Re: surgery outcome (Websites For )

[Guest guest]

Hello shannontuten@...,

In reference to your comment:

è However, the cystoscopy showed the real answer to my problems/pain. I have

significant interstitial cystitis. It is an inflammation of the bladder and

while there are treatments, there is no cure. I go back to the doctor next

week to discuss options

Dear - I found these sites on Intersitial Cystitis . They look

pretty informative...

This is the general information: What is Interstitial Cystitis?

Interstitial cystitis (IC), one of the chronic pelvic pain disorders, is a

condition resulting in recurring discomfort or pain in the bladder and the

surrounding pelvic region. The symptoms of IC vary from case to case. People

may experience mild discomfort, pressure, tenderness, or intense pain in the

bladder and surrounding pelvic area. Symptoms may include an urgent need to

urinate (urgency), frequent need to urinate (frequency), or a combination of

these symptoms. Pain may change in intensity as the bladder fills with urine

or as it empties. IC is far more common in women than in men. Of the more

than 700,000 Americans estimated to have IC, 90 percent are women. These

patients may be unable to work, unable to have sex comfortably. Fifty percent

are unable to drive in a car comfortably.

Website 1:

> Founded in 1984, the Interstitial Cystitis Association (ICA) is a

> not-for-profit health organization dedicated to providing patient and

> physician educational information and programs, patient support, public

> awareness and, most importantly, research funding. The ICA works nationwide

> on behalf of all IC patients.

http://www.ichelp.com/

CURRENT CLINICAL TRIALS

http://www.ichelp.com/clinicaltrials/welcome.html

Endometriosis is linked to style= " BACKGROUND-COLOR:Interstitial Cystitis ...

> Many of the conditions we are highlighting also occur with some frequency

> in IC patients. In our last issue, we discussed migraine headaches, and

> previous issues covered fibromyalgia and Sjogren’s syndrome. This issue’s

> topic is endometriosis. The Endometriosis Association supplied the copy for

> this article to the ICA Update. For more information on their services,

> please see the contact information at the end of this article.

> http://www.ichelp.com/RelatedDiseases/Endometriosis.html

http://www.ichelp.com/TreatmentAndSelfHelp/TreatmentGuidelines.html " >TREAT\

MENT GUIDELINES

http://www.ichelp.com/TreatmentAndSelfHelp/welcome.html

*********************************

Website #2:

Interstitial Cystitis Network, a publishing company exclusively dedicated to

interstitial cystitis and other pelvic pain disorders. Founded in 1994, our

company began first as a web site, one of the first urology web sites

established and the first interstitial cystitis web site created on-line

http://www.ic-network.com/

***********************************

I better go now. Hope these help. If you don't feel up to following the

tons of links on these websites let me know what you are most interested in.

The good news is that there is a section on treatment.

I can download the information and send it to in Word or Excel if you have it

(Excel seems to download faster). Hope you are having a better day.

Gail West þ Many People, Many Faces, One Voice

Indiana State Chapter Representative

Pancreatitis Association International

http://www.pancassociation.org

gwest1955@...