Re: CHERI-visit to CF CEnter

[Guest guest]

I always feel like I am going to hell and back when I go to CF CEnter. Kids

hate it. They see it as more meds will be added. I am depressed going and

coming! I try to tell myself its good - it helps them - w/o it they would be

worse but damn its tough telling yourself how good it is for them when no one

wants to be there. I hate being the adult.

After CF Center they either get Dunkin Donuts or a hot dog from Street Vendor

- they love the treats - we love the calories....bribery does wonders!!!

When I go to the Center I bring everything but the kitchen sink to keep them

happy. Gameboy, food, drinks, paper, pens, etc. pack for the day! It seems

like an enternity!

I have to take LAuren (12) and Dylan (6) on Thursday. I dread it too. I

know they will get Flu Shots so I will have candy in my pocketbook. It

sucks but we have to do it.

Rosemary in New York with 3 children with CF - they are 12, 9.11, 6...I

coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you

ready for this - TOBI after their medication!