Re: doctors treatment of paniets

[Guest guest]

and Joe,

Unfortunately, this disease has a reputation... not a good one either. Even

though I can tell the ER docs why I have CP...they still treat it pretty

indifferently, like I caused it. Well, whatever the cause, it shouldn't make a

difference. CP is CP and it is a painful and debilitating disease that demands

we utilize the ER when necessary. If you continue to get this treatment, my

suggestion to you would be to call and have a chat with the Head honcho over the

hospital...or even over the ER. It may not help you in the near future, but it

may in the future someday.

Another suggestion... this last time in the ER I took my pain journal with me,

and you know what? The ER doc was very surprised that I had the fortuity to

keep a log of meds, pain, what causes pain and how I got relief if not from pain

meds. He said it was the best thing he had seen yet... hmmm... he didn't even

question my reasons until after I brought the subject up. (He was too impressed

with the journal) Maybe you and Joe should start logging things and taking them

with you to the ER... I even wrote down the docs name and the meds given in the

ER... It may help, but then again who knows. But do get ahold of someone about

this, don't let it slide. You could be the one to make a difference the next

time.

{{{HUGZ and Prayers}}}

---------------------------------

[Guest guest]

and Joe,

Unfortunately, this disease has a reputation... not a good one either. Even

though I can tell the ER docs why I have CP...they still treat it pretty

indifferently, like I caused it. Well, whatever the cause, it shouldn't make a

difference. CP is CP and it is a painful and debilitating disease that demands

we utilize the ER when necessary. If you continue to get this treatment, my

suggestion to you would be to call and have a chat with the Head honcho over the

hospital...or even over the ER. It may not help you in the near future, but it

may in the future someday.

Another suggestion... this last time in the ER I took my pain journal with me,

and you know what? The ER doc was very surprised that I had the fortuity to

keep a log of meds, pain, what causes pain and how I got relief if not from pain

meds. He said it was the best thing he had seen yet... hmmm... he didn't even

question my reasons until after I brought the subject up. (He was too impressed

with the journal) Maybe you and Joe should start logging things and taking them

with you to the ER... I even wrote down the docs name and the meds given in the

ER... It may help, but then again who knows. But do get ahold of someone about

this, don't let it slide. You could be the one to make a difference the next

time.

{{{HUGZ and Prayers}}}

---------------------------------

[Guest guest]

Hi, .

I give you applause for loving your husband enough to come and look for support

and answers. My husband is very much like you, and has been my rock for the

last almost four years.

I am 28, to be 29 in October, and have two children, one six and the other

almost eight months. It is sooooo difficult being young and wanting to do the

things that young people do with their spouse and kids and not being able to

sometimes, because of this dreaded disease. This disease is terrible at any

age, though. I've written many times on here about how it kills me that my

husband and oldest son have spent most of their time with me while I have been

sick. But, my husband's still here, going strong and loving me just the same as

when we first met. My son, well, I can't say enough. I know he misses out on

so many things, because I am sick. He doesn't say a word, though.

How did your husband get this? I don't know how long you've been visiting this

group or webpage, but a week or two ago, some folks gave really good examples of

a medical summary they carry with them to the ER. It can be found on the PAI

webpage under files. It's a great idea, because, if you already have all of

this info ready to hand to a ER doc or nurse, they really can't dispute what

you're saying.

Once again, I thank you for being by your husband's side. It takes a very

special human being to love one who sometimes might be a little hard to love, as

I know I am when I'm at my sickest.

Lots of prayers coming your family's way -

in KY

IH8U2_92 wrote:My husband is young (29) and has been DX with pancreatitis for

almost

3 years now. The surgery option to take the tail out is more for apin

management, then anything else. Thanks for listening and it is good

to know that there are other poeple around our age that are fighting

this too. It makes us not feel like on in a million.

& Joe Ring

[Guest guest]

Hi, .

I give you applause for loving your husband enough to come and look for support

and answers. My husband is very much like you, and has been my rock for the

last almost four years.

I am 28, to be 29 in October, and have two children, one six and the other

almost eight months. It is sooooo difficult being young and wanting to do the

things that young people do with their spouse and kids and not being able to

sometimes, because of this dreaded disease. This disease is terrible at any

age, though. I've written many times on here about how it kills me that my

husband and oldest son have spent most of their time with me while I have been

sick. But, my husband's still here, going strong and loving me just the same as

when we first met. My son, well, I can't say enough. I know he misses out on

so many things, because I am sick. He doesn't say a word, though.

