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Re: interstitial cystitis

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,

Just wanted to let you that I also have interstitial cystitis. My urologist put

me on Elmiron for several months and I have had no problems with it in over a

year. The Elmiron is supposed to rebuild the bladder wall lining. It worked

great for me. I could tell a huge difference in a matter of a couple of weeks.

The Elmiron is very expensive but I was able to get it through my insurance's

mail order prescription plan.

Hope they get it under control for you.

W

surgery outcome

Hi, I'm sorry I haven't posted in a while,I have been reading e-mails

though just not feeling well these days. My dog has cancer, and is on

steroids, he is doing ok now but its not a cure. He has 2 tumors in

his chest, as long as he is able to eat and not having trouble

breathing I am going to continue the steroids, and see what happens

when.

Now about my surgery, I had a laparotomy for endometriosis and

adhesions, they also performed a cystoscopy. The endo was not that

extensive, I did have some on my R ovary and it was lasered.

However, the cystoscopy showed the real answer to my problems/pain. I

have significant interstitial cystitis. It is an inflammation of the

bladder and while there are treatments, there is no cure. I go back

to the doctor next week to discuss options. I have been having alot

of pain after the surgery, although not pancreas type. I have pain

meds but they are not touching it. If I don't get any relief by in

the morning I am going to call- although not sure what they can do

over the phone. I'm tired so I'll write more later. If anyone else

has this I would appreciate any info. e-mail me privately if you wish.

-SC

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> ,

> Just wanted to let you that I also have interstitial cystitis. My

urologist put me on Elmiron for several months and I have had no

problems with it in over a year. The Elmiron is supposed to rebuild

the bladder wall lining. It worked great for me. I could tell a

huge difference in a matter of a couple of weeks. The Elmiron is

very expensive but I was able to get it through my insurance's mail

order prescription plan.

>

> Hope they get it under control for you.

>

> W

>

>:

Thank you very much. That is the med they are talking about putting

me on. My insurance should cover it, at least they have everything

else without me having to do mail order. If I used the mail order

plan half of my meds would not be formulary.(Merck-Medco) They can be

a real pain to deal with, so I go every month and get my

prescriptions, Its not that big of a savings to deal with the hassle

of mail order. Anyway, I'm glad the med worked so well with you. I

have a few concerns about it that I am going to discuss with my

doctor. like the anticoagulant effect- I am already on a regular EC

aspirin daily, and I do have diverticula,plus it can affect liver

enzymes. At least this doctor is at MUSC and knows Dr. Hawes so there

should not be a problem with him discussing this with him- as long as

Dr. Hawes is available anyway. Thanks again, its always good to hear

positive news about a treatment.

>

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> ,

> Just wanted to let you that I also have interstitial cystitis. My

urologist put me on Elmiron for several months and I have had no

problems with it in over a year. The Elmiron is supposed to rebuild

the bladder wall lining. It worked great for me. I could tell a

huge difference in a matter of a couple of weeks. The Elmiron is

very expensive but I was able to get it through my insurance's mail

order prescription plan.

>

> Hope they get it under control for you.

>

> W

>

>:

Thank you very much. That is the med they are talking about putting

me on. My insurance should cover it, at least they have everything

else without me having to do mail order. If I used the mail order

plan half of my meds would not be formulary.(Merck-Medco) They can be

a real pain to deal with, so I go every month and get my

prescriptions, Its not that big of a savings to deal with the hassle

of mail order. Anyway, I'm glad the med worked so well with you. I

have a few concerns about it that I am going to discuss with my

doctor. like the anticoagulant effect- I am already on a regular EC

aspirin daily, and I do have diverticula,plus it can affect liver

enzymes. At least this doctor is at MUSC and knows Dr. Hawes so there

should not be a problem with him discussing this with him- as long as

Dr. Hawes is available anyway. Thanks again, its always good to hear

positive news about a treatment.

>

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