Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Well I have been reading the post's and I understand about having problem's with doctor's that don't care especially when going to the ER. Living with pancreatitis for so long has taught me a lot about people that I have met along the way. First, my mom happen's to be an RN so I was lucky because she was always around watching and telling me what was happening when different doc's wanted to do test's on me. I have had many doctor's that have treated me like I was a drug addict and that I was making up the pain so I could get narcotic's. I even had one doc that made me addicted to morphine (I was taking 300mlg every four hrs). It has taken me a long time to actually find a doctor that truly believe's I am sick and he happen's to be a very young doc (35) and I am 26 so he helped me get completly off the narc's and I have been narcotic free for about two years now. It has been hard living with pain everyday but I would rather do that then go through another endoscopy or another round of crohn's disease. The other hardest thing I have come to see is telling people how sick I am and why I have disablity. Most people look at me and say " are you sure you are sick?? you look so healthy... " It has gotten to the point that I don't even tell people anymore that I have disablity because I hate the look people get like it is all in my head and I just don't want to get out and work. I would tell anyone to start your paperwork right now if you haven't already for disablity and make sure you have copies of every test, every ER visit, anything that will help your case. You will be turned down I was turned down three times and each time the reason was it would get better in a year. I was like it has been 12 years and it isn't getting better. It took me a long four years of blood, sweat and lot's of tear's trying to have people listen to me and it was such a relief to stand before a judge and have him say...yes you are sick and no you can't work because of all the medication you have to be on. Okay think I have made this post long enough....my point is there are going to be a lot of people out there that don't understand how sick we are but don't give up....I hope everyone has a pain free week......take care....KebaJ Quote Link to comment Share on other sites More sharing options...
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