Re: reflux Liam Suggestions

[Guest guest]

Dear sweet gal,

I have only my love & prayers to send to you & yours. I know some one on

these lists will have had this experience & offer you their opinions as

well. Know I hold you all in my deepest thoughts ,best vibes,& caring

support......

LOVE & HUGS, grandmomBEV

reflux Liam Suggestions

Liam has been diagnosed with silent relux. Well hope this is the reason he

is not feeding well. He just gets soooooo stressed out when he has to feed.

My milk supply is fine, I know that now. He also wants to be carried

upright all the time, not laying down. I spend about 1- 1/2 hours per time

trying to feed him, with starts and stops along the way, 3 mins here, one

min there, what a mission!!! The doctors put him on Zantac 3 x per day and

we are on the second day, still no improvment. I have tried getting Liam to

drink from a bottle, a dropper, breast, feeding cup, poor boy must be so

confused and sore. I am paranoided he is not getting enough hence my

extremes of trying to get food down him. He has put on 220gms in 10 days!!

So weight is not the issue right now, he must be geeting enough, thank

goodness.

It is such a struggle though, especially hard when he is just screaming in

pain and I cannot console him, I feel terrible that he is in so much pain

and I cannot take it away. I guess I now know what it is like to be a

parent of a hurting child.

I have tried to feed Liam in every way possible, laying, sitting, cradeling,

football hold etc etc.....

Any suggestions would be great thanks

mum to baby Liam 4 months yesterday

smoneill@...

[Guest guest]

Dear sweet gal,

I have only my love & prayers to send to you & yours. I know some one on

these lists will have had this experience & offer you their opinions as

well. Know I hold you all in my deepest thoughts ,best vibes,& caring

support......

LOVE & HUGS, grandmomBEV

reflux Liam Suggestions

Liam has been diagnosed with silent relux. Well hope this is the reason he

is not feeding well. He just gets soooooo stressed out when he has to feed.

My milk supply is fine, I know that now. He also wants to be carried

upright all the time, not laying down. I spend about 1- 1/2 hours per time

trying to feed him, with starts and stops along the way, 3 mins here, one

min there, what a mission!!! The doctors put him on Zantac 3 x per day and

we are on the second day, still no improvment. I have tried getting Liam to

drink from a bottle, a dropper, breast, feeding cup, poor boy must be so

confused and sore. I am paranoided he is not getting enough hence my

extremes of trying to get food down him. He has put on 220gms in 10 days!!

So weight is not the issue right now, he must be geeting enough, thank

goodness.

It is such a struggle though, especially hard when he is just screaming in

pain and I cannot console him, I feel terrible that he is in so much pain

and I cannot take it away. I guess I now know what it is like to be a

parent of a hurting child.

I have tried to feed Liam in every way possible, laying, sitting, cradeling,

football hold etc etc.....

Any suggestions would be great thanks

mum to baby Liam 4 months yesterday

smoneill@...

[Guest guest]

Dear sweet gal,

I have only my love & prayers to send to you & yours. I know some one on

these lists will have had this experience & offer you their opinions as

well. Know I hold you all in my deepest thoughts ,best vibes,& caring

support......

LOVE & HUGS, grandmomBEV

reflux Liam Suggestions

Liam has been diagnosed with silent relux. Well hope this is the reason he

is not feeding well. He just gets soooooo stressed out when he has to feed.

My milk supply is fine, I know that now. He also wants to be carried

upright all the time, not laying down. I spend about 1- 1/2 hours per time

trying to feed him, with starts and stops along the way, 3 mins here, one

min there, what a mission!!! The doctors put him on Zantac 3 x per day and

we are on the second day, still no improvment. I have tried getting Liam to

drink from a bottle, a dropper, breast, feeding cup, poor boy must be so

confused and sore. I am paranoided he is not getting enough hence my

extremes of trying to get food down him. He has put on 220gms in 10 days!!

So weight is not the issue right now, he must be geeting enough, thank

goodness.

It is such a struggle though, especially hard when he is just screaming in

pain and I cannot console him, I feel terrible that he is in so much pain

and I cannot take it away. I guess I now know what it is like to be a

parent of a hurting child.

I have tried to feed Liam in every way possible, laying, sitting, cradeling,

football hold etc etc.....

Any suggestions would be great thanks

mum to baby Liam 4 months yesterday

smoneill@...

