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Reflux & G tube

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,

Thanks for the info on G tubes and what to expect. Abby does not

have one, but she has serious reflux. She is on prevacid, zantac and

reglan. Based on posting to this site, we also asked our doctor to

try switching from creon to pancrecarb (spelling?). He agreed and

gave us samples. So far, Abby still refluxes several times an hour.

I am not sure how long it will take to see if the new enzyme will

help.

We have not done any upside-down therapy for about a month. Abby's

CF doctor is concerned that she may asperate some of her stomach

fluids into her lungs. Abby coughes throughout the day. Her doctor

believes that this is do to the reflux also. Abby had the upper lobe

of her right lung removed in June. It was too severely damaged and

would only have a been a source for infections. It was probably

damaged from the reflux. Abby is working with a GI doctor at the CF

clinic. All of the doctors there are impressive. They remember the

details of Abby's case and always discuss Abby's visits with each

other.

Abby is only 10 months old. She also has issues with swallowing.

Her formual must be thickened or some of it enters her lungs.

The doctors are hoping that Abby will outgrow both the reflux and

swallow issues. As her asophagas gets longer, the reflux may go

away. The reflux may be causing the swallow issue. We have to wait

and see.

Here's my questions:

1. Do you know of anything we should consider trying?

2. Does reflux improve when they start eating solid foods?

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