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Re: question again

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,

the negative sweat test (given that the test was performed correctly

and the result is doubtless) has lessened the chance that he has CF

by more than 90%. Less than 10% of the pwcf have normal sweat scores.

That means that the negative sweat test CAN'T RULE OUT CF. So there

is still a chance (or should I better say risk) that he has CF.

Another disease that causes big airway problems is PCD (primary

ciliary dyskinesia). More about it you'll find here:

http://www.med.unc.edu/wrkunits/3ctrpgm/cystfib/PCD.htm

And on that site there is a link to the personal site of Dr.

Knowles, together with his email-adress

http://www.med.unc.edu/wrkunits/3ctrpgm/cystfib/Staff/knowles.htm

Maybe you or your docs can get more help from there.

Peace

Torsten

> ok i know that i said the test was negitve the test they did was

the

> sweat test and not a dna one do you all think they we should go

> further with this the reason i ask is that he gags alot and turns

> really pale when he does this and it seems to be a thick mucas(sp)

> like substance or is there something else that you guys can think

it

> would be ?

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