[Guest guest]

---my daughter with cf also has reflux and I know how frustrating this

can be. It seemed to take some time for the medicine to kick in so I hate to

say this, but give it some time. If after a few days, things have not improved,

talk to your doctor about dosage or other medications. Not every medication

works for everybody. Hang in there and just continue to comfort him. This will

pass once his medicine kicks in. Good luck. You're doing a great job.

mom of 3---one pwcf

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[Guest guest]

Relux can cause permanent damage to the esophagus and other nasty

problems, including swallowing difficulty. If Liam asperates his

refluxed stomach acids into his lungs, it can result in pheumonia.

Abby has been on prevacid, zantac and reglan for several months. We

even changed to the pancrecarb enzymes. They have a bi-coarbonate

coating. So far, she is still refluxing several times per hour.

It's discouraging and scary. Abby's GI doctor didn't think that we

should give alo vera to an infant. I hope that you find something

that works for Liam. I read that many infants have reflux issues

until they are about 12 months old. Many " out grow " this.

Gale

[Guest guest]

Relux can cause permanent damage to the esophagus and other nasty

problems, including swallowing difficulty. If Liam asperates his

refluxed stomach acids into his lungs, it can result in pheumonia.

Abby has been on prevacid, zantac and reglan for several months. We

even changed to the pancrecarb enzymes. They have a bi-coarbonate

coating. So far, she is still refluxing several times per hour.

It's discouraging and scary. Abby's GI doctor didn't think that we

should give alo vera to an infant. I hope that you find something

that works for Liam. I read that many infants have reflux issues

until they are about 12 months old. Many " out grow " this.

Gale

[Guest guest]

Relux can cause permanent damage to the esophagus and other nasty

problems, including swallowing difficulty. If Liam asperates his

refluxed stomach acids into his lungs, it can result in pheumonia.

Abby has been on prevacid, zantac and reglan for several months. We

even changed to the pancrecarb enzymes. They have a bi-coarbonate

coating. So far, she is still refluxing several times per hour.

It's discouraging and scary. Abby's GI doctor didn't think that we

should give alo vera to an infant. I hope that you find something

that works for Liam. I read that many infants have reflux issues

until they are about 12 months old. Many " out grow " this.

Gale

[Guest guest]

,

I am sorry to hear Liam was diagnosed with this. I was the one that

previously mentioned that my daughter, Emma, had similiar symptoms as an

infant and after months of bugging her doctors was diagnosed with silent

reflux. As someone else suggested, you do need to give the meds a little

time to work. I don't entirely understand why but it takes a few days to

a week and some times even longer for any affect to occur when they

change Emma's reflux meds but it does. Emma was initially put on Zantac.

Zantac works well for many kids but it basically did nothing at all for

Emma, she was on it for about four months. While on the Zantac, she

continued to slowly decrease what she was eating until she finally

stopped eating and drinking all together. Once they hospitalized her,

she was put on Reglan and Prilosec. The Prilosec deals with the acidity

level of the stomach and the Reglan is supposed to push things through

the stomach faster and into the intestines. Moving food through the

stomach faster, helps decrease the acid reflux issues since the stomach

is where the acid resides. Our doctors indicated that some kids stomachs

empty slower contributing to the development of acid reflux and this is

the reason why Reglan is used. The reglan didn't help Emma. It has a

possible side affect of vomiting which apparently only affects a very

small number of patients but unfortunately Emma was one of those kids.

We tried several other drugs in that same family and all of them caused

her similiar reactions but I really don't think this is common. At this

point, Emma's only GI drug is Prilosec. She is doing real well. Her

silent reflux is now more classical in that she actually vomits but we

can live with this. I originally breast feed Emma but as her eating

problems progressed I was doing both formula and breast feeding. We

increased the ratio of formula to water put into each bottle to help

boost calories (there are recipes to do this which our doctor gave us).

This helped keep her weight at a stable level. She was actually okay

weight wise when we had her hospitalized. She amazingly enough was still

gaining up into her total refusal of food. She wasn't on the charts but

she wasn't that far off it either. We were more concerned with

dehydration since she was drinking and eating so little (dry night

diapers and only one wet diaper a day).

