiencing die off and have wonderful news for us in

the near future.

Bless you and your family as you work to save your child.

Lorraine

>

>

> >

> > Is her diet going to be substantial and balanced enough with only

> > fruit, veg and meats?

> > What can I give her for breakfast?

> >

> Will she drink smoothies? A diet of those can be plenty balanced.

> Are you doing the yougart? That could be part of a balanced diet.

> I'm assuming she can't have eggs or nuts, right? Expand your ideas

of

> what breakfast can mean and see if you can find something she is

happy

> with. My dh would happily eat ground meat w/taco seasoning for

> breakfast. Seems weird to me but it works for him.

>

> What about yougart w/fruit for breakfast?

>

> Sorry if this isn't any help.

>

> Patty

> scd 1 week

>

[Guest guest]

Patty,

This is a tough time and I am impressed by how committed you are to

your daughter.

My son Ben, 16, recovering--and almost there--from Asperger's,

started the SCD diet on January 1st.. He, and I (MS), are doing

terrific. But at the beginning it was really rough and we had die

off experiences. Ben had a fever of about 101 degrees F on and off

for several weeks, then 104 degrees (peak--usually about 102) for

about 2 days after we introduced kefir. Stressful.

This is a powerful diet. It was stressful to start, now we

are " keeping the course " as we have a plan and have adjusted.

This was a tough adjustment. I feel so much better, more energy and

sleeping great for the first time in years. Ben no longer has

dandruff or acne--he's happier. He, big for us, told my husband one

day that he " was ticked with me " ! LOLOL We LOVE that! Dave and I

both laughed later. It was new. First time he has verbalized

feelings of anger. He's been angry, don't get me wrong, but he said

it. And our son is, for all intents and purposes, normal. Just

some quirks left.

I pray you are experiencing die off and have wonderful news for us in

the near future.

Bless you and your family as you work to save your child.

Lorraine

>

>

> >

> > Is her diet going to be substantial and balanced enough with only

> > fruit, veg and meats?

> > What can I give her for breakfast?

> >

> Will she drink smoothies? A diet of those can be plenty balanced.

> Are you doing the yougart? That could be part of a balanced diet.

> I'm assuming she can't have eggs or nuts, right? Expand your ideas

of

> what breakfast can mean and see if you can find something she is

happy

> with. My dh would happily eat ground meat w/taco seasoning for

> breakfast. Seems weird to me but it works for him.

>

> What about yougart w/fruit for breakfast?

>

> Sorry if this isn't any help.

>

> Patty

> scd 1 week

>