Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 In a message dated 12/1/2002 11:04:30 AM Central Standard Time, maria_law@... writes: > , > > Our thoughts are with you. I really hate to hear of one so young > becoming an angel. It just makes your heart break. I am sure this is a > very painful time for you and your family. Please know we are thinking > of you and hoping our thoughts take away some of the pain. > > - mom to Emma 2 years old w/cf and Isabelle 4 years old wo/cf > , I sent mary your letter. And I will send others to just in case she doesn't get them. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 Well, I did get the message and I did post back, but the sent copy to this list never showed up on cfparents--beats me, I just sorry that this happened at all; I think that he was four and I posted it first to this list and to Torsten as a forward, then copied it to the other lists, not know ing whether she belonged or not; I think that it showed up on a smaller list to which she does not belong. We can all guess which list it did not show up on! I usually do not have any trouble forwarding things, so long as at least one individual name is included. I believe that this list does not take direct forwards, so included Torsten's name as well--but never saw it on any but one list, and apologize for having just assumed that it would show up, but it did not. I just am so sorry. Sadly, I think that the young chap was four years old, n Rojas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 , Our thoughts are with you. I really hate to hear of one so young becoming an angel. It just makes your heart break. I am sure this is a very painful time for you and your family. Please know we are thinking of you and hoping our thoughts take away some of the pain. - mom to Emma 2 years old w/cf and Isabelle 4 years old wo/cf ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 , Our thoughts are with you. I really hate to hear of one so young becoming an angel. It just makes your heart break. I am sure this is a very painful time for you and your family. Please know we are thinking of you and hoping our thoughts take away some of the pain. - mom to Emma 2 years old w/cf and Isabelle 4 years old wo/cf ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 , Our thoughts are with you. I really hate to hear of one so young becoming an angel. It just makes your heart break. I am sure this is a very painful time for you and your family. Please know we are thinking of you and hoping our thoughts take away some of the pain. - mom to Emma 2 years old w/cf and Isabelle 4 years old wo/cf ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 DEAR MARY, I JUST READ YOUR LETTER ON THE GROUP PAGE MY NAME IS IRIS AND I LIVE IN SCOTLAND. I HAVE ONLY BEEN ON THIS PAGE FOR A WEEK OR TWO AND DONT REALLY KNOW ANYBODY YET. I LOST MY DAUGHTER NATASHA 6 YEARS AGO A MONTH LATER I HAD WHAT YOU WOULD CALL A LATE IN LIFE BABY AND HE WAS BORN A MONTH AND ONE DAY AFTER SHE DIED. NOTHING AND NO ONE WILL EVER REPLACE HER AND THE LAST THING I NEEDED WAS TO HAVE ANOTHER CHILD WITH CF. THE PAIN IS SO ACUTE BUT THE ONLY ADVICE I CAN GIVE YOU IS TO ALWAYS TALK ABOUT THEM DONT LET IT BOTTLE UP INSIDE AND JUST REMEMBER THAT THE EYE HAS NOT SEEN NOT THE EAR HEARD WHAT THINGS GOD HAS PREPARED FOR THOSE WHO LOVE HIM AS I AM SURE THEY DID. I AM SURE NATASHA IS GIVING HIM A CUDDLE FOR YOU GOD BLESS TAKE CARE IRIS gdattig5@... wrote:This is a letter that wrote to me and she wanted everyone on here to know that her grandson lost his battle with CF. She is having problems with getting it to post so I asked her if it was OK if I did. So here it is hello deb, i left mcesana a message that my grandson is an angel now.. i tried to leave an update on him when he was so ill but my messages just arent getting through on cfparents yahoo groups that is the only group that i belong to so i dont know what has happened.. i didnt leave any bad messages..and it wasnt returned to me or anything so i dont understand..but my grandson was 4 years old.. we went to orlando fl for his make a wish trip and he got really sick while we were there and had to be hospitalized while he was there. then we asked could he please be brought back to arkansas so the family could get there to be with him.. anyway he arrived back by medi flight at 230 am on november 13th and passed away at 830 pm on november 13th.. my son who also has cf made it to the hospital cause that is what my grandson taloen wanted was his mom and nana and uncle daniel to be there.. it was very hard on all of us..and it is still very hard on all of us.. i dont know how long it will be before the pain eases up but i know it takes time.. the holidays are the worst to get thru..anyway i just wanted to let some of you that i know that i have talked to several times on here know what was going on.. he did get to fulfull that wish but his biggest wish was to meet elton john and sing tiny dancer with him.. anyway gotta go now so talk to you later.. mary son 19wcf and grandson 4 wcf.. 4 other children wocf and 1grandson wocf and one granddaughter