Anyway, now that I have rambled on and on about Emma and what happened

with her. We tried many of the methods you listed to feed Liam for Emma

as well. I was obsessed with trying to get that food in her. I finally

came to realize that the real judge of what is happening is how well she

is gaining weight. If he is gaining weight and the doctors are

satisfied, don't stress out about it and give yourself a major breakdown.

Relax, try to keep it as calm as possible when feeding and don't

pressure Liam to eat. Once the reflux meds start to work, he will

eventually realize that it doesn't hurt to eat and hopefully start to eat

more. If this doesn't happen (give it a week or so), he may need an

increase or simply another reflux med entirely. I found this whole

experience very trying. Emma does have a feeding tube now. I remember

saying to myself, I have to get her to eat or she will be put on a

feeding tube. This prospect freaked me out. If I knew then what I know

now about feeding tubes, I wouldn't ever have said this to myself. They

aren't fun but they aren't a big deal either. I hated puting it down

Emma's nose when she had the NG tube but once it was there, the biggest

issue was if it would leak at night. It was messy. Anyway, my point is

don't stress out over the possibilty that he may eventually need a

feeding tube. I did this and really worked myself into a frenzy and as a

result her eating issues really stressed me out. My older daughter (2

1/2 at the time) used to always ask me why I always cried when i was

feeding Emma. Relax, especially if he seems to be gaining weight fine.

Keep at it and if things don't improve, work with his doctor until you

figure out what combination of reflux drugs helps. I hope this advise

helps. Let us know how it goes.

- mom to Emma 2 years old w/cf and reflux and Isabelle 4 years

wo/cf

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[Guest guest]

,

I am sorry to hear Liam was diagnosed with this. I was the one that

previously mentioned that my daughter, Emma, had similiar symptoms as an

infant and after months of bugging her doctors was diagnosed with silent

reflux. As someone else suggested, you do need to give the meds a little

time to work. I don't entirely understand why but it takes a few days to

a week and some times even longer for any affect to occur when they

change Emma's reflux meds but it does. Emma was initially put on Zantac.

Zantac works well for many kids but it basically did nothing at all for

Emma, she was on it for about four months. While on the Zantac, she

continued to slowly decrease what she was eating until she finally

stopped eating and drinking all together. Once they hospitalized her,

she was put on Reglan and Prilosec. The Prilosec deals with the acidity

level of the stomach and the Reglan is supposed to push things through

the stomach faster and into the intestines. Moving food through the

stomach faster, helps decrease the acid reflux issues since the stomach

is where the acid resides. Our doctors indicated that some kids stomachs

empty slower contributing to the development of acid reflux and this is

the reason why Reglan is used. The reglan didn't help Emma. It has a

possible side affect of vomiting which apparently only affects a very

small number of patients but unfortunately Emma was one of those kids.

We tried several other drugs in that same family and all of them caused

her similiar reactions but I really don't think this is common. At this

point, Emma's only GI drug is Prilosec. She is doing real well. Her

silent reflux is now more classical in that she actually vomits but we

can live with this. I originally breast feed Emma but as her eating

problems progressed I was doing both formula and breast feeding. We

increased the ratio of formula to water put into each bottle to help

boost calories (there are recipes to do this which our doctor gave us).

This helped keep her weight at a stable level. She was actually okay

weight wise when we had her hospitalized. She amazingly enough was still

gaining up into her total refusal of food. She wasn't on the charts but

she wasn't that far off it either. We were more concerned with

dehydration since she was drinking and eating so little (dry night

diapers and only one wet diaper a day).

Anyway, now that I have rambled on and on about Emma and what happened

with her. We tried many of the methods you listed to feed Liam for Emma

as well. I was obsessed with trying to get that food in her. I finally

came to realize that the real judge of what is happening is how well she

is gaining weight. If he is gaining weight and the doctors are

satisfied, don't stress out about it and give yourself a major breakdown.

Relax, try to keep it as calm as possible when feeding and don't

pressure Liam to eat. Once the reflux meds start to work, he will

eventually realize that it doesn't hurt to eat and hopefully start to eat

more. If this doesn't happen (give it a week or so), he may need an

increase or simply another reflux med entirely. I found this whole

experience very trying. Emma does have a feeding tube now. I remember

saying to myself, I have to get her to eat or she will be put on a

feeding tube. This prospect freaked me out. If I knew then what I know

now about feeding tubes, I wouldn't ever have said this to myself. They

aren't fun but they aren't a big deal either. I hated puting it down

Emma's nose when she had the NG tube but once it was there, the biggest

issue was if it would leak at night. It was messy. Anyway, my point is

don't stress out over the possibilty that he may eventually need a

feeding tube. I did this and really worked myself into a frenzy and as a

result her eating issues really stressed me out. My older daughter (2

1/2 at the time) used to always ask me why I always cried when i was

feeding Emma. Relax, especially if he seems to be gaining weight fine.

