Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 How much support do you all get from your families and/or spouses regarding dealing with this awful affliction? I've been dealing with this, along with irritant dermatitis for the last 5 years and I find that everyone I'm related to thinks that I'm making a mountain out of a molehill and that I should just accept that my skin's not perfect and get on with my life. They usually see me every couple of months, with makeup on, and to them it doesn't look bad. They don't usually see me when I'm in a flare and I have a rash all over my face, because I tend to hide then. They think I'm eccentric (not to mention a pain in the ass) that I try to control my diet and my environment so as not to aggravate this disease. My husband has seen more of the ups and downs of this but he also makes me feel that I am weak to let it get to me, that if it were him, he wouldn't let it bother him and it wouln't stop him from doing or eating any of the things that he likes. (Of course this is coming from a 38 year old man with a history of severe back problems who just threw his back out yet again trying to ride the neighbor kid's skateboard). I feel like no one understands but the people in this group, and that all the people who are supposed to be part of my support system think I'm creating problems where there really aren't any. Do any of you have this problem? Should I learn to keep it to myself or find a new support network? Thanks for listening. JE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 Dear JE, Since you asked....do both! Keep your rosacea woes to yourself when you are with folks who are not sympathetic or just involved in their own lives...and find a new support group that is supportive to share your experiences if that's what you need. ( Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 Dear JE, Since you asked....do both! Keep your rosacea woes to yourself when you are with folks who are not sympathetic or just involved in their own lives...and find a new support group that is supportive to share your experiences if that's what you need. ( Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 Dear JE, Since you asked....do both! Keep your rosacea woes to yourself when you are with folks who are not sympathetic or just involved in their own lives...and find a new support group that is supportive to share your experiences if that's what you need. ( Quote Link to comment Share on other sites More sharing options...
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