How did your husband get this? I don't know how long you've been visiting this

group or webpage, but a week or two ago, some folks gave really good examples of

a medical summary they carry with them to the ER. It can be found on the PAI

webpage under files. It's a great idea, because, if you already have all of

this info ready to hand to a ER doc or nurse, they really can't dispute what

you're saying.

Once again, I thank you for being by your husband's side. It takes a very

special human being to love one who sometimes might be a little hard to love, as

I know I am when I'm at my sickest.

Lots of prayers coming your family's way -

in KY

IH8U2_92 wrote:My husband is young (29) and has been DX with pancreatitis for

almost

3 years now. The surgery option to take the tail out is more for apin

management, then anything else. Thanks for listening and it is good

to know that there are other poeple around our age that are fighting

this too. It makes us not feel like on in a million.

& Joe Ring

[Guest guest]

I wonder why the cdoctors treat you as though you did this to

yourself? The 1st set of doctors theat he had said that he did it

by drinking and seems to think he up himself in this situation.

Now we have a wonderful GI specialist and he does not treat us

this way. But in the ER it right back to the some old, same old.

& Joe Ring

Dear ,

It is unfortunate that so many suffer's are treated so poorly by ER

personnel. There have been many horror stories I've heard from

people at this website regarding their treatment at the ER. The

accusations, the lack of compassion, the disregard for a

patient's rights. I would hate to have to go through this treatment,

especially when wracked with pain and feeling as nausious and

desperate for relief as we get when we are hit by a bad attack.

The stories alone have kept me away from the ER doors on

three occasions when I should have gone, so I have not yet had

to deal with this situation.

All I can say is to keep a condensed version of your husband's

medical records handy to hand out to whoever is treating him in

the ER to validate his illness and substanciate his need for

compassionate relief, without judgement. This usually works for

most people, I understand, with an emphasis on usually.....since

I have also heard that some people disregard even this

documentation.

It's good that Joe has a doctor that is interested in his case and

prepared to do whatever necessary to try and bring him some

relief. I hope the surgery to remove the tail is successful, and

that he will soon have some pain-free days ahead of him.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

hhessgriffeth@...

Southeastern Representative

Pancreatitis Association, Intl.

http://www.pancassociation.org/storieshome.html#Heidi

[Guest guest]

I wonder why the cdoctors treat you as though you did this to

yourself? The 1st set of doctors theat he had said that he did it

by drinking and seems to think he up himself in this situation.

Now we have a wonderful GI specialist and he does not treat us

this way. But in the ER it right back to the some old, same old.

& Joe Ring

Dear ,

It is unfortunate that so many suffer's are treated so poorly by ER

personnel. There have been many horror stories I've heard from

people at this website regarding their treatment at the ER. The

accusations, the lack of compassion, the disregard for a

patient's rights. I would hate to have to go through this treatment,

especially when wracked with pain and feeling as nausious and

desperate for relief as we get when we are hit by a bad attack.

The stories alone have kept me away from the ER doors on

three occasions when I should have gone, so I have not yet had

to deal with this situation.

All I can say is to keep a condensed version of your husband's

medical records handy to hand out to whoever is treating him in

the ER to validate his illness and substanciate his need for

compassionate relief, without judgement. This usually works for

most people, I understand, with an emphasis on usually.....since

I have also heard that some people disregard even this

documentation.

It's good that Joe has a doctor that is interested in his case and

prepared to do whatever necessary to try and bring him some

relief. I hope the surgery to remove the tail is successful, and

that he will soon have some pain-free days ahead of him.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

hhessgriffeth@...

Southeastern Representative

Pancreatitis Association, Intl.

http://www.pancassociation.org/storieshome.html#Heidi

[Guest guest]

I wonder why the cdoctors treat you as though you did this to

yourself? The 1st set of doctors theat he had said that he did it

by drinking and seems to think he up himself in this situation.

Now we have a wonderful GI specialist and he does not treat us

this way. But in the ER it right back to the some old, same old.

& Joe Ring

Dear ,

It is unfortunate that so many suffer's are treated so poorly by ER

personnel. There have been many horror stories I've heard from

people at this website regarding their treatment at the ER. The

accusations, the lack of compassion, the disregard for a

patient's rights. I would hate to have to go through this treatment,

especially when wracked with pain and feeling as nausious and

desperate for relief as we get when we are hit by a bad attack.

The stories alone have kept me away from the ER doors on

three occasions when I should have gone, so I have not yet had

to deal with this situation.

