Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > hey is there any one out there dealing with chronic pancreatitis in > kids. my 12 year old daughter was diagnosed in 2000. today we are > not any closer to an answer for her than in 2000 when she had her 1st > attack. also, what do i feed > her. went to nutritionalist. what a waste of time and money, every thing she told us is different than what the doctor > said. and what the doctor says is different from what i find on line. > HELP!! HELP!! > > thanks all I am sorry to hear that your daughter has had so much difficulty getting a clear diagnosis of her pancreatitis problems. Chronic pancreatitis is a complex disease and oftentimes one that is very difficult to diagnose, especially with children. The diagnosis of Idiopathic causes is used when all other known causes are tested and rejected. I am not sure what either your doctor or nutritionist recommended for diet changes. The well recognized and standard diet usually recommended for pancreatitis patients is one that is low fat. Usual suggestions are for no more than a maximum of 30 grams of fat daily, many of us eat even less. This would mean avoiding any fried foods, many processed foods and fatty meats such as beef and lamb. Cook with turkey products, white breast meat chicken, lean pork and fish, removing all skin from poultry. Many bakery products are high in fat, especially those that contain eggs, butter or oils, and should be avoided. Almost all vegetables and fruits are fine, except avacados. Avoid butter, gravies, and nuts. Check the nutrition labels of any foods, anything containing more than 3 grams of fat does not qualify as " low fat " . If you wish to email me, I have a cooking and diet plan that you may find useful for ideas. With hope and prayers, Heidi Heidi H. Griffeth South Carolina hhessgriffeth@... Southeastern Representative Pancreatitis Association, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2002 Report Share Posted September 22, 2002 > hey is there any one out there dealing with chronic pancreatitis in > kids. my 12 year old daughter was diagnosed in 2000. today we are > not any closer to an answer for her than in 2000 when she had her 1st > attack. also, what do i feed > her. went to nutritionalist. what a waste of time and money, every thing she told us is different than what the doctor > said. and what the doctor says is different from what i find on line. > HELP!! HELP!! > > thanks all I am sorry to hear that your daughter has had so much difficulty getting a clear diagnosis of her pancreatitis problems. Chronic pancreatitis is a complex disease and oftentimes one that is very difficult to diagnose, especially with children. The diagnosis of Idiopathic causes is used when all other known causes are tested and rejected. I am not sure what either your doctor or nutritionist recommended for diet changes. The well recognized and standard diet usually recommended for pancreatitis patients is one that is low fat. Usual suggestions are for no more than a maximum of 30 grams of fat daily, many of us eat even less. This would mean avoiding any fried foods, many processed foods and fatty meats such as beef and lamb. Cook with turkey products, white breast meat chicken, lean pork and fish, removing all skin from poultry. Many bakery products are high in fat, especially those that contain eggs, butter or oils, and should be avoided. Almost all vegetables and fruits are fine, except avacados. Avoid butter, gravies, and nuts. Check the nutrition labels of any foods, anything containing more than 3 grams of fat does not qualify as " low fat " . If you wish to email me, I have a cooking and diet plan that you may find useful for ideas. With hope and prayers, Heidi Heidi H. Griffeth South Carolina hhessgriffeth@... Southeastern Representative Pancreatitis Association, Intl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Hey, Your story sounds exactly like ours. My daughter just turned 13 and her problems started in 2000 also. Her tests always come back normal, the Lupus thing you were talking about I think is an auto immune blood test and a couple of my daughters did come back positive so they tried steriods. But all that did was contribute to her weight problem. But all the other tests are almost always normal. And her veins are like your daughters, just not good. An IV or bloodwork may take an hour to several hours to find one, even for blood. She has a major fear of the trying to find a vein thing. And yes my daughter's, Jackie, is considered idiopathic. She has " flare- ups " but also started having daily pain since May of 2001. So she really deals with this illness. She eats a very low fat diet, but she does tolerate carbs well, too well, which is hard on her to lose weight. But it just seems like they are easy to eat. So I push vegetables as much as possible, fruit too. She has learned to hate the hospital and sometimes I feel like I am not sure if she should go. She begs not to go, so we call the doc and she stays on a clear liquid diet and he says keep her home during these times as long as she is getting enough liquids and not vomiting. I am sure I could go on and on...so if you have any questions, just ask. We live in South Carolina, and my email is SweteT@... Feel free to email me or just respond to me on this message board. This board is great and also a big comfort. Lots of info from people here too. Talk to ya soon, > hey is there any one out there dealing with chronic pancreatitis in > kids. my 12 year old daughter was diagnosed in 2000. today we are > not any closer to an answer for her than in 2000 when she had her 1st > attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Hey, Your story sounds exactly like ours. My daughter just turned 13 and her problems started in 2000 also. Her tests always come back normal, the Lupus thing you were talking about I think is an auto immune blood test and a couple of my daughters did come back positive so they tried steriods. But all that did was contribute to her weight problem. But all the other tests are almost always normal. And her veins are like your daughters, just not good. An IV or bloodwork may take an hour to several hours to find one, even for blood. She has a major fear of the trying to find a vein thing. And yes my daughter's, Jackie, is considered idiopathic. She has " flare- ups " but also started having daily pain since May of 2001. So she really deals with this illness. She eats a very low fat diet, but she does tolerate carbs well, too well, which is hard on her to lose weight. But it just seems like they are easy to eat. So I push vegetables as much as possible, fruit too. She has learned to hate the hospital and sometimes I feel like I am not sure if she should go. She begs not to go, so we call the doc and she stays on a clear liquid diet and he says keep her home during these times as long as she is getting enough liquids and not vomiting. I am sure I could go on and on...so if you have any questions, just ask. We live in South Carolina, and my email is SweteT@... Feel free to email me or just respond to me on this message board. This board is great and also a big comfort. Lots of info from people here too. Talk to ya soon, > hey is there any one out there dealing with chronic pancreatitis in > kids. my 12 year old daughter was diagnosed in 2000. today we are > not any closer to an answer for her than in 2000 when she had her 1st > attack. Quote Link to comment Share on other sites More sharing options...
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