Re: Re: wondering about doc after clinic visit

[Guest guest]

Too difficult to get him to cooperate? That doc ought to come to my

house...sheesh...at least you can bribe a 6-year-old. Mine is 2.5 years, and

absolutely HATES therapy...but we do it. (Every session: " No, move your hands

out of the way....no, move your hands out of the way...no... " " Sweetheart, do

you want to roll and look at Mommy or Daddy? You HAVE to roll one way or the

other...yes, you do. " " Dumpling, you have to stay on your side..[reposition

kid]..can't roll over in the middle of a side..[reposition kid again]..I mean

it...no, get back on your side so Mommy can finish..[get her back in place yet

again]..I know you want Daddy to bop...he's doing your other side after we're

done with this one..[pick her up, and turn her onto her side once again]..no,

don't roll over yet, only 2 more minutes to go on this side. " " Sweetie, we ARE

helping you. " - this one in response to her saying " Help me Mommy! " And various

other stuff.) Geesh...cooperation isn't the point (it would be nice, but oh

well). Whether or not that kid cooperates has no bearing on whether or not he

needs CPT.

My daughter, btw, is also double deltaF508. Hasn't had a lot of lung

involvement, but her docs are playing it safe and treating her lungs

preventively.

Shanna

mom of Triana, age 2 wcf

Re: wondering about doc after clinic visit

Sounds like my child's doctor. I get the feeling that he would rather

that I stay uneducated about cf and leave everything up to him. If

that was case, my daughter would still not be on Pulmozyme or use the

Vest therapy. We, as parents, are very concerned anout our children's

future. We therefore put forth the time and energy in the cf

research. I feel some doctors are so busy with patients, etc. they

don't have the time to read up on current studies. My doctor also

looks at me like he doesn't know what I am talking about and then he

dismisses my question. We are seriously thinking of switching

doctors. I just don't know where to begin.

My nephew with cf also uses this same doctor. He is six years old

with two delta 508 genes and still is not doing any chest physical

therapy. The doctor said that it would be too difficult to get him to

cooperate. When does a child decide what treatment they should

receive???

I was also told that they clean each room after each patient, but I

don't think it is true.

Sharon

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[Guest guest]

In a message dated 12/25/2002 7:49:35 PM Central Standard Time,

sarbri@... writes:

> was because the vitamins are not supposed to be given like for 6

> hours after Cipro and 2 hours before which did not leave a lot of

> time...He was UNAWARE about Cipro and Vitamin reaction..he actually

> pretty much told me I was wrong..even after I told him it was in the

> info that came with the Cipro.

>

I didn't know this! Why? What does it do? Deb A

[Guest guest]

In a message dated 12/25/2002 7:49:35 PM Central Standard Time,

sarbri@... writes:

> was because the vitamins are not supposed to be given like for 6

> hours after Cipro and 2 hours before which did not leave a lot of

> time...He was UNAWARE about Cipro and Vitamin reaction..he actually

> pretty much told me I was wrong..even after I told him it was in the

> info that came with the Cipro.

>

I didn't know this! Why? What does it do? Deb A

[Guest guest]

In a message dated 12/25/2002 7:49:35 PM Central Standard Time,

sarbri@... writes:

> was because the vitamins are not supposed to be given like for 6

> hours after Cipro and 2 hours before which did not leave a lot of

> time...He was UNAWARE about Cipro and Vitamin reaction..he actually

> pretty much told me I was wrong..even after I told him it was in the

> info that came with the Cipro.

>

I didn't know this! Why? What does it do? Deb A