Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 , I glad to hear that your starting to feel a little better. Just remember that Nov 1st. isn't that far away and you will probably get the answer that you want to hear. I know when you are wearing to hear an answer to weather or not you can have surgery, especially when you seem it will help, takes a lifetime to hear the right answer. Just remember tomorrow your one day closer to getting an answer. It seem that your new doctor is on the ball and surely he can come up with a solution to keep you out of the hospital so much. Just lay it on the line for him and let him know your can take much more of this, that it wearing you out. If he doesn't have the right answer, than ask him who he can refer you to give you the help that you deserve. Keep you chin up, brighter day will be ahead for you. I feel it in the weary old bones of mine. I the meantime I'll keep you in my prayers. Take care, Louie in WV confused Well, I had my long awaited appointment with the biliary surgeon at UAB today. He was indeed a very nice man, but it seems I am on hold a bit longer. He was not happy with the quality of the ct scans from my small local hospital, so he wants to repeat the CT. He talked with my GI on the phone while I was there. The GI told him that there is some stricture at the cystic duct at the point where they removed my gallbladder. The surgeon wants to see the ERCP films so he can see if he thinks there's enough of stricture to be causing my problems. The surgeon said if any one of the ducts is causing the problems that it is very correctable with surgery and that once corrected, you normally have no more problems. However, he said if the problem is actually adhesions that even though they can be removed surgically, you run the risk of causing more adhesions in the future. I heard the surgeon say to my GI that there is obviously some liver damage going on as I've had 3 separate incidents where the liver enzymes were dangerously elevated. So, anyway, the plan is that the surgeon will get the ERCP films from my GI and review them. I will have a ct scan at UAB on Nov 1st and then see the surgeon that afternoon. I'm just scared that if the surgeon feels that adhesions are the problem, he's going to tell me there is nothing he can do. I have not gone longer than two weeks without being in the hospital since this began in mid July. I really just don't see how I can go on like this for much longer. Right now it seems that pancreas has not sustained permanent damage, but I would think it is only a matter of time if I keep having these attacks. Although, out of the eight times I've been in the hospital since July, the pancreas enzymes have only been elevated 3 times. the liver enzymes have been elevated every time, but only dangerously elevated 3 times. Coincidentally, only one of the three times the liver enzymes were dangerously elevated was when the panc enzymes were also elevated. I just got out of the hospital Saturday and I have been doing better. Not great, but better. More than anything right now I'm scared and want some answers as to why this keeps happening! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 , I glad to hear that your starting to feel a little better. Just remember that Nov 1st. isn't that far away and you will probably get the answer that you want to hear. I know when you are wearing to hear an answer to weather or not you can have surgery, especially when you seem it will help, takes a lifetime to hear the right answer. Just remember tomorrow your one day closer to getting an answer. It seem that your new doctor is on the ball and surely he can come up with a solution to keep you out of the hospital so much. Just lay it on the line for him and let him know your can take much more of this, that it wearing you out. If he doesn't have the right answer, than ask him who he can refer you to give you the help that you deserve. Keep you chin up, brighter day will be ahead for you. I feel it in the weary old bones of mine. I the meantime I'll keep you in my prayers. Take care, Louie in WV confused Well, I had my long awaited appointment with the biliary surgeon at UAB today. He was indeed a very nice man, but it seems I am on hold a bit longer. He was not happy with the quality of the ct scans from my small local hospital, so he wants to repeat the CT. He talked with my GI on the phone while I was there. The GI told him that there is some stricture at the cystic duct at the point where they removed my gallbladder. The surgeon wants to see the ERCP films so he can see if he thinks there's enough of stricture to be causing my problems. The surgeon said if any one of the ducts is causing the problems that it is very correctable with surgery and that once corrected, you normally have no more problems. However, he said if the problem is actually adhesions that even though they can be removed surgically, you run the risk of causing more adhesions in the future. I heard the surgeon say to my GI that there is obviously some liver damage going on as I've had 3 separate incidents where the liver enzymes were dangerously elevated. So, anyway, the plan is that the surgeon will get the ERCP films from my GI and review them. I will have a ct scan at UAB on Nov 1st and then see the surgeon that afternoon. I'm just scared that if the surgeon feels that adhesions are the problem, he's going to tell me there is nothing he can do. I have not gone longer than two weeks without being in the hospital since this began in mid July. I really just don't see how I can go on like this for much longer. Right now it seems that pancreas has not sustained permanent damage, but I would think it is only a matter of time if I keep having these attacks. Although, out of the eight times I've been in the hospital since July, the pancreas enzymes have only been elevated 3 times. the liver enzymes have been elevated every time, but only dangerously elevated 3 times. Coincidentally, only one of the three times the liver enzymes were dangerously elevated was when the panc enzymes were also elevated. I just got out of the hospital Saturday and I have been doing better. Not great, but better. More than anything right now I'm scared and want some answers as to why this keeps happening! