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HI there,

My name is Margaret and I have 2 boys. Jake is 8 and Earl is 10 and 1/2. Earl

has n1303k (cf) and Jake is not even a carrier. My husband and I found this out

8 and 1/2 years ago and thought that we could handle it.

The roller coaster ride has made me want to throw up at times and feel stronger

for lasting the latest ride. But, I am getting tired. My son is a loving child

that doesn't want to take his 14 meds.

My big thing that I need support with is the financial part. Because of a

sickness that my husband has had. We have maxed our credit cards on medicines

and the agencies say that we make too much money. What a terrible amount and

they have also hinted that I would benefit if I was divorced. I have to take 7

meds a day because of a seizure disorder and because of my nerves. My husband

has great insurance at work, but the out of pockets for just my son are costing

$420 a month. this is when he is healthy and without his nutritional extras. I

have gotten a part-time job to try to pick up some of the costs. but, my family

is suffering. Mom is not around to take care of them. We have no family within

850 miles!!

I know that someone out there has been in the same boat. Please ... if you

know of any thing that I should be doing. please.please. let me know.

margaret -mritchie2@...

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