Tips for living with CF

[Guest guest]

Hi Everyone,

My tip is to always trust yourself. As a new CF Mom you may not

always know all of the technical stuff but noone knows your child

better than you and if you feel the tiniest alarm go off in your gut

then do something about it and fight w/ all you have until you feel

reassured 100%. I could've saved Wyatt a hospital stay and NG feeds

if I'd have stuck up for us but it's ok. I learned my lesson!

I'm learning now to explore and learn all you can about CF and

medicines-the way they affect your child. Learn about a

proper/healthy diet to keep them running smoothly. Don't assume your

doctors will tell you everything you should know because they don't!

Treat your children normal. They aren't porceline..they won't

break. Our children are living longer and longer and what an

injustice it would be if you spoiled them and let them rule the roost

because they are " sick " . They need to learn to be respectful,

capable, intelligent, loving, compassionate, independant children so

they continue that into adulthood. We don't want to turn out hellions

onto the world just because we wanted to shelter them since their

lives were hard enough to begin with.

Finally. LAUGH!!!!!! Long, Hard and Often. It keeps us sane and it

helps to keep my husband and I together. We love eachother. We try to

work together.

OK I'll shut up now! Love to all, Christy mom of Wyatt 7wcf and

Hunter 2.5wocf