i hope is wocf she has not been tested yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 DEAR MARY, I JUST READ YOUR LETTER ON THE GROUP PAGE MY NAME IS IRIS AND I LIVE IN SCOTLAND. I HAVE ONLY BEEN ON THIS PAGE FOR A WEEK OR TWO AND DONT REALLY KNOW ANYBODY YET. I LOST MY DAUGHTER NATASHA 6 YEARS AGO A MONTH LATER I HAD WHAT YOU WOULD CALL A LATE IN LIFE BABY AND HE WAS BORN A MONTH AND ONE DAY AFTER SHE DIED. NOTHING AND NO ONE WILL EVER REPLACE HER AND THE LAST THING I NEEDED WAS TO HAVE ANOTHER CHILD WITH CF. THE PAIN IS SO ACUTE BUT THE ONLY ADVICE I CAN GIVE YOU IS TO ALWAYS TALK ABOUT THEM DONT LET IT BOTTLE UP INSIDE AND JUST REMEMBER THAT THE EYE HAS NOT SEEN NOT THE EAR HEARD WHAT THINGS GOD HAS PREPARED FOR THOSE WHO LOVE HIM AS I AM SURE THEY DID. I AM SURE NATASHA IS GIVING HIM A CUDDLE FOR YOU GOD BLESS TAKE CARE IRIS gdattig5@... wrote:This is a letter that wrote to me and she wanted everyone on here to know that her grandson lost his battle with CF. She is having problems with getting it to post so I asked her if it was OK if I did. So here it is hello deb, i left mcesana a message that my grandson is an angel now.. i tried to leave an update on him when he was so ill but my messages just arent getting through on cfparents yahoo groups that is the only group that i belong to so i dont know what has happened.. i didnt leave any bad messages..and it wasnt returned to me or anything so i dont understand..but my grandson was 4 years old.. we went to orlando fl for his make a wish trip and he got really sick while we were there and had to be hospitalized while he was there. then we asked could he please be brought back to arkansas so the family could get there to be with him.. anyway he arrived back by medi flight at 230 am on november 13th and passed away at 830 pm on november 13th.. my son who also has cf made it to the hospital cause that is what my grandson taloen wanted was his mom and nana and uncle daniel to be there.. it was very hard on all of us..and it is still very hard on all of us.. i dont know how long it will be before the pain eases up but i know it takes time.. the holidays are the worst to get thru..anyway i just wanted to let some of you that i know that i have talked to several times on here know what was going on.. he did get to fulfull that wish but his biggest wish was to meet elton john and sing tiny dancer with him.. anyway gotta go now so talk to you later.. mary son 19wcf and grandson 4 wcf.. 4 other children wocf and 1grandson wocf and one granddaughter i hope is wocf she has not been tested yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 DEAR MARY, I JUST READ YOUR LETTER ON THE GROUP PAGE MY NAME IS IRIS AND I LIVE IN SCOTLAND. I HAVE ONLY BEEN ON THIS PAGE FOR A WEEK OR TWO AND DONT REALLY KNOW ANYBODY YET. I LOST MY DAUGHTER NATASHA 6 YEARS AGO A MONTH LATER I HAD WHAT YOU WOULD CALL A LATE IN LIFE BABY AND HE WAS BORN A MONTH AND ONE DAY AFTER SHE DIED. NOTHING AND NO ONE WILL EVER REPLACE HER AND THE LAST THING I NEEDED WAS TO HAVE ANOTHER CHILD WITH CF. THE PAIN IS SO ACUTE BUT THE ONLY ADVICE I CAN GIVE YOU IS TO ALWAYS TALK ABOUT THEM DONT LET IT BOTTLE UP INSIDE AND JUST REMEMBER THAT THE EYE HAS NOT SEEN NOT THE EAR HEARD WHAT THINGS GOD HAS PREPARED FOR THOSE WHO LOVE HIM AS I AM SURE THEY DID. I AM SURE NATASHA IS GIVING HIM A CUDDLE FOR YOU GOD BLESS TAKE CARE IRIS gdattig5@... wrote:This is a letter that wrote to me and she wanted everyone on here to know that her grandson lost his battle with CF. She is having problems with getting it to post so I asked her if it was OK if I did. So here it is hello deb, i left mcesana a message that my grandson is an angel now.. i tried to leave an update on him when he was so ill but my messages just arent getting through on cfparents yahoo groups that is the only group that i belong to so i dont know what has happened.. i didnt leave any bad messages..and it wasnt returned to me or anything so i dont understand..but my grandson was 4 years old.. we went to orlando fl for his make a wish trip and he got really sick while we were there and had to be hospitalized while he was there. then we asked could he please be brought back to arkansas so the family could get there to be with him.. anyway he arrived back by medi flight at 230 am on november 13th and passed away at 830 pm on november 13th.. my son who also has cf made it to the hospital cause that is what my grandson taloen wanted was his mom and nana and uncle daniel to be there.. it was very hard on all of us..and it is still very hard on all of us.. i dont know how long it will be before the pain eases up but i know it takes time.. the holidays are the worst to get thru..anyway i just wanted to let some of you that i know that i have talked to several times on here know what was going on.. he did get to fulfull that wish but his biggest wish was to meet elton john and sing tiny dancer with him.. anyway gotta go now so talk to you later.. mary son 19wcf and grandson 4 wcf.. 4 other children wocf and 1grandson wocf and one granddaughter i hope is wocf she has not been