Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Guess what...... I learned that nigh blindness is related to damaged guts/malabsorption syndromes and Celiac Disease due to our vitamin malabsorption....I do believe it is either Vit B6 or B12....not sure...would have to look it up. So this problem may not be your genes! Once our intestines heal...I hope that this problem with my night blindness will reverse it self......if it hadn't been to late for those rod receptors in my eyes! Remember that damaged guts run in families too! Look at us and all our relatives that have CD! My God it is and epidemic in our family...both sides! Antoinette (entire family SCD day 23) Re: Adult ADD AND MORE! Just jumping in . . . I agree with Summer. The research I have been doing as well as the guidance I have gotten from our DAN points to the idea that this puzzle is genetic as well as environmental. I was told by our DAN, after asking me questions about my vision and the way I see light, that I have a mutation in some of my genes (I can post their general location after I look it up again and if there is interest). This mutation causes night-blindness and there is a strong correlation between this type of mutation and ASD in families. My daughter, Margeaux (who is add), also has a physical feauture which lends itself to this theory as well. She has accessory nipples (one that is particularly prominent). Dr. Megson says that when there is are mutations in these genes that strongly correlate with ASD it is not uncommon to find acessory nipples in the family. Apparently the gene that causes accessory nipples when it is mutated is located in close proximity to these " night-blindness " genes. Therefore, when one is mutated sometimes the other is mutated as well. With all that being said, it is still environmental factors which set off ASD (except for a tiny, small subgroup of ASDs). I have read that the mutated genes (which are originally mutated from environmental factors and passed down) are the pistol. Environmental toxins in our food, homes, and vaccines are the trigger. And, as Summer was saying, everyone manifests differently when the trigger is pulled which is why there is a spectrum rather than everyone ending up with autism. But it does seem that the higher the exposure to concentrated toxins, the more likely it is you will manifest more severely. I have also been told that hormones have a lot to do with this which is why boys are 4 times more likely to get ASD than girls. Apparently, estrogen provides some degree of protection for the brain against mercury and such. The opposite is true for boys. Their testosterone magnifies the toxicity of mercury. This leads us down the path towards puberty when we get surges of all these raging hormones. Many times it is this window when kids manifest or symptoms worsen (especially boys) which is why you sometimes see things like you said where it hits you in middle school. Anyway, this is what I am digging up. And I thought I would add my bit to this interesting thread. Jeni Lynn (gastrointestinal problems, family history of auto-immune and inflammatory disorders) SCD 3 weeks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Antionette, I agree with what you are saying. I left out in my post that I do believe SCD and good individualized nutritional supplementation are huge pieces to this puzzle. I am thinking that these mutations or whatever the problem is can be reversed, corrected, or compensated for in some way. Otherwise, we all would not see the results that we are seeing. Our DAN says that with all the measures we are taking for our family, she expects my children to make a complete recovery eventually. I know she couldn't say this if genetics were the " final say " in the matter. But with healing the gut, removing the toxins in our bodies (via SCD or otherwise), and limiting our exposure to new toxic insults as much as possible, we are on the road to recovery. What you say about night blindness relating to all of these digestive disorders and nutritional deficiencies makes sense to me. My family runs rampant with digestive problems, and obviously -- since I said it before -- I have night blindness. Maybe the genes / mutations whatever make one more susceptible to such vitamin deficiencies and the like? Who knows? That is why this is such a puzzle. But I try not to get stuck here. How it happened is important to investigate, but I have tried to move past it and focus on recovery since we all know this is a viable possiblity. I am so glad for this hope of recovery! Our genes do not determine the outcome here! Jeni Lynn (gastrointestinal problems) SCD 3 weeks mom to Margeaux, 5 yr. (add, heavy metal toxicity, gastrointestinal problems) , 3 yr. (heavy metal toxicity, gastrointestinal problems) Elle, 17 mo. (heavy metal toxicity, leaky gut) SCD 3 months Quote Link to comment Share on other sites More sharing options...
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