Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 Hi. I used Aclovate for years and it destroyed my skin and my life. My doctor did not tell me it was a steroid cream. He told me that i could use it for the rest of my life and it would never hurt me. He told me to use it every day and i did. He is now the head of Dermatology at one of the best hospitals in the U.S. and has a wonderful reputation. I will say, though, if your doctor told you to use it for a few days only and that's it, then i am sure that it will not hurt you. I don't know anyone with any skin condition that is healed in a few days, but it is worth a try. I would then put away the Aclovate and not use it again for several months. I have a friend with cea who used Aclovate(her doctor told her to use it every day) and when i found out what she was using , I made her stop. Her rosacea immediately got worse and she is now back to using the steroid cream because she can't control it without it. Her doctor told her again that she should use it. I had photoderm with a doctor who has rosacea and she told me i should be using a steroid cream every day. She said that she does. Needless to say, I won't be going back to her. I can only advise that I would try EVERYTHING else before you try the Aclovate. Your skin will seem better at first and it will quickly become dependent. I did not even have rosacea when i was given the cream; just a touch of eczema. I lay in bed at night and wonder what my life would be like if someone had told me right away not to use it. I certainly don't want you to have to be doing that one day. The best to you. Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 I agree completely with everything in this post and the other post by Adam--the steroids do not solve this problem--in fact, nothing cures seb derm. The best plan of action in my opinion is to minimize the outbreaks as much as possible with as little side effects as possible (steroid induced rosacea, which I have is a big side effect of steroids). I have been using Elidel for the last 10 days and to me, thus far, this is the best treatment for this condition that I have tried--I have used Desowen, Nizoral, and other anti-fungals. I have changed my diet dramatically--no dairy, no alcohol, no sugars, low carbs only, no fruit--I eat only proteins and vegetables and a few low carbs--and I feel great on this diet, lost 20 pounds in 6 weeks, and have plenty of energy, more " regular " if you know what I mean. Back to Elidel--I would ask your derm to give you either this or Protopic before the steroids--for me, the Elidel has been much more effective than steroids ever were--yes the steroids will clear you for a few days, but you probably have 30 or more years to live so what is the point of using steroids to just clear you for a few days--it is not a long term solution for seb derm. I am not sure yet if the Elidel is long term solution either but to me this stuff is incredible--my face feels normal for the first time in 2 years--I am full of regret, however, and do blame my doctor for putting me on the steroids which have have caused permanent redness in specific areas, grossly enlarged pores, and thinner skin--Protopic has been on the market for over a year and he never told me about this--if he had, perhaps I would not be visiting the cea board every day looking for advice Do not trust your doctor because he has MD after his name--take a poll on this site and the seb derm site and see how many people (other than doctors) have anything postive to say about steroid use--out of the thousands of posts, if you could find more than two people who suggest that steroids are good I would be suprised > >To: rosacea-support >Subject: Re:cea/SebDerm Dilemma >Date: Wed, 20 Mar 2002 16:15:59 -0000 > >Hi. I used Aclovate for years and it destroyed my skin and my life. >My doctor did not tell me it was a steroid cream. He told me that i >could use it for the rest of my life and it would never hurt me. He >told me to use it every day and i did. He is now the head of >Dermatology at one of the best hospitals in the U.S. and has a >wonderful reputation. > >I will say, though, if your doctor told you to use it for a few days >only and that's it, then i am sure that it will not hurt you. I don't >know anyone with any skin condition that is healed in a few days, but >it is worth a try. I would then put away the Aclovate and not use it >again for several months. I have a friend with cea who used >Aclovate(her doctor told her to use it every day) and when i found >out what she was using , I made her stop. Her rosacea immediately got >worse and she is now back to using the steroid cream because she >can't control it without it. Her doctor told her again that she >should use it. I had photoderm with a doctor who has rosacea and she >told me i should be using a steroid cream every day. She said that >she does. Needless to say, I won't be going back to her. > >I can only advise that I would try EVERYTHING else before you try the >Aclovate. Your skin will seem better at first and it will quickly >become dependent. I did not even have rosacea when i was given the >cream; just a touch of eczema. I lay in bed at night and wonder what >my life would be like if someone had told me right away not to use >it. I certainly don't want you to have to be doing that one day. > >The best to you. >Ann > > > >-- >Please read the list highlights before posting to the whole group >(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't >give a meaningful subject or trim your reply text. You must change the >subject when replying to a digest ! > >See http://www.drnase.com for info on his recently published book. > >To leave the list send an email to >rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 I agree completely with everything in this post and the other post by Adam--the steroids do not solve this problem--in fact, nothing cures seb derm. The best plan of action in my opinion is to minimize the outbreaks as much as possible with as little side effects as possible (steroid induced rosacea, which I have is a big side effect of steroids). I have been using Elidel for the last 10 days and to me, thus far, this is the best treatment for this condition that I have tried--I have used Desowen, Nizoral, and other anti-fungals. I have changed my diet dramatically--no dairy, no alcohol, no sugars, low carbs only, no fruit--I eat only proteins and vegetables and a few low carbs--and I feel great on this diet, lost 20 pounds in 6 weeks, and have plenty of energy, more " regular " if you know what I mean. Back to Elidel--I would ask your derm to give you either this or Protopic before the steroids--for me, the Elidel has been much more effective than steroids ever were--yes the steroids will clear you for a few days, but you probably have 30 or more years to live so what is the point of using steroids to just clear you for a few days--it is not a long term solution for seb derm. I am not sure yet if the Elidel is long term solution either but to me this stuff is incredible--my