Karyn...

November 8, 2002

In pancreatitis@y..., KarynWms@a... wrote:

>>> , I hope that the information that was put on the board re:

Hopkins and Lab On Line will help give you information to take back to your

doctor the next time. Which doctors are these who say this? Are they the ones

at MUSC? Karyn , RN

> Founder / Executive Director

> 1- / KarynWms@a...

> PAI Home Office: Indianapolis, Indiana, USA>>>

Karyn,

Her GI here always said that she must be diabetic for the enzymes to

be " normal " and her new pediatric GI at the MUSC, he almost argued

with me but I could see he stopped himself. I really think he has

had about the same amount of panc experience as her GI here did and

that is scary. I will have to see about her new ped GI as time goes

by. But Dr. Cotton seems really knowledgable and validates her pain.

He will be the one doing the ERCP. Here is a question for ya...Last

year when she had her ERCP, Dr Cotton cut her duct, said he did a

sphincterotomy (sp?)...she seemed like she was in horrible pain

afterwards for days, no elevated enzymes but he said it was from the

duct cutting that he did, that she was not in a flare up. But if her

enzymes hardly elevate and I really haven't seem them elevated in

over a year, I think, would have to look at her records for sure.

Why would he tell me she is definitely not in a flare up cuz of the

enzymes not being elevated?, cuz they really don't elevate anymore.

They did treat her pain adequately so I didn't argue with why she was

in pain as long as we all agreed that she was and they were treating

it. I just worry these stupid docs won't treat her for the pain cuz

of the enzymes. And I looked up as much of that site you gave as I

could and will go there often to nose around, it was very good thank

you. But I could not find the " normal " enzyme but still have pain

stuff you were saying was there. Could you send the specific page,

maybe I am reading it wrong. Thanks for all that you do... ---

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