Keep at it and if things don't improve, work with his doctor until you

figure out what combination of reflux drugs helps. I hope this advise

helps. Let us know how it goes.

- mom to Emma 2 years old w/cf and reflux and Isabelle 4 years

wo/cf

________________________________________________________________

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[Guest guest]

,

I am sorry to hear Liam was diagnosed with this. I was the one that

previously mentioned that my daughter, Emma, had similiar symptoms as an

infant and after months of bugging her doctors was diagnosed with silent

reflux. As someone else suggested, you do need to give the meds a little

time to work. I don't entirely understand why but it takes a few days to

a week and some times even longer for any affect to occur when they

change Emma's reflux meds but it does. Emma was initially put on Zantac.

Zantac works well for many kids but it basically did nothing at all for

Emma, she was on it for about four months. While on the Zantac, she

continued to slowly decrease what she was eating until she finally

stopped eating and drinking all together. Once they hospitalized her,

she was put on Reglan and Prilosec. The Prilosec deals with the acidity

level of the stomach and the Reglan is supposed to push things through

the stomach faster and into the intestines. Moving food through the

stomach faster, helps decrease the acid reflux issues since the stomach

is where the acid resides. Our doctors indicated that some kids stomachs

empty slower contributing to the development of acid reflux and this is

the reason why Reglan is used. The reglan didn't help Emma. It has a

possible side affect of vomiting which apparently only affects a very

small number of patients but unfortunately Emma was one of those kids.

We tried several other drugs in that same family and all of them caused

her similiar reactions but I really don't think this is common. At this

point, Emma's only GI drug is Prilosec. She is doing real well. Her

silent reflux is now more classical in that she actually vomits but we

can live with this. I originally breast feed Emma but as her eating

problems progressed I was doing both formula and breast feeding. We

increased the ratio of formula to water put into each bottle to help

boost calories (there are recipes to do this which our doctor gave us).

This helped keep her weight at a stable level. She was actually okay

weight wise when we had her hospitalized. She amazingly enough was still

gaining up into her total refusal of food. She wasn't on the charts but

she wasn't that far off it either. We were more concerned with

dehydration since she was drinking and eating so little (dry night

diapers and only one wet diaper a day).

Anyway, now that I have rambled on and on about Emma and what happened

with her. We tried many of the methods you listed to feed Liam for Emma

as well. I was obsessed with trying to get that food in her. I finally

came to realize that the real judge of what is happening is how well she

is gaining weight. If he is gaining weight and the doctors are

satisfied, don't stress out about it and give yourself a major breakdown.

Relax, try to keep it as calm as possible when feeding and don't

pressure Liam to eat. Once the reflux meds start to work, he will

eventually realize that it doesn't hurt to eat and hopefully start to eat

more. If this doesn't happen (give it a week or so), he may need an

increase or simply another reflux med entirely. I found this whole

experience very trying. Emma does have a feeding tube now. I remember

saying to myself, I have to get her to eat or she will be put on a

feeding tube. This prospect freaked me out. If I knew then what I know

now about feeding tubes, I wouldn't ever have said this to myself. They

aren't fun but they aren't a big deal either. I hated puting it down

Emma's nose when she had the NG tube but once it was there, the biggest

issue was if it would leak at night. It was messy. Anyway, my point is

don't stress out over the possibilty that he may eventually need a

feeding tube. I did this and really worked myself into a frenzy and as a

result her eating issues really stressed me out. My older daughter (2

1/2 at the time) used to always ask me why I always cried when i was

feeding Emma. Relax, especially if he seems to be gaining weight fine.

Keep at it and if things don't improve, work with his doctor until you

figure out what combination of reflux drugs helps. I hope this advise

helps. Let us know how it goes.

- mom to Emma 2 years old w/cf and reflux and Isabelle 4 years

wo/cf

________________________________________________________________

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