Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Hi everyone, I just wanted to let you know that I am still around. We are still waiting on the DNA results. Ambry received the blood sample on 10/28. We also have an (unofficial) appt Dec. 11th and 12th at Rainbow Babies in Cleveland Ohio, at the Cystic Fibrosis Clinic. Caden will probably get the nasal pot. diff. test and a bronchosopy (is this bad?). We are just waiting for the final confirmation on that. Anyway, Caden has yet another bad sinus infection. We have an appt. with the allergist at 3:30 PM. Not sure what we will do as he does not respond to typical antibiotics. He has not suggested CF, nor have I mentioned it to him, yet.. I think I will today. I kinda wanted to see if he thought of it on his own. Maybe he will. Should I ask to see an ENT? Is there anything I could ask him to swab or culture? Like mucus, etc??? or would a ENT do that? Normally, do they repeat the CT to see if the steroid treatment helped with the polyp? Also, if he wants to do a nasal wash (like he had suggested, should I ask him to use an antibiotic? Thanks for any help, Krystena s Caden 4 yrs GAII/ testing for CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 Thanks for the update. I've been wondering about you and Caden. Please keep in touch and good luck with the upcoming appointments. Gale > Hi everyone, > > I just wanted to let you know that I am still around. We are still waiting on the DNA results. Ambry received the blood sample on 10/28. > > We also have an (unofficial) appt Dec. 11th and 12th at Rainbow Babies in Cleveland Ohio, at the Cystic Fibrosis Clinic. > Caden will probably get the nasal pot. diff. test and a bronchosopy (is this bad?). We are just waiting for the final confirmation on that. > > Anyway, Caden has yet another bad sinus infection. We have an appt. with the allergist at 3:30 PM. Not sure what we will do as he does not respond to typical antibiotics. He has not suggested CF, nor have I mentioned it to him, yet.. I think I will today. I kinda wanted to see if he thought of it on his own. Maybe he will. > Should I ask to see an ENT? > Is there anything I could ask him to swab or culture? Like mucus, etc??? or would a ENT do that? > Normally, do they repeat the CT to see if the steroid treatment helped with the polyp? > > Also, if he wants to do a nasal wash (like he had suggested, should I ask him to use an antibiotic? > > Thanks for any help, > > Krystena s > Caden 4 yrs GAII/ testing for CF > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 Thanks for the update. I've been wondering about you and Caden. Please keep in touch and good luck with the upcoming appointments. Gale > Hi everyone, > > I just wanted to let you know that I am still around. We are still waiting on the DNA results. Ambry received the blood sample on 10/28. > > We also have an (unofficial) appt Dec. 11th and 12th at Rainbow Babies in Cleveland Ohio, at the Cystic Fibrosis Clinic. > Caden will probably get the nasal pot. diff. test and a bronchosopy (is this bad?). We are just waiting for the final confirmation on that. > > Anyway, Caden has yet another bad sinus infection. We have an appt. with the allergist at 3:30 PM. Not sure what we will do as he does not respond to typical antibiotics. He has not suggested CF, nor have I mentioned it to him, yet.. I think I will today. I kinda wanted to see if he thought of it on his own. Maybe he will. > Should I ask to see an ENT? > Is there anything I could ask him to swab or culture? Like mucus, etc??? or would a ENT do that? > Normally, do they repeat the CT to see if the steroid treatment helped with the polyp? > > Also, if he wants to do a nasal wash (like he had suggested, should I ask him to use an antibiotic? > > Thanks for any help, > > Krystena s > Caden 4 yrs GAII/ testing for CF > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 Thanks for the update. I've been wondering about you and Caden. Please keep in touch and good luck with the upcoming appointments. Gale > Hi everyone, > > I just wanted to let you know that I am still around. We are still waiting on the DNA results. Ambry received the blood sample on 10/28. > > We also have an (unofficial) appt Dec. 11th and 12th at Rainbow Babies in Cleveland Ohio, at the Cystic Fibrosis Clinic. > Caden will probably get the nasal pot. diff. test and a bronchosopy (is this bad?). We are just waiting for the final confirmation on that. > > Anyway, Caden has yet another bad sinus infection. We have an appt. with the allergist at 3:30 PM. Not sure what we will do as he does not respond to typical antibiotics. He has not suggested CF, nor have I mentioned it to him, yet.. I think I will today. I kinda wanted to see if he thought of it on his own. Maybe he will. > Should I ask to see an ENT? > Is there anything I could ask him to swab or culture? Like mucus, etc??? or would a ENT do that? > Normally, do they repeat the CT to see if the steroid treatment helped with the polyp? > > Also, if he wants to do a nasal wash (like he had suggested, should I ask him to use an antibiotic? > > Thanks for any help, > > Krystena s > Caden 4 yrs GAII/ testing for CF > > > Quote Link to comment Share on other sites More sharing options...
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