tested yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 , I am so sorry to hear about your grandson. He sounds so mature and so brave for such a little boy. I am sure that many tears are being shed by the members of this group; for you, for your grandson and for your family. Sincerely, Gale > This is a letter that wrote to me and she wanted everyone on here to > know that her grandson lost his battle with CF. She is having problems with > getting it to post so I asked her if it was OK if I did. So here it is > > > hello deb, > i left mcesana a message that my grandson is an > angel now.. i tried to leave an update on him when he > was so ill but my messages just arent getting through > on cfparents yahoo groups that is the only group that > i belong to so i dont know what has happened.. i didnt > leave any bad messages..and it wasnt returned to me > or anything so i dont understand..but my grandson was > 4 years old.. we went to orlando fl for his make a > wish trip and he got really sick while we were there > and had to be hospitalized while he was there. then we > asked could he please be brought back to arkansas so > the family could get there to be with him.. anyway he > arrived back by medi flight at 230 am on november 13th > and passed away at 830 pm on november 13th.. my son > who also has cf made it to the hospital cause that is > what my grandson taloen wanted was his mom and nana > and uncle daniel to be there.. it was very hard on all > of us..and it is still very hard on all of us.. i dont > know how long it will be before the pain eases up but > i know it takes time.. the holidays are the worst to > get thru..anyway i just wanted to let some of you that > i know that i have talked to several times on here > know what was going on.. he did get to fulfull that > wish but his biggest wish was to meet elton john and > sing tiny dancer with him.. anyway gotta go now so > talk to you later.. mary son 19wcf and grandson 4 > wcf.. 4 other children wocf and 1grandson wocf and one > granddaughter i hope is wocf she has not been tested > yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2002 Report Share Posted December 1, 2002 , I am so sorry to hear about your grandson. He sounds so mature and so brave for such a little boy. I am sure that many tears are being shed by the members of this group; for you, for your grandson and for your family. Sincerely, Gale > This is a letter that wrote to me and she wanted everyone on here to > know that her grandson lost his battle with CF. She is having problems with > getting it to post so I asked her if it was OK if I did. So here it is > > > hello deb, > i left mcesana a message that my grandson is an > angel now.. i tried to leave an update on him when he > was so ill but my messages just arent getting through > on cfparents yahoo groups that is the only group that > i belong to so i dont know what has happened.. i didnt > leave any bad messages..and it wasnt returned to me > or anything so i dont understand..but my grandson was > 4 years old.. we went to orlando fl for his make a > wish trip and he got really sick while we were there > and had to be hospitalized while he was there. then we > asked could he please be brought back to arkansas so > the family could get there to be with him.. anyway he > arrived back by medi flight at 230 am on november 13th > and passed away at 830 pm on november 13th.. my son > who also has cf made it to the hospital cause that is > what my grandson taloen wanted was his mom and nana > and uncle daniel to be there.. it was very hard on all > of us..and it is still very hard on all of us.. i dont > know how long it will be before the pain eases up but > i know it takes time.. the holidays are the worst to > get thru..anyway i just wanted to let some of you that > i know that i have talked to several times on here > know what was going on.. he did get to fulfull that > wish but his biggest wish was to meet elton john and > sing tiny dancer with him.. anyway gotta go now so > talk to you later.. mary son 19wcf and grandson 4 > wcf.. 4 other children wocf and 1grandson wocf and one > granddaughter i hope is wocf she has not been tested > yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 , I am so sorry for your loss. I am new to this list, so I dont think that you know me. I just wanted you to know that you and your family are in my thoughts and prayers. Vondie Letter from This is a letter that wrote to me and she wanted everyone on here to know that her grandson lost his battle with CF. She is having problems with getting it to post so I asked her if it was OK if I did. So here it is hello deb, i left mcesana a message that my grandson is an angel now.. i tried to leave an update on him when he was so ill but my messages just arent getting through on cfparents yahoo groups that is the only group that i belong to so i dont know what has happened.. i didnt leave any bad messages..and it wasnt returned to me or anything so i dont understand..but my grandson was 4 years old.. we went to orlando fl for his make a wish trip and he got really sick