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Have I told you all lately how much you all mean to me!

I just can't thank you all enough for keeping me sane and optimistic about

Shelby's future.

n, Torsten, Deb, Rosemary, Grandma Bev (hope is getting better) and

all you others that have been corresponding (emailing) (whatever) for the last

19 months.

Miss Goober Girl!!!! Even though 85% of your emails are completely

unintelligible to me (too technical) the 15% that I can understand fill me with

hope.

If it does take another ten years to sort out the cure, then hopefully it won't

be too late for ALL our kids.

Once again thank you all and keep up the very good work.

Grandma Maggs (Shelby, 2 on 16th November)

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