unknown pancreatitis

[Guest guest]

This would probably be the place to spill my guts about everything I

have gone through in last ten years...You just wouldn't believe it.

I am going to save some of you alot of needless surgeries, cat

scans, x-rays, etc....and possibly some hope for those of you who

are not alcoholics, heavy drug users, or eating only fat for

breakfast, lunch, and dinner...After ten years and 50 pancreas

attacks later, (i am not being sarcastic), I finally know why I keep

having these attacks..see, not only did my physician not have a

clue, but my girlfriend just happened to run across it on the

internet..and she has been ramming this info that she found down

everyones throat until they finally gave me a genetic test and found

out that I had a mutated cystic fibrosis gene which is causing my

pancreatitis. Now let me tell you, that noone in my family has this

disease and I would never, ever, ever, have went that direction on

my own since it is not that common. Only now, since they have

figured this out, (After they have put you through the wringer and

made you stick to special diets, cut out certain foods which were

originally thought to be triggers, keep diaries of everything you

ate or did, accused you of being an alcoholic, or tried to make your

family believe you were a closet alcoholic)they have tested more and

more people and found that there are more people who have this gene

than they thought...BE FIRM...Ask your doctor if he knows anything

about this and if not..DEMAND a rx for a genetic test. Don't just

accept that you have this and will never know why..I wouldn't have

made it this far if I continued to let them decide for me what to

do..after all, they tried for 10 YEARS and couldn't come up with

anything....so on your next visit, ASK just for the heck of

it...Some of you will be very surprised

Happy Testing, Dennis