Re: doctors treatment of paniets

September 2, 2002

I am slowly learning that this disease has a bad rep. I do have a

log of all of Joe's meds, episodes and every test that he has been

given, right down to the blood tests. I laso put a small history in

the front of every dr visit and Er visit. The Dr's do seem pretty

impressed with it everytime I go.

Ring

land

>

> and Joe,

> Unfortunately, this disease has a reputation... not a good one

either. Even though I can tell the ER docs why I have CP...they

still treat it pretty indifferently, like I caused it. Well,

whatever the cause, it shouldn't make a difference. CP is CP and it

is a painful and debilitating disease that demands we utilize the ER

when necessary. If you continue to get this treatment, my suggestion

to you would be to call and have a chat with the Head honcho over the

hospital...or even over the ER. It may not help you in the near

future, but it may in the future someday.

> Another suggestion... this last time in the ER I took my pain

journal with me, and you know what? The ER doc was very surprised

that I had the fortuity to keep a log of meds, pain, what causes pain

and how I got relief if not from pain meds. He said it was the best

thing he had seen yet... hmmm... he didn't even question my reasons

until after I brought the subject up. (He was too impressed with the

journal) Maybe you and Joe should start logging things and taking

them with you to the ER... I even wrote down the docs name and the

meds given in the ER... It may help, but then again who knows. But

do get ahold of someone about this, don't let it slide. You could be

the one to make a difference the next time.

> {{{HUGZ and Prayers}}}

>

> ---------------------------------

>

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