Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 , Thanks for the info on G tubes and what to expect. Abby does not have one, but she has serious reflux. She is on prevacid, zantac and reglan. Based on posting to this site, we also asked our doctor to try switching from creon to pancrecarb (spelling?). He agreed and gave us samples. So far, Abby still refluxes several times an hour. I am not sure how long it will take to see if the new enzyme will help. We have not done any upside-down therapy for about a month. Abby's CF doctor is concerned that she may asperate some of her stomach fluids into her lungs. Abby coughes throughout the day. Her doctor believes that this is do to the reflux also. Abby had the upper lobe of her right lung removed in June. It was too severely damaged and would only have a been a source for infections. It was probably damaged from the reflux. Abby is working with a GI doctor at the CF clinic. All of the doctors there are impressive. They remember the details of Abby's case and always discuss Abby's visits with each other. Abby is only 10 months old. She also has issues with swallowing. Her formual must be thickened or some of it enters her lungs. The doctors are hoping that Abby will outgrow both the reflux and swallow issues. As her asophagas gets longer, the reflux may go away. The reflux may be causing the swallow issue. We have to wait and see. Here's my questions: 1. Do you know of anything we should consider trying? 2. Does reflux improve when they start eating solid foods? Quote Link to comment Share on other sites More sharing options...
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