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 , I glad to hear that your starting to feel a little better. Just remember that Nov 1st. isn't that far away and you will probably get the answer that you want to hear. I know when you are wearing to hear an answer to weather or not you can have surgery, especially when you seem it will help, takes a lifetime to hear the right answer. Just remember tomorrow your one day closer to getting an answer. It seem that your new doctor is on the ball and surely he can come up with a solution to keep you out of the hospital so much. Just lay it on the line for him and let him know your can take much more of this, that it wearing you out. If he doesn't have the right answer, than ask him who he can refer you to give you the help that you deserve. Keep you chin up, brighter day will be ahead for you. I feel it in the weary old bones of mine. I the meantime I'll keep you in my prayers. Take care, Louie in WV confused Well, I had my long awaited appointment with the biliary surgeon at UAB today. He was indeed a very nice man, but it seems I am on hold a bit longer. He was not happy with the quality of the ct scans from my small local hospital, so he wants to repeat the CT. He talked with my GI on the phone while I was there. The GI told him that there is some stricture at the cystic duct at the point where they removed my gallbladder. The surgeon wants to see the ERCP films so he can see if he thinks there's enough of stricture to be causing my problems. The surgeon said if any one of the ducts is causing the problems that it is very correctable with surgery and that once corrected, you normally have no more problems. However, he said if the problem is actually adhesions that even though they can be removed surgically, you run the risk of causing more adhesions in the future. I heard the surgeon say to my GI that there is obviously some liver damage going on as I've had 3 separate incidents where the liver enzymes were dangerously elevated. So, anyway, the plan is that the surgeon will get the ERCP films from my GI and review them. I will have a ct scan at UAB on Nov 1st and then see the surgeon that afternoon. I'm just scared that if the surgeon feels that adhesions are the problem, he's going to tell me there is nothing he can do. I have not gone longer than two weeks without being in the hospital since this began in mid July. I really just don't see how I can go on like this for much longer. Right now it seems that pancreas has not sustained permanent damage, but I would think it is only a matter of time if I keep having these attacks. Although, out of the eight times I've been in the hospital since July, the pancreas enzymes have only been elevated 3 times. the liver enzymes have been elevated every time, but only dangerously elevated 3 times. Coincidentally, only one of the three times the liver enzymes were dangerously elevated was when the panc enzymes were also elevated. I just got out of the hospital Saturday and I have been doing better. Not great, but better. More than anything right now I'm scared and want some answers as to why this keeps happening! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Louie, Thanks again. I managed to make it to work today. I had to leave a little early cause I had an appt for an eye exam. I'm not doing that great right now but the pain hasn't gotten bad enough to go to the ER. Hope this finds you doing well. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Louie, Thanks again. I managed to make it to work today. I had to leave a little early cause I had an appt for an eye exam. I'm not doing that great right now but the pain hasn't gotten bad enough to go to the ER. Hope this finds you doing well. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Louie, Thanks again. I managed to make it to work today. I had to leave a little early cause I had an appt for an eye exam. I'm not doing that great right now but the pain hasn't gotten bad enough to go to the ER. Hope this finds you doing well. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2002 Report Share Posted October 24, 2002 Hi W I glad that you made it to work on Wed. and are feeling OK. I doing pretty good myself right now. I guess I'd better knock on wood, so I don't jinx things. I hope you keep are feeling better. Take Care and Don't over due it. Louie in WV Re: confused to W Louie, Thanks again. I managed to make it to work today. I had to leave a little early cause I had an appt for an eye exam. I'm not doing that great right now but the pain hasn't gotten bad enough to go to the ER. Hope this finds you doing well. W Quote Link to comment Share on other sites More sharing options...
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