Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options. -do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others. I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems? Joyce Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 I would think a good sense of humor shows a positive side effect of LDN. There's over 3000 members on this forum, there's no way to know who is RR,PP, or SP unless a poll is taken, even then you'll be lucky to get 10% response. [low dose naltrexone] Off Topic Posts I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options. -do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others. I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems? Joyce Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 Does anyone know if LDN works for diabetis, or muscular distrophy or cerebral palsy? My spelling stinks I think. [low dose naltrexone] Off Topic Posts I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options. -do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others. I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems? Joyce Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 involuntary rapid eye movement [low dose naltrexone] Off Topic Posts I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options. -do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others. I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems? Joyce Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 > > Does anyone know if LDN works for diabetis, or muscular distrophy or cerebral palsy? My spelling stinks I think. ======= Dr. Bihari has used LDN for diabetes and Duchenne (sp?) Muscular Dystrophy. I will later try and find the write up on both. Bear with me, I've switched from webtv to MSNTV and this has been a nightmare. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 My son's first problem with MS was nystagmus and INO. He fully recoved from both problems with the high dose solumedrol IV for 3 days. Second problem was optic neuritis. He is pretty well cleared up of that also. He just started LDN after the second episode and hopefully will not have any more. Have you tried the solumedrol for the nystagmus? [low dose naltrexone] Off Topic Posts I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options. -do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others. I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems? Joyce Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 yep yep yep... there are other places around for that.. I know, I have 2 DEAD ones ... MSWatchers and an LDN Ezboard that I pay for Gold Community every year, apparently just so I can keep MyStory online for others to read. There's a whole paid for forum with different topic areas that people can gather and BS on. There's the GoodShape Histamine board that was an active site too... there's plenty of places to go. I list many of them on my MS info page. So I agree, too. Especially now that Novartis is coming out, may add some pressures and offer others options. I hope all who haven't benefited from LDN go get a prescription for Novartis, then they can let us know how it compares and what it's done for them. I have 2 Wayne Dyer , one is for people who want to talk about Wayne Dyer, mainly, if not Only. Then there's the other group that includes Wayne Dyer, but can be for anything relating, or others who have positive messages to share. Any tangents on one would be asked to post on the other group. Most other groups though do seem to be less active than they used to be. [low dose naltrexone] Off Topic Posts I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options. -do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others. I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems? Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 I've been thinking about this for a while. This list is so big. I'm not being sarcastic but there seems be little room for conversation. Having read the original posts I don't think anyone every intended it to get as huge as it. I have a rescue group and at times it horrible to manage. Last year when adam and I did some work on the web page I put some forums there but people kept spamming me and we took them down. I really believe medicine is combination of lots of things. I'm not insulted by what did. I just disagree.Nurses have been trained (and I know can chime in here) in holistic medicine way before it became a trendy term. Not only does it encompass what goes on physical and mentally but socially and spiritually. One of my favorite doctors in history was Abraham Maslow one of the important humanistic psychologists. He broke down human needs into these categories in a pyramid starting from the bottom Physiological Needs, Safety Needs, love and belonging needs, esteem needs and self actualization. His teachings have always stuck with me. so in our society we have reminders these. The tag for Checkers is YOU GOTTA EAT! The song form Damm Yankees YOU GOTTA HAVE HEART! or even MAY THE FORCE BE WITH YOU! I really believe its not just ldn or diet or supplements but attitude towards yourself. I really believe  that a good belly laugh is so good for you and just as important not only as a way to reach to other people but just plain good for your soul.I don't think that anyone expects this list to be this place. There is too much going on in LDN world. There is too many people.So I figured what the hell! If you guys want I'll be more than happy to start a group and see if we can take care of all those things that you guys have been asking for. Some people who can talk to guys about what ever you want. An online support group. You tell me--you don't have to tell me on this list but you can email me off list at psychrn@...cyndi On Sep 30, 2006, at 8:37 PM, Dave Carlin wrote: I do! :0))) [low dose naltrexone] Re: Off Topic Posts lol, whatsamatter Larry, feeling a little lonely?>> yep yep yep... there are other places around for that.