New on List . . . again & question

[Guest guest]

Hi,

I was on this list a couple of years ago, but dropped off due to time

constraints. Although I still have little time, I need to keep up-to-

date better and have a forum to ask (and answer) questions.

I have a 4 year old daughter named Sydney with CF nd asthma. She is

doing well now, but we have certainly had our ups and downs. She has

cultured 2 strains of pseudomonas (1 mucoid), staph a, aspergillus,

and alcaligenes. She has a g-tube, due to failure to thrive and

severe oral aversion, but as recently began to eat a lot more (after

a lot of feeding therapy). Syd had sinus surgery last summer and has

been doing well since.

Now for the question: Sydney's kindergarten teacher approached me

today about the little brother of one of Syd's classmates. He was

diagnosed with CF a couple of days ago and his mom is one of the

teacher's best friends. She asked if I would talk to the mother. Of

course I said yes. But then I started thinking about what to say. I

can describe CF and talk about how much better the prognosis is today

than years ago, and tell her about the CF Center here, but what else

should I tell her? I'm worried about overwhelming or scaring her

even more.

Please let me know what you think would help.

Thanks,

, mom of Sydney, 4 w/cf