All I can say is to keep a condensed version of your husband's

medical records handy to hand out to whoever is treating him in

the ER to validate his illness and substanciate his need for

compassionate relief, without judgement. This usually works for

most people, I understand, with an emphasis on usually.....since

I have also heard that some people disregard even this

documentation.

It's good that Joe has a doctor that is interested in his case and

prepared to do whatever necessary to try and bring him some

relief. I hope the surgery to remove the tail is successful, and

that he will soon have some pain-free days ahead of him.

With hope and prayers,

Heidi

Heidi H. Griffeth

South Carolina

hhessgriffeth@...

Southeastern Representative

Pancreatitis Association, Intl.

http://www.pancassociation.org/storieshome.html#Heidi

[Guest guest]

I am slowly learning that this disease has a bad rep. I do have a

log of all of Joe's meds, episodes and every test that he has been

given, right down to the blood tests. I laso put a small history in

the front of every dr visit and Er visit. The Dr's do seem pretty

impressed with it everytime I go.

Ring

land

>

> and Joe,

> Unfortunately, this disease has a reputation... not a good one

either. Even though I can tell the ER docs why I have CP...they

still treat it pretty indifferently, like I caused it. Well,

whatever the cause, it shouldn't make a difference. CP is CP and it

is a painful and debilitating disease that demands we utilize the ER

when necessary. If you continue to get this treatment, my suggestion

to you would be to call and have a chat with the Head honcho over the

hospital...or even over the ER. It may not help you in the near

future, but it may in the future someday.

> Another suggestion... this last time in the ER I took my pain

journal with me, and you know what? The ER doc was very surprised

that I had the fortuity to keep a log of meds, pain, what causes pain

and how I got relief if not from pain meds. He said it was the best

thing he had seen yet... hmmm... he didn't even question my reasons

until after I brought the subject up. (He was too impressed with the

journal) Maybe you and Joe should start logging things and taking

them with you to the ER... I even wrote down the docs name and the

meds given in the ER... It may help, but then again who knows. But

do get ahold of someone about this, don't let it slide. You could be

the one to make a difference the next time.

> {{{HUGZ and Prayers}}}

>

>

>

>

>

> ---------------------------------

>

[Guest guest]

,

I can't tell you how I felt when I found this message board! I cried

at the computer, I know make sure to get the the site atleast once a

day. My husband has even given me a hard time (joking) about being

on the computer late at night. For right now he is home from the

hospital and off of work for at least one more week. We have gotten

into a nightly thing where I read all the post to him.

As far as how he got CP, they have never really said exactly. He has

an abnormal narrowing of his pancreatic duct. he also has scare

tissue in the tail of his pancreas. This is why they are suggesting

the surgery. Everyone always tells us, he is so young to have this

and makes us feel that we are one in a million. It is comforting to

know that we are not the only young couple fighting this.

I know all to well what it is like to have a family with small

children and fight this disease. I also know how nasty he can get

when he is hurting. I am sure that if I felt like that to I would

not be very nice either. I am glad to hear that you have a husband

that supports you, I think that makes it better for the one with CP

I hope to hear from you again soon.

Ring

land

My husband is young (29) and has been DX with

pancreatitis for almost

> 3 years now. The surgery option to take the tail out is more for

apin

> management, then anything else. Thanks for listening and it is

good

> to know that there are other poeple around our age that are

fighting

> this too. It makes us not feel like on in a million.

> & Joe Ring

>

>

>

[Guest guest]

,

I can't tell you how I felt when I found this message board! I cried

at the computer, I know make sure to get the the site atleast once a

day. My husband has even given me a hard time (joking) about being

on the computer late at night. For right now he is home from the

hospital and off of work for at least one more week. We have gotten

into a nightly thing where I read all the post to him.

As far as how he got CP, they have never really said exactly. He has

an abnormal narrowing of his pancreatic duct. he also has scare

tissue in the tail of his pancreas. This is why they are suggesting

the surgery. Everyone always tells us, he is so young to have this

and makes us feel that we are one in a million. It is comforting to

know that we are not the only young couple fighting this.

I know all to well what it is like to have a family with small

children and fight this disease. I also know how nasty he can get

when he is hurting. I am sure that if I felt like that to I would

not be very nice either. I am glad to hear that you have a husband

that supports you, I think that makes it better for the one with CP

I hope to hear from you again soon.

Ring

land

My husband is young (29) and has been DX with

pancreatitis for almost

> 3 years now. The surgery option to take the tail out is more for

apin

> management, then anything else. Thanks for listening and it is

good

> to know that there are other poeple around our age that are

fighting

> this too. It makes us not feel like on in a million.

> & Joe Ring

>

>

>