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 I got a recommendation here just a few weekends ago about a supplement, tried it, and got the same response as the person who recommended it. It has really changed some things in my life for the better. I would hate to not have access to that type of experience here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 I agree. Although my family takes LDN for non-MS conditions and so we have to read through many emails on this list to find ones of relevance to us, it is still worth it for we too get a gem of help here and there--like the suggestion to try Chiro-Klenz for constipation (one of the side effects of many conditions). The Chiro-Klenz has proven incredibly helpful in that regard. Without the sharing via this list on related topics, we probably never would have known to try it. It's just so helpful to hear the real life experiences of people in similar situations and ideas on supplements / aides, etc. that do work. Kathie On Sun, 1 Oct 2006 01:28:56 GMT " nstubbs1@... " <nstubbs1@...> writes: > I got a recommendation here just a few > weekends ago about a supplement, tried it, > and got the same response as the person > who recommended it. It has really changed > some things in my life for the better. I > would hate to not have access to that > type of experience here. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 is there a webpage for that? On Sep 30, 2006, at 9:50 PM, Kathie Arnold wrote: > I agree. Although my family takes LDN for non-MS conditions and so we > have to read through many emails on this list to find ones of > relevance > to us, it is still worth it for we too get a gem of help here and > there--like the suggestion to try Chiro-Klenz for constipation (one of > the side effects of many conditions). The Chiro-Klenz has proven > incredibly helpful in that regard. Without the sharing via this > list on > related topics, we probably never would have known to try it. It's > just > so helpful to hear the real life experiences of people in similar > situations and ideas on supplements / aides, etc. that do work. > > Kathie > > > > On Sun, 1 Oct 2006 01:28:56 GMT " nstubbs1@... " > <nstubbs1@...> > writes: >> I got a recommendation here just a few >> weekends ago about a supplement, tried it, >> and got the same response as the person >> who recommended it. It has really changed >> some things in my life for the better. I >> would hate to not have access to that >> type of experience here. >> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 there's already TOO many options.. people just start new groups and new groups and new groups and they all suffer the same fate.... there's hundreds and thousands of DEAD groups, and people are subscribed to hundreds and thousands of DEAD groups and have to keep adding more and more sites to check for signs of life. I'm done with options, I have enough dead groups to check in on. Re: [low dose naltrexone] Re: Off Topic Posts do you guys want another option? cyndi On Sep 29, 2006, at 6:54 PM, LarryGC wrote: Too busy to feel that way. LOL. However, they're there... so it's not like there aren't other options. Even A Home Away from Home is another option, no? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 Me too, namely the Chiro-Klenz. I skipped it last night, maybe I shouldnt have, but I think it's working too good, although I'm squeezing the tea bags to make it stronger. I put on an old pair of jeans this morning that I had a problem buttoning before, no problem this morning. HMMMMMMM, a product that does says what it does, and does what it says.>> I got a recommendation here just a few> weekends ago about a supplement, tried it,> and got the same response as the person> who recommended it. It has really changed> some things in my life for the better. I> would hate to not have access to that> type of experience here. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 I'll try that one too. I notice more severity in symptoms should the colon not move like it should. I was glad to get this recommendation too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 I HAVE tried another product, but it's almost scary how well it works. It's called 'Oxy Powder'. You use it for 10 days, then periodically for maintenance. It absolutely liquifies EVERYTHIING. Sorry for being so descriptive! Re: [low dose naltrexone] Re: Off Topic Posts I'll try that one too. I notice moreseverity in symptoms should the colonnot move like it should. I was glad toget this recommendation too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 I wrote it down and will try to find it either in my health food store or on line. I'm in healthcare - do medical transcription at Dartmouth - very used to " descriptive " , just graphically descriptive - totally okay. Winter has started now with a mean GI virus everywhere - the ER doctors are full of " descriptive " notes about it. HA-HA Thanks again for the recommendation! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 The GOOD thing about the stuff, is that it WILL 'happen' on a schedule, and usually once per day. Nothing like the 'D' word, just oxygenated. Re: [low dose naltrexone] Re: Off Topic Posts I wrote it down and will try to findit either in my health food storeor on line. I'm in healthcare - domedical transcription at Dartmouth -very used to "descriptive", justgraphically descriptive - totallyokay. Winter has started now witha mean GI virus everywhere - the ERdoctors are full of "descriptive" notesabout it. HA-HAThanks again for the recommendation! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2006 Report Share Posted October 1, 2006 Thanks Dave. Good to know. I really believe getting oxygen in the system is a huge key to gastrointestintal stuff. A lot of stuff we don't need to grow there will if oxygen is not present - anaerobic organisms. I'll definitely find this and start it. I awful to forget to drink enough water and slows stuff down too much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2007 Report Share Posted November 4, 2007 Sorry, I should have posted the link. Hope it works. If not, please let me know. LDN_Users/?yguid=320098768 Alana > > Just wanted to say - > there is another really nice, friendly, helpful, positive, supportive, > non-judgemental group that allows off-topic - > > > LDN_Users > > > Alana > Quote Link to comment Share on other sites More sharing options...
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