Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Hi everyone, I am looking for anybody who has gone through the same situation as us. My son is 8 and has autism. Until 14 months ago he did not appear to have any bowel issues. However at that point he became constipated for a short while and was put on senna (and a few other things). He then in April became incontinent and has remained so ever since. He does not have diarrhoea but very frequent very soft stools which are usually foul smelling. In August of last year his gastroenterologist put him on movecol a very strong laxative as he said that he was very loaded with soft stools. The hospital have been unable to come up with any further treatments to help with the incontinence. He is currently having around 15 accidents a day, and there is rarely any bulk. is currently GF/CF/YF/SoyF/SugarF/CornF/NutF and we are about to embark on SCD. We are following the DAN protocol and he is on Nystatin, yeast aid, bear berry and quassia for the different pathogens in his bowel. We had hoped that treating his bowel would resolve the incontinence but so far it has not. Does anyone have a message of hope?!!! Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Elaine- My son was having 4-5 mucus-filled horrible smelling BMs a day last summer. We were GFCFSFCF at the time. After the ped GI gave Ben a colonoscopy and told me nothing was wrong, we ended up on SCD. Ben now has 1-2 formed, normal smelling BMs a day. You will need to determine if all allowed SCD foods agree with your son and also examine supplements for healing to take place. Good luck-it worked for us! Amy Ben's mom-HFA, SCD 13 weeks --- " Elaine.Rankin " Elaine.Rankin@...> wrote: > Hi everyone, > > I am looking for anybody who has gone through the > same situation as us. My > son is 8 and has autism. Until 14 months ago he did > not appear to have any > bowel issues. However at that point he became > constipated for a short while > and was put on senna (and a few other things). He > then in April became > incontinent and has remained so ever since. He does > not have diarrhoea but > very frequent very soft stools which are usually > foul smelling. In August > of last year his gastroenterologist put him on > movecol a very strong > laxative as he said that he was very loaded with > soft stools. The hospital > have been unable to come up with any further > treatments to help with the > incontinence. He is currently having around 15 > accidents a day, and there > is rarely any bulk. > > is currently GF/CF/YF/SoyF/SugarF/CornF/NutF > and we are about to > embark on SCD. > > We are following the DAN protocol and he is on > Nystatin, yeast aid, bear > berry and quassia for the different pathogens in his > bowel. We had hoped > that treating his bowel would resolve the > incontinence but so far it has > not. Does anyone have a message of hope?!!! > > Elaine > > > > > [Non-text portions of this message have been > removed] > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hi Elaine. I am new to this site, but have a 3year old son with PDD/autism who's been GFCFSFYF, etc. 11 mos and SCD, non dairy since Aug. I switched him to SCD because even though I saw some good changes on first diet, it wasn't enough. I hoped SCD would firm up his stools which were never formed in his entire life. His progress on SCD is remarkable, but when he still had the loose stool problems by late Dec, I gave in and agreed to some brief course of meds. He started lamisil (antifungal) and Flagyl (antibiotic) on New Years Eve and we had a Happy New Year present of the first formed poop of his life! In just one day, there was form to his BMs, which got firmer until just right by day 3, and have continued every day since, even though he stopped the meds on Jan 28th. His DAN doctor said he may need to resume the meds periodically if the loose stools return, but that following the SCD will give us the best chance of that not happening because we are not giving him any food to feed that condition. I don't know if SCD would eventually have eradicated the gut condition on its own in time, but I wanted a quicker fix. The DAN doctor said sometimes its so bad that the gut needs medication and in my son's case he gave both the antifungal AND an antibiotic. I haven't read anyone else's postings about antibiotic use yet, just the antifungal use. Most people mention nystatin, but my doctor said lamisil and I think it had something to do with what is comprised of, though I am not sure if there is anything in nystatin that would be illegal to SCD. There seems to be so many people on it on this site that I'm sure its legal. Anyway, maybe the antibiotic had something to do with my son's stools firming up. Thought I'd pass that along incase it helps you. Good luck. Tracey Frequent bowel motions Hi everyone, I am looking for anybody who has gone through the same situation as us. My son is 8 and has autism. Until 14 months ago he did not appear to have any bowel issues. However at that point he became constipated for a short while and was put on senna (and a few other things). He then in April became incontinent and has remained so ever since. He does not have diarrhoea but very frequent very soft stools which are usually foul smelling. In August of last year his gastroenterologist put him on movecol a very strong laxative as he said that he was very loaded with soft stools. The hospital have been unable to come up with any further treatments to help with the incontinence. He is currently having around 15 accidents a day, and there is rarely any bulk. is currently GF/CF/YF/SoyF/SugarF/CornF/NutF and we are about to embark on SCD. We are following the DAN protocol and he is on Nystatin, yeast aid, bear berry and quassia for the different pathogens in his bowel. We had hoped that treating his bowel would resolve the incontinence but so far it has not. Does anyone have a message of hope?!!! Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hi Elaine. I am new to this site, but have a 3year old son with PDD/autism who's been GFCFSFYF, etc. 11 mos and SCD, non dairy since Aug. I switched him to SCD because even though I saw some good changes on first diet, it wasn't enough. I hoped SCD would firm up his stools which were never formed in his entire life. His progress on SCD is remarkable, but when he still had the loose stool problems by late Dec, I gave in and agreed to some brief course of meds. He started lamisil (antifungal) and Flagyl (antibiotic) on New Years Eve and we had a Happy New Year present of the first formed poop of his life! In just one day, there was form to his BMs, which got firmer until just right by day 3, and have continued every day since, even though he stopped the meds on Jan 28th. His DAN doctor said he may need to resume the meds periodically if the loose stools return, but that following the SCD will give us the best chance of that not happening because we are not giving him any food to feed that condition. I don't know if SCD would eventually have eradicated the gut condition on its own in time, but I wanted a quicker fix. The DAN doctor said sometimes its so bad that the gut needs medication and in my son's case he gave both the antifungal AND an antibiotic. I haven't read anyone else's postings about antibiotic use yet, just the antifungal use. Most people mention nystatin, but my doctor said lamisil and I think it had something to do with what is comprised of, though I am not sure if there is anything in nystatin that would be illegal to SCD. There seems to be so many people on it on this site that I'm sure its legal. Anyway, maybe the antibiotic had something to do with my son's stools firming up. Thought I'd pass that along incase it helps you. Good luck. Tracey Frequent bowel motions Hi everyone, I am looking for anybody who has gone through the same situation as us. My son is 8 and has autism. Until 14 months ago he did not appear to have any bowel issues. However at that point he became constipated for a short while and was put on senna (and a few other things). He then in April became incontinent and has remained so ever since. He does not have diarrhoea but very frequent very soft stools which are usually foul smelling. In August of last year his gastroenterologist put him on movecol a very strong laxative as he said that he was very loaded with soft stools. The hospital have been unable to come up with any further treatments to help with the incontinence. He is currently having around 15 accidents a day, and there is rarely any bulk. is currently GF/CF/YF/SoyF/SugarF/CornF/NutF and we are about to embark on SCD. We are following the DAN protocol and he is on Nystatin, yeast aid, bear berry and quassia for the different pathogens in his bowel. We had hoped that treating his bowel would resolve the incontinence but so far it has not. Does anyone have a message of hope?!!! Elaine Quote Link to comment Share on other sites More sharing options...
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