My Daughter has had Chronic Pancreatitis since she was five!

[Guest guest]

Hi Everyone,

My name is , and thanks to my best friend, I just found

this group today. I can't believe it!

My Daughter, Kasey, is eleven years old and has been in and out

of " attacks " since she was five. I do not know everything about the

disease, but I do know quite a bit. But from what I have heard and

seen, Kasey is like an exception to every rule for Pacncreatitis.

When all of the Doctors discovered what she had, they couldn't

believe it. They told me that it was very rare for children to get

it, especially girls. Then they told me the way she gets it is

different. They can not figure out why she gets it, and why she can

go almost a year without an attack and then only go for a few weeks

at a time without getting sick.

I have so many questions to ask all of you, but I will not load them

all into one email. She just got out of the hospital a few hours ago,

so I will share with you how one of her typical attacks go.

Thursday, August 29th she is running around like anormal eleven year

old, enjoying being home after just finishing her second day of sixth

grade. Then she wakes up Friday morning screaming in pain (it is

always when she wakes up in the morning) We knew right away that she

was having an attack for two reasons, 1) the look on her face (when

the pain is too high, she zones herself out...doctors say that people

do that to help themselvesdeal with massive pain) 2) the smell of her

breath (weird, I know, but she gets a very distinct breath odor when

she has her attacks) so my Husband took her to the emergency room

where they always proceed to check her Amilase and Lipase levels,

then admit her (she does have home health care, but they were having

problems with her port & we were out of Morphine and the Toradol was

not strong enough this time. No food or drink, no moving. The pain

usually lasts for 24 to 48 hours sometimes more, but not normally,

then after going 24 hours without pain, they start clear liquids, in

this case that was Monday. After 24 hours on liquids with still no

pain, then they proceed to a bland solid diet, then after being able

to handle that they will let her go home. (they check her blood

levels daily so they can ,make sure they are progressively going

down) Then that is it! Her attack is done. Nothing that lasts for

months at a time or anything.

They have tested her for EVERYTHING and they do not know " why " she

gets this.

OK I am done for now, I am so glad that I am part of this group now!