while we were there and had to be hospitalized while he was there. then we asked could he please be brought back to arkansas so the family could get there to be with him.. anyway he arrived back by medi flight at 230 am on november 13th and passed away at 830 pm on november 13th.. my son who also has cf made it to the hospital cause that is what my grandson taloen wanted was his mom and nana and uncle daniel to be there.. it was very hard on all of us..and it is still very hard on all of us.. i dont know how long it will be before the pain eases up but i know it takes time.. the holidays are the worst to get thru..anyway i just wanted to let some of you that i know that i have talked to several times on here know what was going on.. he did get to fulfull that wish but his biggest wish was to meet elton john and sing tiny dancer with him.. anyway gotta go now so talk to you later.. mary son 19wcf and grandson 4 wcf.. 4 other children wocf and 1grandson wocf and one granddaughter i hope is wocf she has not been tested yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 , I am so sorry for your loss. I am new to this list, so I dont think that you know me. I just wanted you to know that you and your family are in my thoughts and prayers. Vondie Letter from This is a letter that wrote to me and she wanted everyone on here to know that her grandson lost his battle with CF. She is having problems with getting it to post so I asked her if it was OK if I did. So here it is hello deb, i left mcesana a message that my grandson is an angel now.. i tried to leave an update on him when he was so ill but my messages just arent getting through on cfparents yahoo groups that is the only group that i belong to so i dont know what has happened.. i didnt leave any bad messages..and it wasnt returned to me or anything so i dont understand..but my grandson was 4 years old.. we went to orlando fl for his make a wish trip and he got really sick while we were there and had to be hospitalized while he was there. then we asked could he please be brought back to arkansas so the family could get there to be with him.. anyway he arrived back by medi flight at 230 am on november 13th and passed away at 830 pm on november 13th.. my son who also has cf made it to the hospital cause that is what my grandson taloen wanted was his mom and nana and uncle daniel to be there.. it was very hard on all of us..and it is still very hard on all of us.. i dont know how long it will be before the pain eases up but i know it takes time.. the holidays are the worst to get thru..anyway i just wanted to let some of you that i know that i have talked to several times on here know what was going on.. he did get to fulfull that wish but his biggest wish was to meet elton john and sing tiny dancer with him.. anyway gotta go now so talk to you later.. mary son 19wcf and grandson 4 wcf.. 4 other children wocf and 1grandson wocf and one granddaughter i hope is wocf she has not been tested yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 , I am so sorry for your loss. I am new to this list, so I dont think that you know me. I just wanted you to know that you and your family are in my thoughts and prayers. Vondie Letter from This is a letter that wrote to me and she wanted everyone on here to know that her grandson lost his battle with CF. She is having problems with getting it to post so I asked her if it was OK if I did. So here it is hello deb, i left mcesana a message that my grandson is an angel now.. i tried to leave an update on him when he was so ill but my messages just arent getting through on cfparents yahoo groups that is the only group that i belong to so i dont know what has happened.. i didnt leave any bad messages..and it wasnt returned to me or anything so i dont understand..but my grandson was 4 years old.. we went to orlando fl for his make a wish trip and he got really sick while we were there and had to be hospitalized while he was there. then we asked could he please be brought back to arkansas so the family could get there to be with him.. anyway he arrived back by medi flight at 230 am on november 13th and passed away at 830 pm on november 13th.. my son who also has cf made it to the hospital cause that is what my grandson taloen wanted was his mom and nana and uncle daniel to be there.. it was very hard on all of us..and it is still very hard on all of us.. i dont know how long it will be before the pain eases up but i know it takes time.. the holidays are the worst to get thru..anyway i just wanted to let some of you that i know that i have talked to several times on here know what was going on.. he did get to fulfull that wish but his biggest wish was to meet elton john and sing tiny dancer with him.. anyway gotta go now so talk to you later.. mary son 19wcf and grandson 4 wcf.. 4 other children wocf and 1grandson wocf and one granddaughter i hope is wocf she has not been tested yet just born.. see ya and thanks for listening.. mary Quote Link to comment Share on other sites More sharing options...
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