face feels normal for the first time in 2 years--I am full of regret, however, and do blame my doctor for putting me on the steroids which have have caused permanent redness in specific areas, grossly enlarged pores, and thinner skin--Protopic has been on the market for over a year and he never told me about this--if he had, perhaps I would not be visiting the cea board every day looking for advice Do not trust your doctor because he has MD after his name--take a poll on this site and the seb derm site and see how many people (other than doctors) have anything postive to say about steroid use--out of the thousands of posts, if you could find more than two people who suggest that steroids are good I would be suprised > >To: rosacea-support >Subject: Re:cea/SebDerm Dilemma >Date: Wed, 20 Mar 2002 16:15:59 -0000 > >Hi. I used Aclovate for years and it destroyed my skin and my life. >My doctor did not tell me it was a steroid cream. He told me that i >could use it for the rest of my life and it would never hurt me. He >told me to use it every day and i did. He is now the head of >Dermatology at one of the best hospitals in the U.S. and has a >wonderful reputation. > >I will say, though, if your doctor told you to use it for a few days >only and that's it, then i am sure that it will not hurt you. I don't >know anyone with any skin condition that is healed in a few days, but >it is worth a try. I would then put away the Aclovate and not use it >again for several months. I have a friend with cea who used >Aclovate(her doctor told her to use it every day) and when i found >out what she was using , I made her stop. Her rosacea immediately got >worse and she is now back to using the steroid cream because she >can't control it without it. Her doctor told her again that she >should use it. I had photoderm with a doctor who has rosacea and she >told me i should be using a steroid cream every day. She said that >she does. Needless to say, I won't be going back to her. > >I can only advise that I would try EVERYTHING else before you try the >Aclovate. Your skin will seem better at first and it will quickly >become dependent. I did not even have rosacea when i was given the >cream; just a touch of eczema. I lay in bed at night and wonder what >my life would be like if someone had told me right away not to use >it. I certainly don't want you to have to be doing that one day. > >The best to you. >Ann > > > >-- >Please read the list highlights before posting to the whole group >(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't >give a meaningful subject or trim your reply text. You must change the >subject when replying to a digest ! > >See http://www.drnase.com for info on his recently published book. > >To leave the list send an email to >rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2002 Report Share Posted March 20, 2002 I agree completely with everything in this post and the other post by Adam--the steroids do not solve this problem--in fact, nothing cures seb derm. The best plan of action in my opinion is to minimize the outbreaks as much as possible with as little side effects as possible (steroid induced rosacea, which I have is a big side effect of steroids). I have been using Elidel for the last 10 days and to me, thus far, this is the best treatment for this condition that I have tried--I have used Desowen, Nizoral, and other anti-fungals. I have changed my diet dramatically--no dairy, no alcohol, no sugars, low carbs only, no fruit--I eat only proteins and vegetables and a few low carbs--and I feel great on this diet, lost 20 pounds in 6 weeks, and have plenty of energy, more " regular " if you know what I mean. Back to Elidel--I would ask your derm to give you either this or Protopic before the steroids--for me, the Elidel has been much more effective than steroids ever were--yes the steroids will clear you for a few days, but you probably have 30 or more years to live so what is the point of using steroids to just clear you for a few days--it is not a long term solution for seb derm. I am not sure yet if the Elidel is long term solution either but to me this stuff is incredible--my face feels normal for the first time in 2 years--I am full of regret, however, and do blame my doctor for putting me on the steroids which have have caused permanent redness in specific areas, grossly enlarged pores, and thinner skin--Protopic has been on the market for over a year and he never told me about this--if he had, perhaps I would not be visiting the cea board every day looking for advice Do not trust your doctor because he has MD after his name--take a poll on this site and the seb derm site and see how many people (other than doctors) have anything postive to say about steroid use--out of the thousands of posts, if you could find more than two people who suggest that steroids are good I would be suprised > >To: rosacea-support >Subject: Re:cea/SebDerm Dilemma >Date: Wed, 20 Mar 2002 16:15:59 -0000 > >Hi. I used Aclovate for years and it destroyed my skin and my life. >My doctor did not tell me it was a steroid cream. He told me that i >could use it for the rest of my life and it would never hurt me. He >told me to use it every day and i did. He is now the head of >Dermatology at one of the best hospitals in the U.S. and has a >wonderful reputation. > >I will say, though, if your doctor told you to use it for a few days >only and that's it, then i am sure that it will not hurt you. I don't >know anyone with any skin condition that is healed in a few days, but >it is worth a try. I would then put away the Aclovate and not use it >again for several months. I have a friend with cea who used >Aclovate(her doctor told her to use it every day) and when i found >out what she was using , I made her stop. Her rosacea immediately got >worse and she is now back to using the steroid cream because she >can't control it without it. Her doctor told her again that she >should use it. I had photoderm with a doctor who has rosacea and she >told me i should be using a steroid cream every day. She said that >she does. Needless to say, I won't be going back to her. > >I can only advise that I would try EVERYTHING else before you try the >Aclovate. Your skin will seem better at first and it will quickly >become dependent. I did not even have rosacea when i was given the >cream; just a touch of eczema. I lay in bed at night and wonder what >my life would be like if someone had told me right away not to use >it. I certainly don't want you to have to be doing that one day. > >The best to you. >Ann > > > >-- >Please read the list highlights before posting to the whole group >(http://rosacea.ii.net/toc.html). Your post will be delayed if you don't >give a meaningful subject or trim your reply text. You must change the >subject when replying to a digest ! > >See http://www.drnase.com for info on his recently published book. > >To leave the list send an email to >rosacea-support-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
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